Tag Archives: Celiac disease awareness month

May is Celiac Disease Awareness Month. Here are 10 quick facts you can pass along to your friends and family to help increase awareness.

1. Celiac Disease is not an allergy. It is an autoimmune disorder triggered by eating gluten in wheat, barley, rye and oats.
2. You cannot “grow out” of celiac disease. It is a lifelong condition.
3. The most common “look” of celiac disease is…totally normal. Not fat. Not skinny.
4. Celiac Disease is the most commonly “missed” diagnosis in medicine. Over 85% of people with celiac disease go undiagnosed.
5. Celiac Disease damage is cumulative. The longer it goes on, the worse symptoms and associated conditions become.
6. Celiac Disease is real. It has existed for thousands of years, but has grown in prevalence. Tests have only recently been developed to detect it.
7. Undiagnosed and untreated celiac disease costs billions of dollars each year in treatment for symptoms and complications as well as lost productivity.
8. Celiac Disease is COMMON, affecting an estimated 1 in 100 persons. That said, it was thought the prevalence was 1 in 5,000 less than 10 years ago and 1 in 15,000 before that. The true prevalence may be higher.
9. Celiac Disease symptoms can present at any age. 9 months. 9 years. 90 years. Often, symptoms present early, but are not recognized.
10. Celiac Disease tests are not pass/fail and not foolproof. Tests should be administered again if symptoms persist because a “negative” can become a positive at a later date.

1. Celiac disease is the most common genetic autoimmune disease in the world.

2. Celiac disease is the most commonly misdiagnosed disease in the world.

3. Celiac disease blood tests are not pass / fail. They measure antibody levels that suggest how likely an intestinal biopsy will discover damage consistent with celiac disease.

4. Celiac disease can affect any genetically predisposed person of every race or gender and can first present symptoms at any age.

5. Optimal treatment of celiac disease includes 1) a 100% strict gluten-free diet, 2) nutrient deficiency identification and replenishment and 3) education and support that meet the physical and emotional needs of the patient.

6. Most cases of unresponsive celiac disease are due to inadvertent gluten exposure, where the person is consuming gluten without realizing it.

7. The average person with celiac disease has a normal body mass index. The traditional thinking was that a person with celiac disease would be underweight.

8. Silent celiac disease refers to a person who tests positive on blood test and villous atrophy on intestinal biopsy, but exhibits no overt symptoms.

9. Celiac disease presents submicroscopic damage causing nutrient deficiencies before villous atrophy. That is, before an endoscopy with biopsy finds intestinal damage, damage can already be occurring.

10. 50% of people diagnosed with Celiac disease exhibit neurological symptoms at the time of diagnosis.

11. Doctors consider celiac disease to be a gastrointestinal disease. Many people with neurological symptoms due to celiac disease do not exhibit gastrointestinal symptoms. These people have a decreased chance of receiving a proper diagnosis and treatment.

12. Anxiety can be the only symptom of celiac disease. In this case it is due to nutrient deficiencies.

13. Celiac disease tests are not pass / fail. A patient can test “negative” on one day and positive two weeks later. Follow up testing should be performed if symptoms do not resolve.

14. Patient education is the most important predictor of good clinical outcome in celiac disease. The more you know, the more likely you will be to avoid gluten, develop a diet that works best for your health and lifestyle, get well and stay healthy.

15. Celiac disease symptoms can be completely different among family members.

16. Celiac disease symptoms number over 300, are widely varied in nature, affecting every and any body system and organ. (The 300 symptoms list was first presented in “Recognizing Celiac Disease,” authored by Cleo Libonati, RN, BSN and published by Glutenfreeworks.com in 2007.)

17. Symptoms in celiac disease are due to inflammation and/or nutrient deficiencies from chronic intestinal damage.

18. Celiac disease diagnosis can take10 years or more from the time symptoms first present. It is frequently the last disease doctors consider.

19. Celiac disease affects over 3 million people in the United States, yet the vast majority are not diagnosed. The symptoms of celiac disease are frequently considered the definitive diagnosis, leaving the true underlying cause untreated.

20. Exposure to gluten is the most important environmental factor in celiac disease. The sooner gluten is removed from the diet, the more likely full remission will be achieved and long term complications can be avoided.

21. Although celiac disease is now known to cause over 300 symptoms, the medical community has traditionally instructed doctors that celiac disease affects children, presenting symptoms of 1) diarrhea, 2) wasting muscles, 3) anemia, and 4) abdominal distention (bloating). You must request celiac disease testing if you do not fit this list, and often even if you do. Assuming doctors look for celiac disease is a mistake.

This article brought to you by the Gluten Free Works Health Guide! Everything you need to know about celiac disease, gluten sensitivity, your symptoms and how to fix them!

This is a Celiac Disease Awareness Month Public Service Announcement.

Many people, including doctors, believe that the blood tests for celiac disease are pass/fail, and that if you have a negative result you can never in the future have a positive result. This is wrong. See how all the celiac disease tests work on our Diagnosis page.

This message was brought to you by our  Gluten Free Extravaganza sponsors, , , and !

May is Celiac Disease Awareness month. One in 100 people have Celiac Disease and only 3 percent are diagnosed in the United States. Part of the reason for the low rate of diagnosis is the range of symptoms of the disease.

A new video on Youtube does an excellent job of showcasing the many symptoms of Celiac Disease.

For more information about Celiac Disease visit the following websites: Read More »