Tag Archives: Celiac disease

Nurse Practitioner with Celiac Disease Wins Mrs. Alaska International 2012

John Libonati Gluten Free Works

Brandy Wendler Mrs. Alaska International 2012

Anchorage, Alaska: Brandy Wendler is a familiar face in the gluten-free world. Just over a year ago, she captured our hearts when she won her first Mrs. Alaska title. Since then, she has been pursuing her goal to raise awareness for Celiac Disease and gluten intolerances. She has had the opportunity to travel cross-country making appearances and educating about a disease that affects over 3 million Americans. She has also started her own non-profit organization, A Spoonful of Wellness, and designed gluten-free menus for local restaurants in Anchorage. Brandy was diagnosed with Celiac Disease over 4 years ago and says her goal is to “decrease the number of people who have this disease and don’t know it.”

Recently, Brandy received the opportunity to continue serving the community in a unique way by being elected for a second title, Read More »

38th Annual Gluten-free Health and Wellness Experience in Seattle June 16th, 2012

Gluten Free Works Jennifer Harris

gluten intolerance groupThe Gluten Intolerance Group is having their Gluten-Free Health and Wellness Experience at the DoubleTree Hotel in Seattle on June 16th.  The Experience combines expert speakers, gluten-free exhibitors, free health screenings and more to help attendees learn how to live a healthy, balanced gluten-free life.

Registration starts at $15 per person and includes admission to all of the events. Topics for the day cover nutrition and health, lifestyle, cooking and exercise. Cholesterol and bone density can be checked and Read More »

Gluten Free Works Founders to Speak at Florida West Coast Expo

John Libonati Gluten Free Works

March 24, 2012 in St. Petersburg, Florida: John Libonati and Cleo Libonati, co-founders of GlutenFreeWorks.com and publishers of Recognizing Celiac Disease, will be speaking at the Florida West Coast Support Group’s Expo – “Gluten-Free for Life.”

The first ever Gluten-Free for Life Expo will be held in St Petersburg on March 24, 2012 from 11:am to 4:pm at The Coliseum, 535 Forth Avenue N.  The Gluten Intolerance Support Group of Largo presents this one-of-a-kind expo to provide information on the Gluten-Free lifestyle.  The group’s goal is to increase awareness of Celiac Disease and Gluten–Intolerance and provide education and resources for the Gluten-Free Community.

Cleo Libonati explains the connection between gluten, nutritional deficiencies and health

Cleo Libonati, RN, BSN will be presenting “Identifying and Correcting Nutritional Deficiencies in Celiac Disease.” While many people recognize the need to remove gluten from the diet, the other side of getting well – how to identify and correct nutritional deficiencies – is less understood by patients and professionals alike. Cleo has spoken to medical schools, nurse practitioner associations, dietetic associations and gluten free support groups across the country where her presentation consistently receives rave Read More »

Family Members of Persons with Celiac Disease Wanted for Research Study (STUDY IS CLOSED)

Gluten Free Works Jennifer Harris

(Editor’s Note: This study is closed.)

I just learned of a new study being conducted by The National Foundation for Celiac Awareness (NFCA) and Beth Israel Deaconess Medical Center (BIDMC) in Boston, Massachusetts to better understand the attitudes and beliefs of family members of persons with celiac disease.

More information on the study and how you can get involved follows: 

Celiac disease occurs in 10% of first-degree family members, such as a parent or sibling, and up to 20% of second-degree family members, such as an aunt, uncle or

BioLineRx Announces Publication of Pre-clinical Results Demonstrating Efficacy of BL-7010, an Oral Treatment for Celiac Disease and Gluten Sensitivity

Kelly Clayton Gluten Free Works

Just last week BioLineRx, a biopharmaceutical development company announced successful pre-clinical testing of a potentially revolutionary treatment for celiac disease.  This new treatment may help celiac disease patients reduce their gluten toxins to create an overall healthy body for all celiac disease patients.

Jerusalem, Israel – February 21, 2012 – BioLineRx (NASDAQ: BLRX; TASE: BLRX), a biopharmaceutical development company, announced the publication of pre-clinical results demonstrating that BL-7010, an orally available treatment for celiac disease, reduces gluten toxicity (the negative effect of gluten on the patient’s body). The research was published in the February edition of Gastroenterology.

The findings indicate that BL-7010 (previously called P(HEMA-co-SS)) reduces digestion of wheat gluten, thereby decreasing its Read More »

Celebrities Who Eat Gluten-free…the Numbers are Growing!

Gluten Free Works Jennifer Harris

Billy Bob Thornton Gluten FreeIn light of the recent article by Huffington Post entitled “Famous and Gluten Free?” it seems like the perfect time to update my article on celebrities who have been diagnosed with Celiac Disease to include those who are also gluten sensitive, wheat intolerant, or those who choose to eat gluten-free foods.

The term gluten free is being used in the media quite often.  Sometimes it is use appropriately and other times the gluten-free diet is touted as a ‘fad diet’, ‘weight-loss diet’, ‘dangerous diet’, etc. Jeopardy recently used gluten free foods as a category.

It is also apparent that TV shows want to get in on the action and openly ‘mock’ the disease and perpetuate the ‘fad diet’ aspect.  Gossip Girl, 2 Broke Girls, and Man Up are the recent offenders and it seems Read More »

Become a Gluten-free Activist

gluten-free-claire-harrison

gluten free activismOn a recent visit to a museum, my husband and I stopped at its cafeteria for a snack. The choices were cookies and cupcakes, pretzels and potato chips, and assorted drinks.  Clearly, the cafeteria didn’t cater to those of us who are gluten-sensitive, lactose-intolerant, and/or weight watchers.

Much against my will, I bought the only snack I could tolerate although it meant throwing my diet out the window: potato chips.  And much against my dislike of being labeled a complainer, I decided to speak up.  “Would you consider carrying gluten-free products?” I asked. “I can’t eat most of what Read More »

Testing for Nutrient Deficiencies: My Results

christie bessinger gluten free works

There are a number of nutrient deficiencies associated with Celiac and other autoimmune disorders. These occur not only BEFORE diagnosis, due to flattened villi and malabsorption, but AFTER diagnosis as well.  It’s up to us to choose healthy, naturally gluten-free foods (like fruits, veggies, lean protein and brown rice) in order to feel the best we can. Even then, we may still have deficiencies.

I was diagnosed about 5 years ago. Although I have experienced dramatic improvements in my health, sleep quality, and energy level, I have still been dealing with some “weird” symptoms that I wasn’t sure were going to go away. These include eye floaters (which I’ve noticed for about 2 years now), shakiness and rapid pulse especially during the first half of the day, and carbohydrate intolerance. (Eating high carb meals have been giving me headaches). So…. I was VERY excited when I heard that Gluten Free Works was going to be offering NUTRITION TESTING. I couldn’t wait to try it out.

nutrition testing gluten free works

 

When I got my results back, I was AMAZED at how many nutrient deficiencies I still had after being Gluten-Free for this many years. I came up deficient in:

VITAMIN A (this explained the eye floaters)
CHROMIUM (I had never heard of chromium before now, but this explained my problem with carbs. I have since read that a deficiency in Chromium leads to DIABETES… so I’m glad I figured this out now, rather than later ;)
SELENIUM (had never heard of that one either) Read More »

Which Medications Do You No Longer Need Since Going Gluten-free?

John Libonati Gluten Free Works

On December 13, I posted a question on the Glutenfreeworks Facebook page to ask people who had adopted a gluten-free diet if they no longer needed medications they had been taking. The response was incredible. Dozens of people described how they no longer needed drugs, some of which they had been taking for years or decades.

Here is my post and their responses…

“I gave a presentation to a group and mentioned a friend who had been on Zantac for 20 years. I went on to say that once she went gluten-free the acid reflux disappeared. A woman in the audience stood up and said the same thing happened to her – she had been on it since she was 10 (I’m guessing she was in her mid to late 30s.).

My question for you is what medication (of any kind) were you on, before you went gluten-free, that you no longer need to take and how long did it take before you did not need it anymore?”

    •  

      Ashley Nikki Garcia Prilosec & zantec. ! 

      December 13 at 5:25pm · 
    •  

      Lauren Smith I also took OTC for heartburn on a near daily basis. No more! 

      December 13 at 5:27pm · 
    •  

      Surely Masquelier McMaster I’ve taken Neurontin for 10 years..GF since Sept. and realized in Nov. that I don’ t need it!  Read More »

Avaxia Biologics Awarded Patent for Celiac Disease Treatment Pill

John Libonati Gluten Free Works

LEXINGTON,  Mass., Dec. 13, 2011 /PRNewswire/ — Avaxia Biologics, Inc., a privately-held biotech company developing oral antibody drugs that act locally within the gastrointestinal tract, announced today that the company was awarded U.S. Patent 8,071,101, “Antibody Therapy for Treatment of Diseases Associated With Gluten Intolerance.”

This patent, which expires on May 27, 2029, provides broad coverage for treating celiac disease using Read More »

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