Celiac disease

Celiac Disease Physician Education Program Goes Nationwide

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The Celiac Sprue Association – USA (CSA) recently ran the article below in Lifeline, CSA’s quarterly newsletter. The CSA-PEP refers to the CSA Celiac Disease and Gluten Sensitivity Physician Education Program.

CSA-PEP Goes Nationwide: Buffalo Physician Praises PEP

Lifeline_CSA-PEP_3rd_Quarter_2009_250x319Thanks to CSA members, CSA-PEP is now available in many doctors’ offices across the United States.

Mary Alice Kelly, MD, Buffalo, wrote recently to CSA.

“I have had so many eye opening moments going through the Recognizing Celiac Disease manual. It is so comprehensive, and I give kudos to the monumental task of putting this into a readable text. Lots of patients flash through my mind as I review co-morbid conditions.

There is more than enough material in this CSA-PEP packet to make a physician aware.

I think once you diagnose one or two patients, you include celiac disease in your differential diagnosis. Our problem as physicians is limited office time with patients, so the more organized material I have to offer, the better for them. Comparing your packets to the first homemade packets from the offices of dietitians is a world of difference.”

Read the full article here.

About the CSA Celiac Disease & Gluten Sensitivity Physician Education Program (CSA-PEP):

The CSA-PEP was created to increase diagnosis and improve treatment while increasing celiac disease awareness in the medical community and the public. It will provide 60,800 doctors and 10,000 medical students with information and resources that will aid them in identifying, diagnosing and treating people with celiac disease and gluten sensitivity.

To find out more about the CSA-PEP and get involved, visit their website here.

recognizing_celiac_disease_website_cover_132x162 Recognizing Celiac Disease is the definitive guide to understanding, diagnosing and managing celiac disease. It is a reader-friendly, celiac disease reference manual written for both medical professionals and the general public.

For more information visit, www.recognizingceliacdisease.com.
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Author Information: John Libonati, Philadelphia, PA
President-elect, Celiac Sprue Association (CSA).
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached at john.libonati@glutenfreeworks.com.

Celiac Disease Public Service Announcement

[Editor’s Note: This video is from 2007, but it is still true. Celiac Disease research still lags other, less prevalent conditions. Yet, it is the easiest to treat, requiring a gluten-free diet and nutrient replenishment. The focus has been on the Gluten-Free Diet. Let’s shift it back.]

 

Doctors are missing over 95% of people with celiac disease – over 3 million in the United States.  That’s more people than autism or Type 1 Diabetes, yet celiac disease receives a fraction of the funding of these diseases.  Lives are being destroyed every day, when a simple change in diet could cure them.  Let’s get the word out…

Read More »

Celiac Disease Q & A: Common Nutrition and Celiac Disease Questions

The following questions and answers were developed by the Beth Israel Deaconess Medical Center at Harvard Medical School:

Q. What is it like for a person you see who is newly diagnosed with Celiac Disease?
A. The gluten-free diet requires more preparation, taking food with you when you travel, making sure that you are safe in dining-out situations or when you are visiting with family or friends. So for some, it is very simple and straight forward and they are already experimenting with new grains like amaranth, buckwheat, millet, sorghum, and teff. But some people are Read More »

Celiac Disease Study Recruiting Participants

Plaza Research is currently recruiting men and women ages 18 and older who have been diagnosed with Celiac Disease to participate in a paid telephone discussion on the topic of Celiac Disease. The phone interviews are taking place on April 15th and April 27th, 2010 and will last approximately 1 hour in length. All participants will receive $50.00 for their time and opinions.

If you or anyone you know may be interested, please click on the link below to complete the online application for the study. All responses will be reviewed and qualified applications will be called back on first come first served basis until all seats are filled.

LINK TO APPLICATION:

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Author Information: Jennifer D. Harris, Atlanta, GA
Jennifer D. Harris, http://www.jenniferglutenfreeingeorgia.blogspot.com/
Gluten-Free Product Specialist, Return to Eden.
Program Chair, Atlanta Metro Celiacs, www.atlantametroceliacs.org
Twitter @jenniferGFinGA

Celiac disease symptoms: Gluten Free Works Symptom Guide

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Celiac Disease Symptoms: The Gluten Free Works Symptom Guide

Could my symptoms be related to celiac disease?

This is a common question people ask in the face of a bewildering array of possible celiac disease symptoms. The Celiac Disease Symptom Guide will help you identify possible symptoms and health problems that you can present to your doctor.

Here is the list of over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease.

Gluten Free Works, Inc. was the first organization in the world to publish this information in its comprehensive book, “Recognizing Celiac Disease.” This list is now being used by celiac disease centers, national celiac organizations and health organizations worldwide. Read More »

Celiac Disease, Diabetes Have Genetic Link

The article below discusses that similar genes are found in people with celiac disease and Type 1 Diabetes.  This supports the findings of a recent Danish study that showed 12.3% of children with Type 1 Diabetes tested positive for celiac disease. 

Published: March 4, 2008 at 5:48 PM

Print story Email to a friend Font size:LONDON, March 4 (UPI) — London researchers suggest celiac disease and diabetes may have common genetic origins.

David van Heel of Barts and The London School of Medicine and Dentistry demonstrated that of the nine celiac gene regions now known, four are also predisposing factors for type 1 diabetes.

The team of researchers, which also include Irish and Dutch scientists and the Wellcome Trust Sanger Institute, performed a genome-wide association study in celiac disease. Genetic markers across the genome were compared in celiac disease subjects versus healthy controls. The researchers identified seven new risk regions, six of which harbor important genes critical in the control of immune responses, highlighting their significance in the development of the disease.

Celiac disease, triggered by an intolerance to gluten — a protein found in wheat, barley and rye can lead to anemia, poor bone health, fatigue and weight loss.

The findings are published in the journal Nature Genetics.

© 2008 United Press International. All Rights Reserved.
This material may not be reproduced, redistributed, or manipulated in any form.

Celiac Disease, on the Couch

stock-photo-3443895-depression-and-sorrow1-216x300[1]Kathleen (not her real name) came to counseling because of anxiety. After an intake, we identified several areas in her life that sounded like they were contributing to her difficulties. We started working with Cognitive Behavioral Therapy, a system that looks at the thought sequence you use, and where a distorted belief can be corrected and thereby relieve suffering.

After teaching her a series of formulas, she was able to apply the principles herself when not in the office with me. This is a very effective psychotherapy intervention, that is so useful that many insurance companies paying for counseling expect to see it as part of a treatment plan. But, it did not seem to offer Kathleen the relief I was expecting. So, we continued looking elsewhere in her life for the source and solution of her anxiety. If it wasn’t her thinking causing it, perhaps it was situational. Read More »

Celiac Disease: Why You Must Depend on Yourself to Be Healthy

Below is an important letter by Cleo Libonati, celiac disease author and speaker. She explains why you must be your own health advocate if you wish to be healthy and receive optimal care.

Dear Friend,

For the past three years, I have met with HMOs, pharmaceutical companies, politicians, doctors, dietitians, celiac support groups, and patients across the United States. One thing is abundantly clear. Doctors are not recognizing celiac disease and do not realize how little they know about the disorder.

In 2004, the National Institutes of Health called for education of physicians and other healthcare providers about celiac disease. To date, few efforts have been undertaken and none has succeeded.

The result is missed diagnoses, inadequate follow-up, unnecessary surgeries, improperly prescribed medications and needless pain. During my presentations, I meet many people who think they are receiving good treatment and cannot understand why no one has told them their persisting symptoms are due to simple nutrient deficiencies. Read More »

Celiac Expert Answers – Could a Gluten-Free Diet Lead to Other Diseases? Video!

John Libonati Gluten Free Works

Weight loss, fad, miracle cure…there is an enormous amount of misinformation concerning the gluten-free diet in the news, on the internet and even in the medical community.

One of the worst ideas being perpetuated is that following a gluten-free diet can somehow be bad for you.

Dr. Stefano Guandalini, Founder and Medical Director of Columbia University’s Celiac Disease Center, answers the important question – Could following a gluten-free diet lead to other diseases?

Read More »

Celiac specialist discusses why it is still under diagnosed in the U.S.

Janes_Tiffany_Atlanta_GA

We are very lucky to have Dr. Cynthia Rudert, MD practicing in Atlanta. She is the only nationally recognized celiac specialist in the Southeast.

Recently I was fortunate enough to interview the very busy Dr. Rudert about celiac and her thoughtful answers were so informative that the interview will be posted in several parts. Unlike many doctors I’ve encountered, Dr. Rudert is always learning as much as she can about celiac so can help her many patients with the condition, as well as those with severe gluten-intolerance. I boldfaced some of the most crucial comments in Dr. Rudert’s reply below.

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Dr. Rudert, you have been treating people with celiac for many years now, but it seems that many doctors still think the condition is rare. Since we now know the condition affects almost 1 out of every 100 Americans, it is far from rare. What do you consider the main problem is, in getting the word out to the medical community about this greatly under diagnosed disease?

Celiac Disease is the most common autoimmune illness of humankind. If one were to take all the patients with Crohn’s Disease and all the patients with Ulcerative Colitis and add in all those with Cystic Fibrosis and then triple the numbers that would be equal to the number of individuals with Celiac Disease. For my Math friends: 3X (Crohn’s +Ulcerative Colitis +Cystic Fibrosis ) = Celiac Disease. Approximately 98% of those with Celiac are not diagnosed or misdiagnosed. Read More »

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