Tag Archives: Celiac disease

Research Study on Genetic Testing Looking for Survey Participants

Gluten Free Works Jennifer Harris

Columbia University Celiac Disease Center

The Celiac Disease Center at Columbia University invites you to participate in a research study looking at individuals’ knowledge of genetic testing of celiac disease and their potential concerns with such testing.  The goal of this study is to increase understanding of the factors associated with making an informed decision regarding such testing and to better provide the necessary information to make such a decision.

A brief survey has been developed to address some of these factors.  The survey only takes five minutes to complete, it is anonymous, and no identifying information is collected. 
 
If you or a family member has celiac disease or gluten sensitivity, Read More »

Newly Crowned Mrs. Alaska Raises Awareness of Celiac Disease

John Libonati Gluten Free Works

Mrs. Alaska Brandy Wendler Celiac Disease

Brandy Wendler, the new Mrs. Alaska, has celiac disease.

April 8, 2011, Anchorage, Alaska: Brandy Wendler, wife of JohnRoss Wendler, pilot officer of Elmendorf Air Force Base who is serving in Japan’s relief effort, was crowned Mrs. Alaska United States 2011 in front of a packed auditorium at the Wilda Marston Theatre in Anchorage on Saturday, April 2nd, 2011.  

Although the Mrs. Alaska pageant was Mrs. Wendler’s first time competing in a pageant, her passion for speaking about Celiac disease, a disease Mrs. Wendler was diagnosed with 3 years ago, stole the hearts of the judges and the entire audience. 

Mrs. Alaska United States is a prestigious and elite title, which requires each contestant to choose a Read More »

Researchers Develop A Faster Way To Diagnose Celiac Disease

John Libonati Gluten Free Works

The following article was written by Erika Gebel and reprinted by permision from Chemical and Engineering News.

Celiac Disease Gluten Sensitivity Test

Celiac Disease and Gluten Sensitivity Often Go Undiagnosed

Judging by their symptoms, people with celiac disease could have food poisoning, depression, or iron deficiency. As a result, doctors often have trouble diagnosing the serious immune disorder. To develop a better test for the disease, researchers have made a device that can detect nanograms of gluten antibodies, the hallmarks of celiac disease, in human Read More »

Researchers Seeking Adults with Celiac Disease

Adults that have been diagnosed with Celiac Disease are being sought to participate in a study to identify factors associated with the development of Celiac Disease.  The goal of the study is to find the genes that may predispose individuals to develop this autoimmune disease.  Adults eligible to participate in this study must have been diagnosed with Celiac Disease through a small intestinal biopsy. Spouses may also be eligible to participate.

Participants will be asked to provide a blood sample, complete a questionnaire, and provide medical records regarding their diagnosis. There is no cost to Read More »

Have a Gluten-Free Valentine’s Day!

Have you checked out Gluten Free Works yet?  You really should.  Founded by Cleo and John Libonati, it is  dedicated to “helping people get well, look good and stay healthy living gluten free.”  And right now, they’ve got some very sweet Valentine’s info posted.

There’s a gluten-free brownie recipegluten-free strawberry heart rice crispie bar recipe and even a heart-shaped pizza recipe from Terri Gruss, MS, one of their regular contributors.  Jen Cafferty, founder of The Gluten Free Cooking Expo, shares a starter list of Read More »

Seventy Percent of Canadians Support No Exemptions to Proposed Food Labelling Regulations for Allergic and Celiac Consumers

OTTAWA, Feb. 2 /CNW/ – Prime Minister Stephen Harper is being asked to act on the concerns of millions of Canadians with food allergies and celiac disease and listen to the advice of prominent national medical, consumer and health organizations and pass proposed federal food labelling regulations now. The Prime Minister is also encouraged to heed the results of a new public opinion poll showing close to 70% of Canadians want regulations to affect all pre-packaged food and beverages and not grant a special exemption for the beer industry.

According to Angus Reid Public Opinion, 67% of Canadians approve of the proposed rules so they apply to all food and beverage companies, while only 21% believe the government should change the proposed rules to exempt the brewery industry from Read More »

Celiac Disease & Excessive Gas in the Digestive Tract: What it is and How to Get Rid of It

Source: Buzzle.com

It’s a fact. Everyone produces gas. Ordinarily, most people produce about 1 to 3 pints of gas in a day. Gas is normally painless, creating a feeling of fullness until it is passed.

But sometimes pain is experienced, and when it does it can be either dull or sharp, leaving us feeling bloated or tender in places. It can be localized in one spot, or felt throughout the abdomen.

About 50% of people with celiac disease complain of chronic discomfort from gas at the time of diagnosis.

What is Gas?

The accumulation of gas in the digestive tract is called flatus, and having Read More »

Everyone on a Gluten Free Diet?

I have thought for a long time about this very question.  Who would suggest such a thing?

I would. The main reason I would dare to make such a statement is because we have been so negligent in recognizing and treating people with celiac disease.  Not a day goes by that I don’t hear about or speak to someone directly who has suffered needlessly for years.  The other main point I want to make is that NONE of the currently available testing is 100%.

The blood tests and endoscopic biopsies are great tools if they are positive. If they are negative, I have heard of too many people tell me ‘I don’t have celiac disease, my blood test/biopsy was negative’.  This is a major cause for concern to me.  Both of these tests do not confirm you don’t have, or will never develop celiac disease.  First, neither test is 100% reliable.  Second, both tests are simply a snapshot Read More »

Giving Thanks for Health…My Story :)

 
 

Here's me at 1 year gluten-free

 This Holiday Season I am especially thankful for the health I now enjoy… it’s been a long journey these past 10 years or so…but I am so thankful for the knowledge I’ve gained about living a Gluten-Free lifestyle…the benefits that have come from it, and that after 10 years, I can finally say that I feel like “me” again. :) 
 
I’ve never really shared my entire experience, and normally don’t write posts that are too personal… but perhaps this can help someone out there who is wondering if they might have Gluten Intolerance or Celiac Disease… or someone who has been diagnosed  and wonders if it is really a “big deal” if they HAVE to go gluten-free or not. I can tell you from personal experience that it WILL CHANGE YOUR LIFE!!! It changed mine… and here’s how: 

It all started back in junior high and high school. I just felt “tired” all the time. I can’t even tell you how many times a day someone would come up to me and say, “What’s wrong? You look tired.” I even remember someone saying to me once, “You look dead.” (ouch!) It seemed like maybe I was just depressed or Read More »

Gluten Free Soapbox: We Are Not Crazy!

This week’s gluten free soapbox comes from the personal archives. I’m absolutely certain that I’m not the only one who has encountered this, but it doesn’t seem to get talked about much…

Often times, it seems that people who are on strict gluten free diets get viewed as high maintenance, or picky. The constant need to check and double check ingredients tends to bother some people. The reports of contamination and reactions go unbelieved, and people give that knowing look when “gluten free” is mentioned.

I even had a doctor say that the worst that could happen with Celiac Disease is diarrhea, so not to Read More »

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