Celiac disease

Mental Health and Celiac Disease

If you’ve ever lived with undiagnosed Celiac Disease – chances are you’ve been to a psychologist at one time or another.  Perhaps your doctor told you that you had severe depression, bi-polar disorder, anxiety, or simply that it was “all in your head.” Believe me – I’ve been there, done that. I had even convinced myself as an undergrad in psychology, that with all the knowledge I was gaining, I would not only be able to fix my own problems, but that I’d some day be able to help everyone else fix their problems too. I would become so mentally tough that nothing could conquer me. The problem was -something was wrong … and it wasn’t really in my head. No amount of “positive thinking” could get me out of what I was going through. I didn’t want to be depressed – and yet I had depression. I didn’t want to feel anxiety, didn’t have any reason to be anxious – and yet, I had anxiety all the time. I knew who I was – but when I looked in the mirror, I wasn’t that person. Something else was going on- and it was beyond my control.

During my time as a psych student, I had begun to realize that what I was putting into my body had a direct effect on my mood, energy level, and overall happiness. I started paying close attention to what I was eating and how I would feel afterwards – which eventually led me to walk into my doctors office and ask for a blood test for Celiac Disease. When I finally got some answers – I thought, “Wow, no wonder I felt horrible at school all the time” because I would eat a Gordita or Mexican Pizza just about every day on the way to class at our campus Taco Bell. (Just for the record, Gluten + addicting Taco Bell cheese opiates = not a good combo ;) I began to truly understand that what I was putting into my body had a direct effect on my mind. (The GUT-BRAIN connection).  Read More »

Migraine Headaches and Celiac Disease

According to WebMD, approximately 45 million Americans suffer from chronic headaches, and of them, 28 million suffer from migraines.(1) A migraine headache is a neurologic disorder characterized by reduced cerebral blood flow. They are marked by periodic, usually one-sided pulsing headaches with or without aura and light and noise sensitivity or nausea.(1)

A 2003 medical study testing migraine sufferers for celiac disease showed that 4.4% had the disorder.(2) That would equate to more than 1.2 million migraine sufferers in the US having celiac disease.  Read More »

Miley Cyrus is Gluten-free, Casein-Free and The Latest Victim of Media Viciousness

John Libonati Gluten Free Works

Miley leaving her gym after a workout.

Miley Cyrus, the ultra popular nineteen year old singer and actress is the latest celebrity to fall victim to the media for being too healthy and too in-shape. And it’s all because she is gluten-free and casein-free.  Actually, the real reason is because many media “reporters” are vicious and misinformed. Their lack of concern for the truth and focus on sensationalism damages people like Cyrus, the gluten-free community and our society as a whole.

Here’s what went down…

Photos were taken of Miley leaving a pilates studio and looking SUPER fit and healthy. The media began by raving about Miley’s figure – how in-shape, fit and toned she looks. It was all “Yay Miley! We love Miley!” This was a win-win for everyone. Miley is famous, so the story sold. People got to see someone they recognize who was succeeding and looking Read More »

Most People Do Not Realize How Sick They Really Are 

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We are told the gluten-free diet is the only treatment for celiac disease and gluten sensitivity. We follow the diet, but do not recover fully. Many times, because we feel better than before, we do not grasp that we can be so much healthier than we are.
 
There are a host of health issues that can and should be treated through diet, supplements and medications, reducing inflammation and correcting deficiencies. Hundreds in fact.
 
Many times, we are told our symptoms are just who we are. And we accept that, because we don’t know any better.
 
Even our doctors have no idea that their patients who suffer from fatigue, thinning hair, flaking fingernails, poor vision, constant irritability, forgetfulness, mottled skin and hundreds of problems that they believe are “normal” day-to-day conditions actually result from Read More »

My Food Philosophy – Finding My Inner Foodie

Yummy snacks can be simple and easy to make!

With all the working out I do it still surprises me how most days I honestly don’t get hungry. It’s something that confuses me, but something I’ve just accepted as a “normal” part of my life.

What helps me cope with this is focusing on how food is nourishing and will help me continue to be healthy. I continually look for ways to make my diet more “nutrient dense.” I’m happy to report that I have been increasing the amount of veggies I’m eating and have found more that I am enjoying! However the child in me is coming out because I have to hide them in my foods….whatever way works right?

Last night I made a delicious bowl of pasta with pesto, eggplant, and peppers. I added kale as well but I think it would of been better if I steamed the kale. Sorry for the absence of a picture, but I must say it was a beautiful {and colorful} creation! Read More »

My Food Revolution: How I Became Gluten-free & Dairy-free

Every morning my freshman year in high school, I felt sick. I would miss a lot of first period class & summer swim workouts as a consequence. My mother and I could not figure out what was wrong.

Bobs Red Mill Chocolate Chip Cookies

Bob’s Red Mill chocolate chip cookie mix using soy free Earth Balance

Every day shortly after breakfast, I would get nauseous and have to lie down. One morning, I told my swim coach, who was frustrated with me missing so many workouts, I had “morning sickness.” At the time I was 14 and clueless to the usual context in which that phrase in used. Mom was mortified. I had to clarify to coach that I was not actually with child, and then it was off to the doctor, who confirmed I was likely lactose intolerant, so I stayed off dairy.

Down the road in college, I started getting sick after many meals, and after a few years of searching, I finally got a diagnosis of gluten sensitivity. First milk, now Read More »

National Celiac Disease Awareness Day in the United States: September 13

 

Today is National Celiac Disease Awareness Day in the United States. From the National Foundation for Celiac Awareness website:

September 13 has been dubbed “National Celiac Disease Awareness Day” in honor of the doctor who identified a link between celiac disease and diet. Dr. Samuel Gee, a leader in celiac disease research, was born on Sept. 13, 1839.

Senate resolution calling for the commemoration gained unanimous approval on Aug. 3, 2010. In marking the awareness day, the Senate “recognizes that all people of the United States should become more informed and aware of celiac disease,” the resolution stated.

Below is the full text of the resoluation, found at OpenCongress.com. Read More »

National Foundation for Celiac Awareness Addresses Gluten-Free Confusion in the Restaurant Industry

John Libonati Gluten Free Works

National Foundation for Celiac Awareness Announces gluten-free credentialing to address widespread confusion in restaurant industry

New Credentialing Designed to Increase Food Safety Practices for those with Celiac Disease, Gluten Sensitivity and Gluten-Free Nutritional Preferences

Ambler, Pa. – April 25, 2012– National Foundation for Celiac Awareness (NFCA), the non-profit organization dedicated to raising awareness and improving the lives of those of celiac disease and non-celiac gluten sensitivity, announces a gluten-free credentialing program that will enable restaurants to manage the growing interest around gluten-free menu items. There are inconsistent standards, a lack of understanding of the medical elements of a gluten-free diet and too often, a lack of transparency about kitchen practices within the restaurant sector that has put the health of patients with celiac disease and gluten sensitivity at risk.

“Gluten-free families, especially those who are newly diagnosed, struggle with maintaining the diet even at home,” says Dr. Ritu Verma, Pediatric Gastroenterologist at the Children’s Hospital of Philadelphia and a member of NFCA’s Medical and Scientific Advisory Board. “While eating out is such an integrated part of our social fabric, the lack of consistent standards creates a stressful experience that Read More »

National Foundation For Celiac Awareness Prepares Colleges and Universities for Gluten-free Requests

1/18/2013

Recent Court Settlement Sets Strong Precedent for Gluten- and Allergen-Free Accommodations; NFCA Urges Colleges and Universities to Take Action.

 

Ambler, Pa.  (Jan.  15, 2013) – Students choose their college or university based on a number of factors. Their ability to find a meal on campus shouldn’t be one of them.

 

gluten free college cafeteriaAccording to the National Foundation for Celiac Awareness (NFCA), an estimated 1 in 131 Americans is affected by celiac disease. These individuals require a strict, lifelong gluten-free diet – including when they’re at college.

 

“Students are coming home on break to find they have elevated blood levels or have lost significant weight because they’re not getting the gluten-free nutrition they need,” explains Alice Bast, founder and president of NFCA. “It’s a serious threat to their health, and it’s time the schools paid attention.”

Read More »

National Foundation for Celiac Awareness Puts Restaurant Industry to the Test

Kristen Beals Gluten Free Works

Chefs and Restaurateurs Flunk Gluten-Free Quiz at NRA Show

Ambler, Pa. (PRWEB) May 22, 2012

Chefs and restaurateurs lack a fundamental understanding of gluten-free protocols, and it’s a threat to those with gluten-related disorders, according to the National Foundation for Celiac Awareness (NFCA), the non-profit organization dedicated to raising awareness and improving the lives of those of celiac disease and non-celiac gluten sensitivity.

“When most people dine out, they expect a meal that’s safe to eat. Individuals with gluten-related disorders don’t have that luxury,” said Alice Bast, founder and president of NFCA.

Earlier this month, NFCA quizzed chefs and restaurateurs on the floor of the National Restaurant Association Show, an international gathering of professionals in the foodservice industry, and the results were alarming. Many of the chefs and restaurateurs said they have gluten-free options at their restaurants, yet less than four percent of them responded correctly to four questions regarding gluten (see “Survey Questions” below). Read More »

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