Tag Archives: Celiac disease

Most People Do Not Realize How Sick They Really Are 

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We are told the gluten-free diet is the only treatment for celiac disease and gluten sensitivity. We follow the diet, but do not recover fully. Many times, because we feel better than before, we do not grasp that we can be so much healthier than we are.
 
There are a host of health issues that can and should be treated through diet, supplements and medications, reducing inflammation and correcting deficiencies. Hundreds in fact.
 
Many times, we are told our symptoms are just who we are. And we accept that, because we don’t know any better.
 
Even our doctors have no idea that their patients who suffer from fatigue, thinning hair, flaking fingernails, poor vision, constant irritability, forgetfulness, mottled skin and hundreds of problems that they believe are “normal” day-to-day conditions actually result from Read More »

Celiac Disease Fact: Celiac Disease Tests are NOT Pass or Fail

This is a Celiac Disease Awareness Month Public Service Announcement.

Many people, including doctors, believe that the blood tests for celiac disease are pass/fail, and that if you have a negative result you can never in the future have a positive result. This is wrong. See how all the celiac disease tests work on our Diagnosis page.

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This message was brought to you by our  Gluten Free Extravaganza sponsors, Kay’s Naturals, Better BatterBard’s Beer and Uncle Steve’s Italian Specialties!

Celiac Disease Fact: Celiac Disease Is An Undiagnosed Epidemic

This is a Celiac Disease Awareness Month Public Service Announcement.

Celiac disease affects 1% of the worldwide population. In the United States, it is estimated up to 17% of people with celiac disease are diagnosed. The rest are sick, but have no idea what is causing their problems.

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This public service announcement is brought to you by Better Batter Gluten Free Mixes and The Gluten Free Extravaganza. Be sure to visit the Gluten Free Extravaganza Website where we are giving away 100s of prizes all month!

Celiac Disease Fact: Diagnosis Can Take Years

This is a Celiac Disease Awareness Month public service announcement.

Pass it on! Celiac disease diagnosis can take years. Not because tests don’t exist, but rather because doctors do not consider celiac disease when looking at your symptoms. Frequently, a symptom of celiac disease will receive the diagnosis, leaving the underlying cause untreated. Request to be tested if your symptoms match any on this symptom list.

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Be sure to visit the Gluten Free Extravaganza Website where we are giving away 100s of prizes all month! This message was brought to you by our sponsor, Kay’s Naturals. Visit Kay’s Naturals to see all their gluten-free, protein rich snacks and cereals.

ImmunogenX Acquires Celiac Disease Therapy from Alvine Pharmaceuticals

Immunogenx-logo-lowx41[1]A therapy for celiac disease is one step closer. ImmunogenX purchased the license for Alvine Pharmaceuticals’ medicine, ALV003, which degrades gluten before it can be digested and absorbed by the intestines. The following press release was distributed by ImmunogenX.

“Glutenase for in-vivo gluten degradation is a leading candidate for celiac disease ImmunogenX™, a biopharmaceutical company focused on the diagnosis and treatment of autoimmune and gastrointestinal diseases, today announced that it has completed the acquisition of the non-cash assets of Alvine Pharmaceuticals.

This includes Latiglutenase (formerly known as ALV003 and renamed IMGX003), an orally administered mixture of two recombinant gluten-specific proteases that degrades gluten proteins into small physiologically irrelevant fragments. The technology is backed by over 50 issued or pending patents, has been extensively studied in Phase I and Phase 2 clinical trials, and is the only CD treatment that has demonstrated histologic success as well as symptomatic improvements in Read More »

Innovate Biopharmaceuticals Completes License For Late-Stage Celiac Disease Asset From Alba Therapeutics

Alba_Logo[1]Alba Therapeutics has been working on a therapy for celiac disease the past 8 years. Alba’s therapy, Larazotide Acetate, is the first to reach phase 3 clinical trials, where it will be given to large groups of people.

When Alba first contacted us about helping to promote their phase 2 clinical trial, we investigated the therapy’s mechanism and were glad to see the drug is not absorbed into the body, but acts in the intestine to stop gluten from being absorbed. Better yet, it worked. We covered Larazote Acetate in our article, Medical Research Study to Test a Potential Celiac Disease Therapy Is Underway and Signing up Participants.

A real therapy for celiac disease is one step closer. Alba just sent us the following press release concerning their deal with Innovate Biopharmaceuticals to produce the therapy.  Read More »

Gluten Kills Awareness Tee Shirts and Hoodies

Gluten is killing people. Spread awareness and look great doing it with these awesome Gluten Kills tees & hoodies!

Gluten Kills Ladies Forest Tee

Gluten Kills Ladies Forest Tee! Other colors available.

Click here to get yours! 

Gluten sensitivity and celiac disease causes over 300 signs, symptoms associated disorders and complications. Millions of people around the world are affected, but the rate of diagnosis is low. Most people and doctors do not realize how many symptoms and illnesses gluten causes. Read More »

Stanford University Seeks Celiac Disease Study Participants

 

StanfordSeal[1]Jennifer Iscol, of the Celiac Community Foundation of Northern California, just distributed this message regarding a celiac disease study at Stanford University.

“Volunteers are needed for a genetic study on celiac disease at Stanford University. Please consider participating. Community participation is an essential component of Stanford’s celiac disease research. The research benefits all of us and future generations.

http://www.celiaccommunity.org/stanford-celiac-genetic-study/

Announcement from Stanford:

We are conducting a study to understand the genetic basis of celiac disease.  Families with at least one parent and one child with celiac disease are encouraged to enroll together.

The study involves: Read More »

Mental Health and Celiac Disease

If you’ve ever lived with undiagnosed Celiac Disease – chances are you’ve been to a psychologist at one time or another.  Perhaps your doctor told you that you had severe depression, bi-polar disorder, anxiety, or simply that it was “all in your head.” Believe me – I’ve been there, done that. I had even convinced myself as an undergrad in psychology, that with all the knowledge I was gaining, I would not only be able to fix my own problems, but that I’d some day be able to help everyone else fix their problems too. I would become so mentally tough that nothing could conquer me. The problem was -something was wrong … and it wasn’t really in my head. No amount of “positive thinking” could get me out of what I was going through. I didn’t want to be depressed – and yet I had depression. I didn’t want to feel anxiety, didn’t have any reason to be anxious – and yet, I had anxiety all the time. I knew who I was – but when I looked in the mirror, I wasn’t that person. Something else was going on- and it was beyond my control.

During my time as a psych student, I had begun to realize that what I was putting into my body had a direct effect on my mood, energy level, and overall happiness. I started paying close attention to what I was eating and how I would feel afterwards – which eventually led me to walk into my doctors office and ask for a blood test for Celiac Disease. When I finally got some answers – I thought, “Wow, no wonder I felt horrible at school all the time” because I would eat a Gordita or Mexican Pizza just about every day on the way to class at our campus Taco Bell. (Just for the record, Gluten + addicting Taco Bell cheese opiates = not a good combo ;) I began to truly understand that what I was putting into my body had a direct effect on my mind. (The GUT-BRAIN connection).  Read More »

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