[Seriously, it's time to get healthy. Click here.]

Gluten Free Diet Helps Little Boy with Glutaric Acidemia Type 1 (GA-1)


gluten free glutaric acidHaley is the mother of 21 month old Wyatt, who was diagnosed with Glutaric Acidemia Type 1 (GA-1) through newborn screening. Doctors have been unable to explain why a gluten free diet seems to be making such a positive difference to his health. Here is Wyatt’s story…

Haley’s letter to Glutaric Acidemia Group:

I thought I would share some interesting news with you all, in case there is a child out there like my son. We started my son on a gluten free diet in April and since then, his glutaric acid and 3-hydroxy glutaric acid levels have dropped significantly.

Wyatt is 20 months old and was diagnosed with GA1 through the newborn screen. He has had a rough journey, as I am sure a lot of our kiddos have. He has been hospitalized over a dozen times in his short life and has developmental delays. He has never been fond of feeding, so he had g-tube placement. At the time of the surgery we decided against additional surgery to control his reflux, as he would vomit after almost every feed. On our own we have been able to control his reflux through thickened formula and medications. These gastrointestinal difficulties prompted our specialist to do an upper endoscopy which found that my son had blunted villi in his intestines. This is the signature of Celiac Disease. We started Wyatt on a gluten free diet at that point while we waited for test results to verify the Celiac. Those tests came back negative but during that time of living gluten free he had his routine metabolic labs drawn. When the results came, our doctors couldn’t explain the dramatic change in his levels, but in the back of my head I knew he had been gluten free and that was the only change that could explain it.

We have continued Wyatt on a gluten free, low protein diet since then and his levels have been consistently lower. Today we met with our metabolic team and still they cannot explain it but they do think the gluten free diet is the reason his levels have dropped. I am not saying that I think everybody should switch there children to gluten free diets, but there may be another GA1 child like my son out there, who for some reason is affected by the gluten and could benefit from this information. We still don’t know what caused the blunted villi, but we see it as a blessing in disguise.

Just for reference, his glutaric acid levels went from 2000-2300 down to 1100-1400 and his 3-hydroxy glutaric acid went from the 300’s down to the 200’s.

 

——————————-
Author Information: Christie Bessinger, Fresno, CA
Publisher, Celiac Scoop Blog
You can reach Christie via Email

About Christie Bessinger

Christie Bessinger
  • Mayda says:

    Hi my name is mayda isidor my daughter’s name is haily and she was diagnosed with glutaric acidemia type 1 when she was 8 months old but when they diagnosed her it was already too late the condition developed and now my daughter is developmental delayed. Could you please share the gluten free recipes with me. My daughter is starting to eat now so I need some ideas.
    Thanks!

  • x

    Check Also

    10 Quick Gluten-Free Baking Tips

    Here are ten quick baking tips that will help make your next loaf of gluten-free ...

    The Link Between Epilepsy, Gluten and Celiac Disease

    November is Epilepsy Awareness Month. Many of us know someone with epilepsy. One of my ...

    Gluten Free Stuffing Recipe Video

    Thanksgiving is right around the corner! Dan Kohler from Renegade Kitchen and Rudi’s Gluten Free ...

    >

    close

    Gluten Free Works

    Membership 


    People worldwide are joining us so they can be a:

    GLUTEN FREE PRO

    • dot-circle-o
      Exclusive Discounts, Coupons and Samples!
    • dot-circle-o
      Member Only Content, Newsletters and Updates!
    • dot-circle-o
      Get Expert Tips and Advice So You Can Get Well & Stay Healthy!
    • dot-circle-o
      Almost 2,000 Articles, Recipes and Reviews Since 2005!