Celiac disease

Geographic Tongue and Speech Lessons

image-300x225[1]When I was in kindergarten, I had to take speech lessons. Oh, I could talk, and I did nonstop to anyone who would listen. The problem was that nobody could understand a lot of the things I had to say. When I spoke, I heard “s.” Other people heard “sschhshs.” Kids at school would ask my name. I would say, “John.” They would ask, “Sean? Joe?” My friends would tell them my name.

I remember once, my speech therapist, a kindly older woman, remarked that I had geographic tongue. She stuck her tongue out to show me hers. It looked like the photo here. Gross!

This is actually what my tongue looks like from time to time. Actually, this is a photo of my tongue from several years ago. Yes, it is painful.

Doctors told me they didn’t know why it looked that way. For all of my childhood, I thought that was just the way I was.

Well, the cause is Read More »

Celiac Disease Fact: Celiac Disease Tests are NOT Pass or Fail

This is a Celiac Disease Awareness Month Public Service Announcement.

Many people, including doctors, believe that the blood tests for celiac disease are pass/fail, and that if you have a negative result you can never in the future have a positive result. This is wrong. See how all the celiac disease tests work on our Diagnosis page.

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This message was brought to you by our  Gluten Free Extravaganza sponsors, , , and !

Celiac Disease Fact: Celiac Disease Is An Undiagnosed Epidemic

This is a Celiac Disease Awareness Month Public Service Announcement.

Celiac disease affects 1% of the worldwide population. In the United States, it is estimated up to 17% of people with celiac disease are diagnosed. The rest are sick, but have no idea what is causing their problems.

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This public service announcement is brought to you by and The Gluten Free Extravaganza. Be sure to visit the Gluten Free Extravaganza Website where we are giving away 100s of prizes all month!

Celiac Disease Fact: Diagnosis Can Take Years

This is a Celiac Disease Awareness Month public service announcement.

Pass it on! Celiac disease diagnosis can take years. Not because tests don’t exist, but rather because doctors do not consider celiac disease when looking at your symptoms. Frequently, a symptom of celiac disease will receive the diagnosis, leaving the underlying cause untreated. Request to be tested if your symptoms match any on this symptom list.

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Be sure to visit the Gluten Free Extravaganza Website where we are giving away 100s of prizes all month! This message was brought to you by our sponsor, Kay’s Naturals. Visit to see all their gluten-free, protein rich snacks and cereals.

ImmunogenX Acquires Celiac Disease Therapy from Alvine Pharmaceuticals

Immunogenx-logo-lowx41[1]A therapy for celiac disease is one step closer. ImmunogenX purchased the license for Alvine Pharmaceuticals’ medicine, ALV003, which degrades gluten before it can be digested and absorbed by the intestines. The following press release was distributed by ImmunogenX.

“Glutenase for in-vivo gluten degradation is a leading candidate for celiac disease ImmunogenX™, a biopharmaceutical company focused on the diagnosis and treatment of autoimmune and gastrointestinal diseases, today announced that it has completed the acquisition of the non-cash assets of Alvine Pharmaceuticals.

This includes Latiglutenase (formerly known as ALV003 and renamed IMGX003), an orally administered mixture of two recombinant gluten-specific proteases that degrades gluten proteins into small physiologically irrelevant fragments. The technology is backed by over 50 issued or pending patents, has been extensively studied in Phase I and Phase 2 clinical trials, and is the only CD treatment that has demonstrated histologic success as well as symptomatic improvements in Read More »

Innovate Biopharmaceuticals Completes License For Late-Stage Celiac Disease Asset From Alba Therapeutics

Alba_Logo[1]Alba Therapeutics has been working on a therapy for celiac disease the past 8 years. Alba’s therapy, Larazotide Acetate, is the first to reach phase 3 clinical trials, where it will be given to large groups of people.

When Alba first contacted us about helping to promote their phase 2 clinical trial, we investigated the therapy’s mechanism and were glad to see the drug is not absorbed into the body, but acts in the intestine to stop gluten from being absorbed. Better yet, it worked. We covered Larazote Acetate in our article, Medical Research Study to Test a Potential Celiac Disease Therapy Is Underway and Signing up Participants.

A real therapy for celiac disease is one step closer. Alba just sent us the following press release concerning their deal with Innovate Biopharmaceuticals to produce the therapy.  Read More »

Gluten Free Works Health Guide Alert: How Gluten Affects Muscles

The Gluten Free Works Health Guide Newsletter is out!

This week focuses on gluten and how it affects the muscles.

Muscles. When they are chronically tired, hurt or do not work properly, our lives are impacted. Unfortunately, it is easy to get used to how we feel and grow to think, “That’s just me.”

Gluten sensitivity and celiac disease affect the muscles in a number of negative ways. What may seem like “normal” aches and pains can be a symptom of an underlying nutrient deficiency or health condition that can be improved nutritionally or treated by a doctor. Discover the various ways gluten impacts the muscles below. Then, read the Tip that follows to find out how to fix muscle problems.

Click here to read more!