John Libonati

Celiac disease symptoms: Gluten Free Works Symptom Guide

by John Libonati on July 31st, 2009


Celiac Disease Symptoms: The Gluten Free Works Symptom Guide

Could my symptoms be related to celiac disease?

This is a common question people ask in the face of a bewildering array of possible celiac disease symptoms. The Celiac Disease Symptom Guide will help you identify possible symptoms and health problems that you can present to your doctor.

Here is the list of over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease.

Gluten Free Works, Inc. was the first organization in the world to publish this information in its comprehensive book, "Recognizing Celiac Disease." This list is now being used by celiac disease centers, national celiac organizations and health organizations worldwide.

BLOOD SYSTEM PROBLEMS Abnormal levels of blood components and quality of blood cells and plasma, detected by blood studies ordered by a doctor.

Anemia, Folic acid Anemia, Iron Anemia, Vitamin B12 Anti-Endomysium Antibodies (EMA) Anti-Gliadin Antibodies (AGA) Anti-Tissue Transglutaminase Antibodies (tTG) Associated Autoimmune Antibodies Bone Alkaline Phosphatase Enzyme, Elevated Calcium, Low Cholesterol, Low (below 156) Coagulation Factors, Low Copper, Low Hemochromatosis Glucose, Low or elevated Homocysteine, Elevated Hyperprolactinemia (elevated prolactin hormone) Hypoprothrombinemia Idiopathic Thrombocytopenic Purpura Liver Enzymes, Elevated Macroamylasemia Macrocytosis Macrolipasemia Magnesium, Low Neutropenia Phosphorus, Low Plasma Proteins, Low Potassium, Low Prolonged Prothrombin Time Transient Erythroblastopenia Zinc, Low

BODY COMPOSITION PROBLEMS Disorders of the body as a whole.

Anorexia (Poor appetite) Appetite, Increased Cachexia (Wasting of the body) Loss of Vitality Obesity Weight Gain, Unexplained Weight Loss, Unexplained

CARDIOVASCULAR SYSTEM PROBLEMS Disorders of the heart and blood vessels.

Angina Pectoris Aortic Vasculitis Atherosclerosis Cardiomegaly Coronary Artery Disease Easy Bruising (Ecchymosis) Hypertension Idiopathic Dilated Cardiomyopathy Nosebleeds, Unexplained

DIGESTIVE SYSTEM PROBLEMS The following symptoms in this section may be present alone or in any combination in celiac disease. They result from inflammation, damage, and interference with normal function caused by gluten exposure in the digestive tract itself and/or nutritional deficiencies. As you see, problems can develop not only in the small intestine where inflammation can be intense, but also in other areas such as mucosal tissues of the mouth, esophagus, stomach and colon.

Abdominal Distention (Bloating) Abdominal Pain Adenocarcinoma of the Small Intestine Aphthous Ulcers (Canker sores in mouth) Autoimmune Cholangitis Beta Casein Enteropathy (Cow's dairy intolerance similar to celiac disease) Bleeding, Unexplained Cancer of the Esophagus Cancer of the Pharynx Candida Infections Carbohydrate Malabsorption Cheilosis (Red lips, cracking/ oozing at corners of mouth) Colitis, Collagenous Colitis, Lymphocytic Colitis, Ulcerative Colonic Volvulus (Loop of intestine twists causing strangulation of intestine) Constipation Constipation Alternating with Diarrhea Crohn's Disease Defective Tooth Enamel (Yellow, white spots, missing enamel) Delayed Gastric Emptying (Early fullness after eating) Diarrhea, acute (Also called celiac crisis) Diarrhea, chronic Duodenal Erosions in the Second Part of Duodenum (Small ulcers) Dysphagia (Difficulty swallowing) Edema of Small Intestinal Lining Esophageal Small Cell Cancer Esophageal Motor Abnormalities (Poor muscle activity/coordination) Gas Gastric Ulcer (Stomach ulcers) Gastric Ulcerations Gastritis, Collagenous Gastritis, Lymphocytic Gastro-Esophageal Reflux Disease (GERD) Gastro-Intestinal Occult Bleeding (Blood in stool that is not visible to naked eye) Gluten Sensitive Enteritis Gums bleeding/ swollen (Purplish in adults/ red in children) Heartburn H. Pylori Bacter (Infection of the stomach) Impaired Gall Bladder Motility Irritable Bowel Syndrome Jejunitis, chronic Lactose Intolerance (Gas, bloating, loose stools from milk) Laryngospasm Leaky Gut Syndrome Lymphoma Malabsorption of Nutrients Maltose Intolerance (Gas, bloating, loose stools from maltose, a simple carbohydrate) Nausea Oral Mucosal Lesions (Mouth lesions) Plummer-Vinson Syndrome Post-cricoid Cancer Primary Biliary Cirrhosis (Bile backs up in liver) Primary Sclerosing Cholangitis (Scarring of bile ducts in liver) Small Bowel Intussusception (One loop of intestine slips into another) Small Intestinal Bacterial Overgrowth Steatorrhea (Pale, smelly, floating stool hard to flush or sticks to toilet) Sucrose Intolerance (Gas, bloating, mucous in stool from sugar) Tongue (Beefy, red, smooth, burning) Tongue (Fiery red, smooth, swollen, sore) Tongue (Magenta, swollen) Tongue (Pale, smooth, burning) Vomiting

GLANDULAR SYSTEM PROBLEMS Disorders of the glands.

Addison's Disease (Adrenal gland failure) Autoimmune Hepatitis Autoimmune Thyroiditis (Hypothyroidism) Diabetes Mellitus Type I Diabetic Instability Gastro-Intestinal Complications of Type 1 Diabetes Grave's Disease (Hyperthyroidism) Hepatic Granulomatous Disease Idiopathic Hypoparathyroidism Non-Alcoholic Fatty Liver Disease Pancreatic Insufficiency Parathyroid Carcinoma Primary Hyperparathyroidism Secondary Hypoparathyroidism

IMMUNE SYSTEM PROBLEMS Disorders of antibody production.

Allergic Rhinitis Antiphospholipid Syndrome Asthma Autoimmune Disorders in Celiac Disease Autoimmune Disorders in Dermatitis Herpetiformis Autoimmune Polyglandular Syndromes Common Variable Immunodeficiency Food Allergies, IgE and non-IgE Immune Responses IgA Deficiency Sarcoidosis Sjögrens Syndrome Systemic Lupus Erythematosus Urticaria, chronic (Hives)

INTEGUMENTARY SYSTEM PROBLEMS Disorders of skin, hair, and nails.

Alopecia Areata (Patches of hair loss) Alopecia, Diffuse (Balding) Cutaneous Vasculitis Cutis Laxa Dermatitis Herpetiformis Dermatomyositis Eczema Edema (Swelling) Eythema Elevatum Diutinum Erythema Nodosum Follicular Hyperkeratosis (Dry rough skin/ plugged hair follicles on body) Ichthyosis, Acquired Itchy Skin Rash Hangnail Koilonychia (Thin nails that flatten, ends progressively turning up instead of down) Melanoma Nails, Dry and brittle that chip, peel, crack or break easily Nails with Horizontal and Vertical Ridges/Fragile Nail with Rounded and Curved Down Ends, Dark, Dry Nails with White Spots Nails with Splinter Hemorrhages Pityriasis Rubra Pilaris Prurigo Nodularis (Hyde's Prurigo) Psoriasis Scleroderma Seborrhea Thin hair Vitiligo

LYMPHATIC SYSTEM PROBLEMS Disorders of the lymphocytes (white blood cells), lymph nodes and spleen.

B-cell non-Hodgkin's Lymphoma Cryptic Intestinal T-cell Lymphoma (Refractory Sprue) Enteropathy Associated T-cell Lymphoma (EATL) Extraintestinal Lymphomas Intraepithelial Lymphocytosis in Small Bowel Samples Lymphadenopathy Mesenteric Lymph Node Cavitation Hyposplenism (Atrophy of spleen)

MUSCULAR SYSTEM PROBLEMS Disorders of muscle structure and function.

Hypokalemic Rhabdomyolysis (Acute, severe potassium deficiency) Muscle Pain and Tenderness Muscle Spasm and Cramps Muscle Wasting Muscle Weakness Osteomalacic Myopathy Polymyositis Tetany

NERVOUS SYSTEM PROBLEMS Disorders of nerves, brain and spinal cord structure and function.

Anxiety Apathy Ataxia, Gait Disturbance Ataxia, Gluten Ataxia, Progressive Myoclonic Brain Atrophy Cerebral Perfusion Abnormalities (Poor blood flow) Chonic Fatigue Syndrome Chorea Cortical Calcifying Angiomatosis Dementia Depression Epilepsy Fatigue/ Lassitude Headache Inability to Concentrate Insomnia Irritability Migraine Multiple Sclerosis Nervous System Disorders Peripheral Neuropathy Progressive Multifocal Leukoencephalopathy Schizophrenic Spectrum Disorders Tremors Vasculitis of the Central Nervous System

PULMONARY SYSTEM PROBLEMS Disorders of lung tissue and broncheal tree structure and function.

Bronchiectasis Bronchial Pneumonia Idiopathic Pulmonary Hemosiderosis Increased Pulmonary Permeability Increased Susceptibility to Tuberculosis Lung Cavities or Abcess Non-Response to Tuberculosis Treatment Pneumococcal Septicemia

SENSORY SYSTEM PROBLEMS Disorders of sense organ structure and function.

Bitot's Spots (Foamy patches on whites of eye) Blepharitis Bloodshot Eyes Blurred Vision Cataracts Keratoconjunctivitis Sicca Keratomalacia Nightblindness Ocular Myopathy Smell, Loss of Taste, Loss of Uveitis, Bilateral Xerophthalmia

SKELETAL SYSTEM PROBLEMS Disorders of bone, joints and teeth.

Bone Fracture Bone Pain Enteropathic Arthritis Osteitis Fibrosa Osteomalacia Osteonecrosis Osteoporosis Psoriatic Arthritis Recurrent Monoarthritis

URINARY SYSTEM PROBLEMS Disorders of kidneys and urinaty tract structure and function.

Hypocalciuria IgA Nephropathy Kidney Stones Urinary Tract Infection

REPRODUCTIVE SYSTEM PROBLEMS IN FEMALES Disorders of organ structure and function.

Amenorrhea (Absence of menstrual period) Early Menopause Infertility Late Menarche (Late start of menstrual periods) Premenstrual Syndrome Dysmenorrhea (Painful menstrual periods) Dyspareunia (Painful intercourse) Vaginitis

REPRODUCTIVE SYSTEM PROBLEMS IN MALES Disorders of organ structure and function.

Hypogonadism Impotence Infertility Sperm Abnormalities


Severe Iron Deficiency Anemia in Pregnancy Short Duration of Breast Feeding Miscarriage Complications During Pregnancy, Labor and Delivery Complications After Childbirth

ZYGOTE DEVELOPMENT PROBLEMS Disorders of chromosomes.

Down Syndrome Turner's Syndrome

FETUS DEVELOPMENT PROBLEMS Disorders of that occur before birth of the child.

Congenital Anomalies Intrauterine Growth Retardation Cystic Fibrosis Spina Bifida

CHILD DEVELOPMENT PROBLEMS Disorders of children that occur after birth.

Autism and Learning Disorders Attention Deficit Hyperactive Disorder (ADHD) Cancer Predisposition in Children Chronic Bullous Dermatosis Delayed Puberty in Boys Delayed Puberty in Girls Dermatitis Herpetiformis Developmental Delay Failure to Thrive and Growth Retardation Fecal Occult Blood (Blood found in stool that is not visible to the naked eye) Glycogenic Acanthosis Hypotonia Juvenile Autoimmune Thyroid Disease Juvenile Diabetes Type 1 Juvenile Idiopathic Arthritis Abnormal Blood Studies Latent Anemia in Enzymopathies of Small Intestine (Lack of enzymes produced by villi) Penicilllin V Impaired Absorption Refractory Anemia (Unresponsive to iron therapy) Osteopenia Rickets Short Staure Stroke in Childhood END_____________________________________________________

Here are some other ways to look at problems:


Aloofness Hyperactivity Irritability (Common in children with celiac disease) Impatience Lack of Desire to Get Things Done Lack of Feeling Restlessness Timid Behavior Violent Behavior


Anxiety Apathy Bipolar disorder Depression Difficulty Making Friendships Easy Frustration and Anger Nervousness Panic Attacks Sense of Worthlessness Overly Self-critical Hysteria Hypochondria


Confused/ Faulty Thinking Confabulation Delusions Dementia Disorientation Faulty Learning Hallucination Inattentiveness Loss of Memory Loss of Immediate Memory Poor Memory Reduced Learning Slow Thinking Scattered Thinking

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5 Responses to “Celiac disease symptoms: Gluten Free Works Symptom Guide”

  1. ourGFfamily says:

    WOW what an extensive list! I would love a list of the symptoms that resolve on a GF diet and the ones that can continue. Thanks for posting.

  2. Sue says:

    If its not a silly question can you have any of these symptoms while on a gluten free diet?

    • John Libonati John Libonati says:

      Absolutely, you can have many of the symptoms while on a gluten-free diet. Almost all the symptoms of celiac disease stem from nutrient deficiencies resulting from malabsorption, so if you do not correct the nutrient deficiencies, the symptoms will persist. Usually, the intestines heal and absorption improves once gluten is removed from the diet. But you can speed up the process, by identifying symptoms and their underlying deficiencies and then adding foods high in those nutrients to your diet while supplementing with vitamins, minerals, etc.

  3. Tiera Mcclaine says:

    Hey may I use some of the material from this post if I reference you with a link back to your site?

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