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Celiac Disease Public Service Announcement

[Editor’s Note: This video is from 2007, but it is still true. Celiac Disease research still lags other, less prevalent conditions. Yet, it is the easiest to treat, requiring a gluten-free diet and nutrient replenishment. The focus has been on the Gluten-Free Diet. Let’s shift it back.]

 

Doctors are missing over 95% of people with celiac disease – over 3 million in the United States.  That’s more people than autism or Type 1 Diabetes, yet celiac disease receives a fraction of the funding of these diseases.  Lives are being destroyed every day, when a simple change in diet could cure them.  Let’s get the word out…

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Chef Damian Cardone Brags About Feeding Gluten-free Patrons High Gluten Pasta

 

[Editor’s Note: This story is from 2011. It still illustrates why we must be vigilant about where we go to eat.]

Gluten-free Nation, you should be rightly shocked, dismayed and FURIOUS!  A chef in Glenwood Springs, Colorado is poisoning you…and bragging about it.

Chef Damian Cardone is wantonly feeding gluten pasta to patrons who request gluten-free food according to a post on his Facebook page. 

Chef Poisons People Gluten Free Works

Cardone was deliberately feeding high gluten food to people as of March 10 according the dates on comments to his post.  

It gets worse.  Cardone seems to relish his campaign to feed gluten-free individuals gluten… Read More »

Chevys Fresh Mex Launches Gluten-free Menu

[We have been informed Chevys no longer offers a gluten-free menu. 1/1/2017]

The chain is the third to introduce gluten-free items this month

 

Chevys’ Guac My Way guacamole is part of its new gluten-free menu. Instead of chips, the dish is served with corn tortillas.

Chevys Fresh Mex this week became the latest restaurant chain to launch a gluten-free menu in its company-owned locations.

Chevys’ launch follows the debut earlier this month of Domino’s Pizza’s new gluten-free crust and Chuck E. Cheese’s test of new gluten-free products, including a pizza and a cupcake.

The new menus, which cater to those with gluten-related disorders, have also raised controversy over whether restaurants can accurately label a menu item “gluten free” if there is a risk of cross contamination.

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Chuck E Cheese to Offer Gluten Free Options

Effective today, over 500 locations of Chuck E Cheese restaurants will begin offering two GFCO certified gluten-free options for those visitors following a gluten-free diet. An individual cheese pizza and an individual chocolate fudge cupcake are the two certified gluten free options now available to children and parents visiting the establishment.

Chuck E Cheese to offer gluten free options

Chuck E Cheese to offer gluten free options

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CSA Launches National Celiac Disease Physician Education Program (CSA-PEP)

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The Celiac Sprue Association (CSA) made the initial presentation of its pilot physician education program to Robert Wergin, MD, at the Milford Family Center in Milford, Nebraska. Recently named ‘Family Physician of the Year,” Dr. Wergin is in general practice at the Milford Clinic.

With this presentation, CSA launched the first phase of the most ambitious celiac disease physician education program in United States history – the CSA Celiac Disease and Gluten Sensitivity Physician Education Program (CSA-PEP).

The CSA-PEP was created to increase diagnosis and improve treatment while increasing celiac disease awareness in the medical community and the public. It will provide 60,800 doctors and 10,000 medical students with information and resources that will aid them in identifying, diagnosing and treating people with celiac disease and gluten sensitivity.

The program is designed so individuals have the option, with a donation of $70 or more, to present the CSA-PEP package to their personal physicians so they can receive optimal care.

This program advances CSA efforts to promote the CSA mission statement: “Celiacs Helping Celiacs.”

Materials in the CSA-PEP package include both physician and patient information: National Institutes of Health (NIH) celiac disease materials; information on dermatitis herpetformis; a gluten-free diet guide by Dr. Jean Guest, CSA’s consultant dietitian; the CSA Gluten-Free Product Listing; the medical reference Recognizing Celiac Disease; a current issue of the CSA Lifeline membership newsletter; fact sheets, brochures, patient pamphlets and other CSA publications.

For more information about this opportunity or to get involved with fundraising and distribution, please contact the CSA at 1-877-CSA-4CSA, or visit CSA online at www.csaceliacs.org.

Celiac disease is the most common inherited autoimmune disease in the world. The National Institutes of Health estimates 1% of the United States population has celiac disease, making it more common than breast cancer, autism or type 1 diabetes. Of the 3 million people in the US who have celiac disease, less than 5% are diagnosed. Gluten sensitivity is estimated to affect many more people than celiac disease. Healthcare costs of untreated celiac disease are estimated to run $14.5 to $35 billion per year. The disorder is triggered by ingesting wheat, barley, rye or oats and results in inflammation, tissue damage, and malabsorption of nutrients leading to a host of varied symptoms. The treatment of celiac disease and gluten sensitivity is removing wheat, barley, rye and oats from the diet.

With almost 100,000 contacts, over 9,000 members and 125 local support group chapters across the country, the Celiac Sprue Association (CSA) is the largest member-based 501(c)(3) non-profit organization dedicated to helping individuals with celiac disease and dermatitis herpetiformis worldwide through education, information and research.

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Domino’s: Gluten-Free Pizza Not Safe For People With Celiacs

Kristen Beals Gluten Free Works

(Editor’s Note: A follow up on Domino’s Pizza Offers Gluten-Free Pizza…Sort Of)

Domino's Pizza

5/8/2012 9:29 PM ET  (RTTNews) – Domino’s new gluten-free pizza should not be eaten by people with Celiac disease, the company said in a statement. Apparently, the first gluten-free pizza being offered by national pizza chain is designed for people with gluten sensitivity, as opposed to those with full-blown Celiac disease.

Despite the fact that the crust are gluten free, Domino’s can’t guarantee that no gluten will come into contact with the pizza, which could be dangerous for those with the gluten allergy. Read More »

Family Members of Persons with Celiac Disease Wanted for Research Study (STUDY IS CLOSED)

Gluten Free Works Jennifer Harris

(Editor’s Note: This study is closed.)

I just learned of a new study being conducted by The National Foundation for Celiac Awareness (NFCA) and Beth Israel Deaconess Medical Center (BIDMC) in Boston, Massachusetts to better understand the attitudes and beliefs of family members of persons with celiac disease.

More information on the study and how you can get involved follows: 

Celiac disease occurs in 10% of first-degree family members, such as a parent or sibling, and up to 20% of second-degree family members, such as an aunt, uncle or

FDA Publishes Guidelines for Gluten Free Medication Labeling

Big news today! The Food and Drug Administration of the United States just published it’s draft guidance on Gluten in Drug Products and Associated Labeling Recommendations.

The FDA recommends that the words “Contains no ingredient made from a gluten-containing grain (wheat, barley, rye)” be included when appropriate.

This labeling includes the following types of drugs:

  1. Orally ingested drugs that are absorbed in the intestine.
  2. Topically applied drugs that are placed near the mouth and may be ingested.
  3. Medications that are placed into the mouth.

This labeling does not apply to the following:

  1. Skin products not applied near the mouth.
  2. Costmetics.
  3. Supplements such as vitamins and minerals.
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