Tag Archives: Resources

So You Want to Start a Celiac Support Group?

celiac disease support group

Celiac Disease Support Groups Are Priceless

I was diagnosed in 1996 when “celiac” and “gluten free” were still foreign words.  I remember the first conversation I had with a fellow Celiac.  I sat on the floor in my bedroom, confused and overwhelmed, listening to the kind voice on the other end of the telephone talking me through gluten free condiment options.  She introduced me to our local support group and within a few years, I was standing as the president.

Support groups serve a great purpose of providing grass root support from others in a similar situation.  This is priceless for newly diagnosed Celiacs and those who love them.  There can be an initial overwhelming sense of confusion and helplessness.  The good news is that even though there is a learning curve, it gets much easier!  And local support groups can be a huge help in the process.

Whether you want to start a support group or improve an existing one, these tips can help get you motivated and succeed. Read More »

Step by Step Guide: Beginning the Gluten-Free Lifestyle

FOR THE NEWLY-DIAGNOSED CELIAC AND DH’er STEP-BY-STEP:  BEGINNING THE GLUTEN-FREE LIFESTYLE©

by Janet Y. Rinehart, Houston,  and Lynn Rainwater, San Antonio

BEGIN

A definite diagnosis of Celiac Disease (screening blood tests plus endoscopic biopsies) and/or Dermatitis Herpetiformis (skin biopsy) means a lifetime commitment to a gluten-free diet.

  • Take full advantage of your local chapter membership.  Our group leaders and contacts have experience with the gluten-free diet.  We can help you acclimate to the changes in your lifestyle. We welcome your questions.
  • Join national celiac support groups, for example: Read More »

Simply Gluten Free Magazine Embraces Gluten-free and Allergen-free Living

Gluten Free Works Jennifer Harris

simply gluten free magazine

Photo: Simply Gluten Free Magazine

There is a new magazine dedicated to gluten and allergen-free living set to hit the market this Fall called Simply Gluten FreeCarol Kicinski, author, blogger, and speaker, is behind the new bi-monthly publication and its mission to provide knowledge and support to those seeking optimum health for themselves and their families.

The magazine, which will also be published in digital format, will be loaded with easy-to-prepare recipes with page-after-page of food photography. Wendy Gregory Kaho will serve as the editor of the magazine and a pool of very familiar and talented gluten-free bloggers will serve as the Read More »

Fibromyalgia and Gluten

christie bessinger gluten free works

Have you been told that along with Celiac Disease or Gluten Intolerance, you also have Fibromyalgia? If you have, you’re not alone. What exactly is Fibromyalgia? Well, there are certainly a lot of theories out there about what it is, and how it should be treated. Up until recently, it was considered an “invisible disease” (much like Celiac), and doctors would often diagnose it if they couldn’t find anything else wrong with you. In other words, instead of telling you, “you’re a hypochondriac,” they would say, “You have Fibromyalgia,” and give you an anti-depressant like Cymbalta, to help ease your symptoms.

Thankfully, with more and more people (especially women), complaining of similar symptoms, Fibromyalgia has finally gotten recognition as a legitimate disease. Some of the typical symptoms are Read More »

Special Diets Support Group – St. Mary’s County, Maryland

We are a group from St. Mary’s County, Maryland.

We meet at St Mary’s Hospital in Leonardtown, MD. 

Our leader is Teresa A. Andrasik, RNC and we meet on the first Thursday of each month from 7-9pm in the St. Mary’s Hospital. 

We are a group of people who have Celiac Disease, gluten sensitivities, and food allergies. 

Contact information: 
Teresa A. Andrasik, RNC – tandrasik@md.metrocast.net

Gluten-Free in Fresno! Meeting January 26th

For anyone who lives in or near the Central Valley… we will be having our first Gluten Free in Fresno support group meeting THIS WEEK!

Here are the details:

When: Wednesday, January 26th, 7:00-8:30 pm
Where: Whole Foods Market Fresno, Salud Room 
Who: ANYONE who is living or is interested in living a Gluten-Free diet Read More »

The Atlanta Gluten-Free Dinner Club

We currently have 338 members and have held 84 meetups since October 2003

The purpose of this group is to share experience, strength, and laughter with other Celiacs while enjoying gluten free meals at area restaurants. Our dinners are lots of fun & a great way to learn tips and information about living gluten free! Sometimes our best resources are each other!

If you enjoy dining out and meeting new friends, then this group is for you! We are always looking for the best places to eat gluten free in the Atlanta area. We have more options now than ever before as restaurants learn how to accommodate a gluten free diet. The options for us grow every year! Things we thought we couldn’t have anymore (pizza, pasta, Asian cuisine, even fried food!) have once again become part of our diets.

A great resource is our Message Board where you can join in a discussion on a gluten free topic or ask a question.

Website: http://www.meetup.com/atlantagfdinnerclub/

Contact: 2011 Organizer – Andrea Harrison, 404-403-3307, atlgfdinnerclub@comcast.net

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