Research

Copper Malabsorption in Untreated Celiac Disease Common

 

Editor’s note:  

In this study, researchers investigating the absorption of copper in untreated patients who had damage to their duodenum found anemia in 3 out of 10 of these patients that was due to copper deficiency.  They gave all the study subjects a solution of copper to drink that was equal to a daily dose then tested their blood level.  Read More »

Does the severity of celiac disease symptoms correspond with degree of villous atrophy?

Editor’s note: The study below, investigating whether the degree of villous atrophy (intestinal damage) correlates with the symptoms that are presented, found they do not. Therefore, more research is needed to find out why symptoms do not correlate with the degree of intestinal damage.

The pathologic range of villous atrophy seen on small intestinal biopsies ranges from severe (total villous atrophy and subtotal villous atrophy) to milder, partial villous atrophy. Read More »

Domino’s Pizza, Celiac Disease Experts and Defining What Is REALLY Gluten-Free

what is gluten free

Is Food That Contains Gluten Really Gluten-Free?

Domino’s Pizza recently announced it would offer gluten-free pizza for gluten sensitive customers. Domino’s made it clear that the pizzas used a gluten-free crust, but are manufactured using the same equipment as the other gluten-containing foods and are not safe for people with celiac disease.

Domino’s worked with the National Foundation for Celiac Awareness (NFCA) and received the NFCA’s new, and now suspended, “Amber Designation.” This designation was to tell people that although the ingredients are gluten-free, the product cannot claim that cross contamination does not occur. The “Amber Designation” differed from the NFCA’s existing “Green Designation,” which tells the customer that the product is tested to less than 10 parts per million of gluten. “Amber” was basically a caution sign.

What Did Gluten-Free Watchdog Organizations Say?

  • The Gluten Intolerance Group (GIG) and other organizations called for a recall of the NFCA’s “Amber Designation.”
  • The North American Society for the Study of Celiac Disease commented on Domino’s Pizza ‘Gluten-Free’ Crust Announcement as follows,

Read More »

Don’t be a Statistic. Medical Mistakes are the Third Leading Cause of Death in the United States.

13502036_10154102429271815_7497922383029815833_n[1]A recent Johns Hopkins study found medical mistakes are the third leading cause of death in the United States, killing between 200,000 and 400,000 per year.

The study does not even consider misdiagnoses, or how many people suffer injuries without dying. We frequently see people who are medicated for what doctors think are diseases, but are actually symptoms with underlying causes. This is why we created the Gluten Free Works Health Guide – to improve proper diagnosis and treatment – so you and your doctor could connect the dots between hundreds of symptoms and their causes, causes like nutrient deficiencies that doctors do not recognize.

“Medical mistakes — from surgical disasters to accidental drug overdoses — are the No. 3 cause of death in the U.S., behind cancer and heart disease, two experts argued Wednesday.

They said a careful count of all deaths from preventable medical errors shows between 200,000 and 400,000 people a year die in the U.S. from these mistakes. The only way to get the country to do something about them is to start counting them, Dr. Martin Makary and Michael Daniel of Johns Hopkins University medical school argued.

“We spend a lot of money on cancer and heart disease but we have not even recognized that medical error is the third leading cause of death in the United States,” Makary told NBC News.

“We have not as a country recognized the endemic problem of people dying from the care that they receive rather than the illness or injury for which they seek care.” Read the rest of the story at NBC News. The case report is available at the New England Journal of MedicineRead More »

Family Members of Persons with Celiac Disease Wanted for Research Study (STUDY IS CLOSED)

Gluten Free Works Jennifer Harris

(Editor’s Note: This study is closed.)

I just learned of a new study being conducted by The National Foundation for Celiac Awareness (NFCA) and Beth Israel Deaconess Medical Center (BIDMC) in Boston, Massachusetts to better understand the attitudes and beliefs of family members of persons with celiac disease.

More information on the study and how you can get involved follows: 

Celiac disease occurs in 10% of first-degree family members, such as a parent or sibling, and up to 20% of second-degree family members, such as an aunt, uncle or

Gluten Free Works Facebook Commenters Share What They Want to Tell Every Doctor

Kelly Clayton Gluten Free Works

Imagine having the power to speak your mind. While you may be thinking to yourself that you already do speak your mind, I am talking about the power to tell every doctor in the world one thing.  We asked our Facebook followers the following:

“If you could tell every doctor on the planet one thing, what would it be?”

After 19 comments, the top three things that would be said to every doctor in the world were: listen to their patients, trust what patients are saying and know more about food allergies.

Listening to your patients

Such a simple idea: listening. It is amazing that many doctors do not listen to their patients, or pretend to listen.  Patients spend much time listening and mulling over what their doctors say, so why can’t doctors return the favor? Facebook follower Jenn Rheaume said, Read More »

Gluten Free Works Launches Celiac Disease e-Newsletter for Support Group Leaders

celiac disease today newsletter

December 7, 2012: Port Charlotte, Florida. Gluten Free Works Inc. announced the launch of its newest online publication, Celiac Disease Today.

In our ongoing efforts to help people get well and stay healthy, living gluten free, Gluten Free Works is proud to distribute the first issue of Celiac Disease Today, a special new monthly e-newsletter for gluten-free support group leaders. 

As the name suggests, Celiac Disease Today focuses on the health and wellness aspects of celiac disease, complete with accurate and up-to-date information regarding symptoms, research, diagnosis and Read More »

Gut Microflora Associated Characteristics in Children with Celiac Disease

Editor’s note: This important study demonstrated that short chain fatty acid (SCFA) levels in stool samples were abnormal in participating children with celiac disease, with and without treatment with gluten-free diet. SCFAs are healthy energy byproducts produced by microflora (beneficial organisms) in the colon during fermentation of undigested carbohydrates arriving from the small intestine. SCFAs nourish the colonocytes, cells that line the colon, to maintain normal function. They also help absorb salts and water from stool.  

“Gut Microflora Associated Characteristics in Children with Celiac Disease”

Tjellström B, et. al.

Microbiology and Tumour Biology Center, Karolinska Institute, Stockholm, Sweden.

Am J Gastroenterol. 2005 Dec;100(12):2784-8.

 

Background and aim: The aim of the study was to investigate the Read More »

I’m deficient, You’re deficient, We’re all deficient? (Part 1)

I was recently reading a press release from Nature’s Path Organic about two of their new cereals. The press release made a familiar argument: the cereals “provide gluten avoiders with whole grains… unlike many gluten-free cereals which forfeit nutritional benefits…” The implication is that many gluten-free cereals (and other gluten-free processed foods, by extension) are more highly processed in order to improve taste and texture. But they do so by sacrificing nutritional quality.

There is some truth to this logic. Foods made from whole grains are inherently healthier than heavily processed foods, and I’ll use our good old enemy – wheat – to demonstrate. I compared whole grain wheat flour (less processed) with white, unenriched wheat flour (more processed) across a range of nutrient measures. Not surprisingly, the wheat underwent a profound loss in Read More »

I’m deficient, You’re deficient, We’re all deficient? (Part 2)

In  Part 1 of this article about nutrient deficiencies in the gluten-free population, I posed four critiques and questions that I promised to answer in today’s part 2. Without further ado, here we go…

Critique #1 questioned the small sample size of the research. I can’t do anything about that, and there’s not much to be said about it, so let’s move on.

Next, I think it’s easiest to address critique #3: How did nutrient deficiencies in the gluten-free population compare to Americans as a whole? To answer that question, I pulled data regarding nationwide averages from the USDA’s Community Nutrition Mapping Project. If I amend yesterday’s table that showed the percent of the gluten-free population who are deficient in given nutrients, and add to it a column for the national averages, this is what you find:

 

Nutrient GF Deficiency Nationwide Deficiency
fiber 74% 92%
calcium 82% 69%
thiamin 59% 19%
riboflavin 25% 11%
B6 35% 26%
folate 85% 40%
B12 29% 20%
iron 41% 11%

 

These numbers change the perspective a bit, I think. It’s not simply that the gluten-free population is nutrient deficient. When you compare us to the national averages, it gets slightly more complex. In some cases, such as folate, riboflavin, thiamin, and iron, we’re two or more times as deficient (as a group) than the nation. However, in other cases, such as B12, B6, and calcium, we still have greater rates Read More »

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