Archive for the ‘Celiac disease’ Category

 

Janet Rinehart

Step by Step Guide: Beginning the Gluten-Free Lifestyle

November 29th, 2010 by Janet Rinehart


FOR THE NEWLY-DIAGNOSED CELIAC AND DH’er STEP-BY-STEP:  BEGINNING THE GLUTEN-FREE LIFESTYLE©

by Janet Y. Rinehart, Houston,  and Lynn Rainwater, San Antonio

BEGIN

A definite diagnosis of Celiac Disease (screening blood tests plus endoscopic biopsies) and/or Dermatitis Herpetiformis (skin biopsy) means a lifetime commitment to a gluten-free diet.

  • Take full advantage of your local chapter membership.  Our group leaders and contacts have experience with the gluten-free diet.  We can help you acclimate to the changes in your lifestyle. We welcome your questions.
  • Join national celiac support groups, for example: (more…)

John Libonati

The History of Celiac Disease

November 29th, 2010 by John Libonati

The earliest description of celiac disease was recorded in the second century A.D. In 1888 Samuel Gee published a monograph on celiac disease that "to regulate the food is the main part of treatment ... The allowance of farinaceous foods must be small ... but if the patient can be cured at all, it must be by means of diet.”

In the early 1900’s a carbohydrate restricted diet was advocated where the only carbohydrates allowed were ripe bananas and rice. Then in the 1950’s Dr. W. K. Dicke published work reporting that celiac children improved dramatically during World War II when wheat, rye and (more…)

Marissa Carter

Gluten Free Soapbox: We Are Not Crazy!

November 29th, 2010 by Marissa Carter

This week's gluten free soapbox comes from the personal archives. I'm absolutely certain that I'm not the only one who has encountered this, but it doesn't seem to get talked about much...

Often times, it seems that people who are on strict gluten free diets get viewed as high maintenance, or picky. The constant need to check and double check ingredients tends to bother some people. The reports of contamination and reactions go unbelieved, and people give that knowing look when “gluten free” is mentioned.

I even had a doctor say that the worst that could happen with Celiac Disease is diarrhea, so not to (more…)

Heather M. Cline

So You Want to Start a Celiac Support Group?

November 18th, 2010 by Heather M. Cline

celiac disease support group

Celiac Disease Support Groups Are Priceless

I was diagnosed in 1996 when “celiac” and “gluten free” were still foreign words.  I remember the first conversation I had with a fellow Celiac.  I sat on the floor in my bedroom, confused and overwhelmed, listening to the kind voice on the other end of the telephone talking me through gluten free condiment options.  She introduced me to our local support group and within a few years, I was standing as the president.

Support groups serve a great purpose of providing grass root support from others in a similar situation.  This is priceless for newly diagnosed Celiacs and those who love them.  There can be an initial overwhelming sense of confusion and helplessness.  The good news is that even though there is a learning curve, it gets much easier!  And local support groups can be a huge help in the process.

Whether you want to start a support group or improve an existing one, these tips can help get you motivated and succeed. (more…)

Between 10 and 15% of adults within the United States will be diagnosed with a kidney stone.

Recurrence rates are estimated at about 10% per year, totaling 50% over a 5–10 year period and 75% over 20 years. Men are affected approximately 4 times more often than women. Recent evidence has shown an increase in pediatric  cases. The total cost for treating this condition was $2 billion in 2003.1

Kidney stones are an atypical symptom and associated disorder of celiac disease, however not all people with celiac disease will develop kidney stones. This article describes the pathway for the development of kidney stones that are seen in persons with celiac disease as well as the treatment and prevention. (more…)

Jennifer Slack

Don’t Let Fear And Anxiety About Gluten Steal Your Joy!

November 17th, 2010 by Jennifer Slack

Once you’ve been diagnosed with Celiac disease or gluten intolerance, it is easy to become wrapped up in fear and anxiety about food.  This is absolutely normal as now there is an apparent “evil” out there just waiting to get ya. 

However, reality is it’s been getting you on a regular basis prior to being diagnosed or figuring it out on your own.  While the symptoms definitely suck, and for some people, can be debilitating at times, you (more…)

Leslye Walton

Are Your Vitamins Making You Sick?

November 10th, 2010 by Leslye Walton

 

Photo courtesy of Joe Brentin

Sometimes gluten can appear in strange places; places you'd never expect. When you're diagnosed with Celiac Disease, or gluten-intolerance, it's up to you to make sure your toothpaste, the ketchup bottle in your fridge, and even your vitamins don't contain anything that can make you sick.

Some of these products may surprise you. For example, most people wouldn't suspect their vitamins contained gluten when in fact gluten is a common ingredient in (more…)

Gluten Free Diets May Reduce Autistic Behavior

November 9th, 2010 by Deborah A. Klein, MS, RD

                                                  

The CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network released data in 2007 that found about 1 in 150 (8-year-old) children in multiple areas of the United States had an Autism Spectrum Disorder (ASD). The number of diagnosed cases of autism is on the rise; the reason(s) for this is unclear.   Autism knows no racial, ethnic or social boundaries.  Family income, lifestyle, and educational levels do not appear to affect the chance of occurrence.

Fortunately, dietary changes can make a significant change in people with autism.  Research is profound on the positive impact that a gluten and casein free diet can make on children with autism.  Gluten and/or casein free diets have been implemented to reduce autistic behavior, in addition to special education, since the early eighties {Autism, Vol. 3, No. 1, 45-65 (1999)}.  The scientific studies include (more…)

Holy donations!  Congratulations to Dr. Alessio Fasano and the Center for Celiac Research at the University of Maryland Medical Center on receiving a $45 million private donation from the family of a grateful patient. 

The donation marks the largest single gift ever given to the university system and will be used to expand the University of Maryland Center for Celiac Research and study other autoimmune disorders such as multiple sclerosis and Type 1 diabetes. (more…)

The following questions and answers were developed by the Beth Israel Deaconess Medical Center at Harvard Medical School:

Q. What is it like for a person you see who is newly diagnosed with Celiac Disease? A. The gluten-free diet requires more preparation, taking food with you when you travel, making sure that you are safe in dining-out situations or when you are visiting with family or friends. So for some, it is very simple and straight forward and they are already experimenting with new grains like amaranth, buckwheat, millet, sorghum, and teff. But some people are (more…)