News

Is the Media Fueling the Gluten free, Casein Free Autism Controversy?

The debate about autism and the effectiveness of the gluten-free, casein-free diet continues – this time due to irresponsible reporting of the mainstream news media who seem to have chosen sensationalism over objective journalism when covering an important medical paper on gastrointestinal disorders in autism.

This week, a panel of medical experts led by Timothy Buie, MD at Harvard Medical School published a consensus statement on the Evaluation, Diagnosis and Treatment of Gastrointestinal Disorders in Individuals with ASDs (Autism Spectrum Disorders) in the medical journal Pediatrics. You can find the full paper here.

The panel covered 23 topics in a document that is 20 pages in length, dealing with the diagnosis and care of individuals with autism spectrum disorders and gastrointestinal issues. The panel based its conclusions on available information which they agreed was limited and incomplete.

The Key Topic

“Individuals with autism spectrum disorders who present with gastrointestinal symptoms warrant a thorough evaluation, as would be undertaken for individuals without autism spectrum disorders who have the same symptoms or signs. Evidence based algorithms for the assessment of abdominal pain, constipation, chronic diarrhea, and gastroesophageal reflux disease (GERD) should be developed.”

Some of the other topics include recommendations for the banking of DNA samples, the complexity of diagnostic evaluation when ASD and gastrointestinal disorders present, the need for studies to determine the prevalence of intestinal permeability in neuropsychiatric manifestions of ASD, and the need for large studies to determine the effectiveness of the gluten-free, casein-free diet. Read More »

Mark your calenders for September 13th

Cara_Goedecke_Exam_Pic

September 13th marks Celiac Sprue Association’s (CSA) Celiac Awareness Day. This provides a great time for people suffering with Celiac Disease to spread awareness to their friends, family, and doctors. The CSA has an awareness packet that is available for download from their website.

Several possible ideas to promote awareness is to take brochures to your doctor and health/fitness clubs. Host a luncheon with gluten free food to your friends and co-workers. Work with a restaurant to develop a gluten free menu.

This provides an ideal opportunity to teach others about the gluten free diet.
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Author Information: Cara Goedecke

Cara Goedecke – Oklahoma City Gluten free Examiner
http://www.examiner.com/x-22374-Oklahoma-City-Gluten-Free-Examiner
Oklahoma City Celiac Blog http://www.okceliac.com/blog/
e-mail: caralg520@gmail.com
Facebook OKC Celiac: www.okceliac.com

Mayo Research Suggests Celiac Disease More Common

(Editor’s Note: The author of the article reprinted below may have meant celiac disease when he wrote “gluten allergies.”)

Mayo research suggests gluten allergies more common
by Sea Stachura, Minnesota Public Radio
July 1, 2009

Rochester, Minn. — Celiac disease — an allergic reaction to gluten – is four times more common today than it was 50 years ago, according to research conducted at the Mayo Clinic.

Mayo gastroenterologist Joseph Murray says one in 100 people now have the disease.

He says doctors had thought the marked increase was a result of better screening, but the research suggests that celiac disease is truly becoming more common, paralleling other diseases like type one diabetes or allergies.

Murray says that suggests this could be an autoimmune response, or it could be that something has changed about gluten.

“When it’s not busy fighting infections in our environment it’s up to no good and turns on ourselves or create autoimmunity. That’s one theory,” he said. “Celiac disease is unusual in that we know the environmental trigger for the disease. You have to eat gluten, the protein from wheat, barley or rye to get the disease. So another possibility is that something changed about gluten.”

People with untreated celiac disease are also four times more likely to die earlier than people without the disease. Murray says people of all ages can develop the disease.

Source: http://minnesota.publicradio.org/display/web/2009/06/30/mayo_gluten_allergies/

Miley Cyrus is Gluten-free, Casein-Free and The Latest Victim of Media Viciousness

John Libonati Gluten Free Works

Miley leaving her gym after a workout.

Miley Cyrus, the ultra popular nineteen year old singer and actress is the latest celebrity to fall victim to the media for being too healthy and too in-shape. And it’s all because she is gluten-free and casein-free.  Actually, the real reason is because many media “reporters” are vicious and misinformed. Their lack of concern for the truth and focus on sensationalism damages people like Cyrus, the gluten-free community and our society as a whole.

Here’s what went down…

Photos were taken of Miley leaving a pilates studio and looking SUPER fit and healthy. The media began by raving about Miley’s figure – how in-shape, fit and toned she looks. It was all “Yay Miley! We love Miley!” This was a win-win for everyone. Miley is famous, so the story sold. People got to see someone they recognize who was succeeding and looking Read More »

National Celiac Disease Awareness Day in the United States: September 13

 

Today is National Celiac Disease Awareness Day in the United States. From the National Foundation for Celiac Awareness website:

September 13 has been dubbed “National Celiac Disease Awareness Day” in honor of the doctor who identified a link between celiac disease and diet. Dr. Samuel Gee, a leader in celiac disease research, was born on Sept. 13, 1839.

Senate resolution calling for the commemoration gained unanimous approval on Aug. 3, 2010. In marking the awareness day, the Senate “recognizes that all people of the United States should become more informed and aware of celiac disease,” the resolution stated.

Below is the full text of the resoluation, found at OpenCongress.com. Read More »

Nationwide Children’s Hospital Hosts 24th Annual Celiac Conference

Kim Bouldin Gluten Free Works

celiac-nationwide-childrens

For the 24th year in a row, Nationwide Children’s Hospital will be hosting  the Celiac Conference. The conference is a great place to  mingle, shop and learn more about Celiac Disease and the gluten-free diet.   The conference will take place on Saturday, October 29, 2011 from 7:30 AM  until 4:00 PM.  There will be separate educational tracks for adults, teens & school-age children.

The Keynote Speakers Will Be:

  • Dr. Michelle Pietzak
  • Chef Michael Rice

The Agenda:  Read More »

New Study Finds Link between Celiac Disease and Obesity in Patients

gluten overweight weight gain[Editor’s Note: Originally published October, 11, 2012]

Lately, it seems like more and more celebrities and professional athletes are openly talking about going gluten free. Whether it’s due to a diagnosis of celiac disease or a gluten sensitivity, or simply because they want to get healthy, many of them have noted a weight loss as part of the benefits they’ve been seeing. Then why is it, that so many doctors and specialists will dismiss a diagnosis of celiac disease in a patient simply because the patient is not underweight?

In a recent article by Sonia Kupfer, MD, the belief that people with un-diagnosed celiac disease are all underweight is revealed to  Read More »

Newly Crowned Mrs. Alaska Raises Awareness of Celiac Disease

John Libonati Gluten Free Works

Mrs. Alaska Brandy Wendler Celiac Disease

Brandy Wendler, the new Mrs. Alaska, has celiac disease.

April 8, 2011, Anchorage, Alaska: Brandy Wendler, wife of JohnRoss Wendler, pilot officer of Elmendorf Air Force Base who is serving in Japan’s relief effort, was crowned Mrs. Alaska United States 2011 in front of a packed auditorium at the Wilda Marston Theatre in Anchorage on Saturday, April 2nd, 2011.  

Although the Mrs. Alaska pageant was Mrs. Wendler’s first time competing in a pageant, her passion for speaking about Celiac disease, a disease Mrs. Wendler was diagnosed with 3 years ago, stole the hearts of the judges and the entire audience. 

Mrs. Alaska United States is a prestigious and elite title, which requires each contestant to choose a Read More »

NFCA Webinar October 7 – “Veggies & Beyond: Why Celiacs Need a Nutritionally Dense Diet”

This just in from the National Foundation for Celiac Awareness…

Whether you’re a dietitian ready for new information or a celiac in need of
quality gluten-free tips, this Webinar will put you in the know!

“Veggies & Beyond: Why Celiacs Need a Nutritionally Dense Diet”

Thursday, October 7 at 1 p.m. Eastern/10 a.m. Pacific Time

Join NFCA as GREAT Dietitian Melissa Marek, RD, from Axxya Systems Read More »

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