Treatment

Don’t Let Fear And Anxiety About Gluten Steal Your Joy!

Once you’ve been diagnosed with Celiac disease or gluten intolerance, it is easy to become wrapped up in fear and anxiety about food.  This is absolutely normal as now there is an apparent “evil” out there just waiting to get ya. 

However, reality is it’s been getting you on a regular basis prior to being diagnosed or figuring it out on your own.  While the symptoms definitely suck, and for some people, can be debilitating at times, you Read More »

Easy G-Free Meals

I love Springtime. More sunshine, flowers coming up, and I just want to be outdoors…and not in my kitchen. I’m still not used to the longer days, so by the time it starts getting dark and I start thinking about dinner, I’m often scrambling to get food on the table. So it’s a great time to refocus on quick and easy. I love good food, but I’m also big on time savers. For me, that means:

Gluten Free New Year’s Resolution 2013

Being gluten free means adapting a whole new relationship to food, something that shapes our every day lives, holidays and traditions. Considering how complicated and challenging being gluten free can be, it seems appropriate to make our New Year’s Resolutions at least related to improving our health and gluten free lifestyle.

gluten free new year resolutions

Last year I had a slue of NYRs all about improving my gluten free lifestyle. You can check out last year’s list here but in summary, I decided to:

1. Be (even more) gluten free – this means making smart, safe choices at restaurants like getting a salad instead of french fries due to risk of cross contamination.

2. Become informed — I vowed to start following GF blogs so that I can stay current on what other GF advocates are up to.

3. Get techy — there are many phone apps out there that make being gluten free much simpler. I decided to start Read More »

Gluten Free Works Health Guide: Discovering and Treating the Underlying Causes of Health Problems.

Have you ever wondered whether your various aches, pains and health issues are related to gluten or past damage from gluten? Headaches, muscle pains, weakness, weight gain, cavities, eye problems, neurological disorders…

Nowadays, it is common to read that gluten can cause hundreds of symptoms.

This wasn’t always the case. At one point, just a handful of symptoms were thought to stem from gluten.

Gluten Free Works changed this. We were the first organization to collect over 300 signs, symptoms, associated disorders and complications from all over the world and publish them in the groundbreaking medical reference, Recognizing Celiac Disease, in 2007.

Chronic inflammation and nutrient deficiencies are the big contributors to health problems related to gluten. But, the complications gluten causes can persist, even once we start a gluten-free diet, unless they are individually treated.

And it seems a true gluten-free diet, where gluten is totally removed from the diet, is not the norm among people who think they are Read More »

How Do You Own Your Health?

This is the article I wrote on Health and Wellness for the Autism Community Magazine. 

I recently heard Rebecca Onie speak on TedTalk about the current healthcare system in the US. She poses the questions: “What if our health care system kept us healthy? What if waiting rooms were a place to improve daily healthcare? What if doctors could/would prescribe/facilitate diet and lifestyle change and improve health?” The work the patient needs to do is not done after the prescription is Read More »

How YOU Can Be Your Own Doctor and Why You Must

Neck InjurySeveral years ago I was referred to see a neurologist for a neck injury I received in a car accident.

This doctor is one of the top neurologists in the United States. He is a well known authority who teaches at a prestigious medical school. He is also a really nice guy.

After learning I publish Glutenfreeworks.com, he said he would pass the information to his mother, who he mentioned has gluten sensitivity. Noticing his small stature, slim build, flaking skin and 1/8th inch long paper-thin fingernails, I asked if he had been tested for celiac disease.

He chuckled and said, “I don’t have a malabsorption problem.”

One of the most distressingly common things I experience is meeting sick people who do not even know they are sick.

This physician, published and famous for his expertise in neurology, had no clue he was suffering from multiple symptoms of nutrient deficiencies. He was sick, but did not recognize the signs.

Doctors cannot recognize symptoms of nutrient deficiencies in themselves, let alone in their patients.

Why? Read More »

ImmunogenX Acquires Celiac Disease Therapy from Alvine Pharmaceuticals

Immunogenx-logo-lowx41[1]A therapy for celiac disease is one step closer. ImmunogenX purchased the license for Alvine Pharmaceuticals’ medicine, ALV003, which degrades gluten before it can be digested and absorbed by the intestines. The following press release was distributed by ImmunogenX.

“Glutenase for in-vivo gluten degradation is a leading candidate for celiac disease ImmunogenX™, a biopharmaceutical company focused on the diagnosis and treatment of autoimmune and gastrointestinal diseases, today announced that it has completed the acquisition of the non-cash assets of Alvine Pharmaceuticals.

This includes Latiglutenase (formerly known as ALV003 and renamed IMGX003), an orally administered mixture of two recombinant gluten-specific proteases that degrades gluten proteins into small physiologically irrelevant fragments. The technology is backed by over 50 issued or pending patents, has been extensively studied in Phase I and Phase 2 clinical trials, and is the only CD treatment that has demonstrated histologic success as well as symptomatic improvements in Read More »

Innovate Biopharmaceuticals Completes License For Late-Stage Celiac Disease Asset From Alba Therapeutics

Alba_Logo[1]Alba Therapeutics has been working on a therapy for celiac disease the past 8 years. Alba’s therapy, Larazotide Acetate, is the first to reach phase 3 clinical trials, where it will be given to large groups of people.

When Alba first contacted us about helping to promote their phase 2 clinical trial, we investigated the therapy’s mechanism and were glad to see the drug is not absorbed into the body, but acts in the intestine to stop gluten from being absorbed. Better yet, it worked. We covered Larazote Acetate in our article, Medical Research Study to Test a Potential Celiac Disease Therapy Is Underway and Signing up Participants.

A real therapy for celiac disease is one step closer. Alba just sent us the following press release concerning their deal with Innovate Biopharmaceuticals to produce the therapy.  Read More »

Medical Research Study to Test a Potential Celiac Disease Therapy Is Underway and Signing up Participants

There is no cure for celiac disease. But, there may soon be a new therapy to go along with a gluten-free diet.

A Phase II medical research study to test a potential therapy for people with celiac disease is underway and signing up participants at CeliacTrial.com.

celiac disease fasano

Alessio Fasano, MD. Co-founder of Alba Therapeutics

The investigational drug, Larazotide Acetate, was developed by Alba Therapeutics. It passed Phase I trials and is now being studied to determine how effective it is in different doses and whether side effects develop. Alba Therapeutics was co-founded by celiac disease researcher, Dr. Alessio Fasano, director of the Celiac Disease Center at the University of Maryland.1

The therapy is based on Dr. Fasano’s discovery that tight junctions between cells in the intestine can be opened or closed and that gluten relaxes these junctions. It is this process that leads to gluten improperly crossing into the body, thereby eliciting an immune reaction that leads to inflammation and damage characteristic of celiac disease.

“The reality is that the paracellular space is a gate, not a wall or fence. And if material gets through that space – even if it is only 1 to 5% of what normally travels through the cell – it could be associated with disease.”
-Alessio Fasano, MD1

Dr. Fasano discovered the potentially therapeutic utility of down-regulating intestinal permeability of celiac disease.1 In other words, he discovered that Read More »

National Jewish Health Expert Discusses Psychological Aspect of Living with Life Threatening Food Allergies

Gluten Free Works Author Jennifer Leeson

Mary Klinnert National Jewish Health

Mary Klinnert, PhD at National Jewish Health

I recently had the pleasure of meeting Mary Klinnert, PhD at National Jewish Health. Mary is an expert in child psychology and has numerous previous research studies on the effects of asthma on mental health.  She started her career mostly focusing on asthma, but in recent years, has turned much of her attention to the psychological aspects of living with life threatening food allergies.

While meeting with Mary, she briefed me on a study she is conducting on the psychological aspects of food allergies and how this study differs from the majority of previous studies that mostly focus on quality of life issues related to living with food allergies.  The hope of Mary and the rest of the team is to get to the root of what is happening to families that sometimes contributes to deeper Read More »

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