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May is Celiac Disease Awareness Month. Spread the Word!

celiac disease awarenessCeliac disease awareness is desperately needed – now more than ever. 

While the gluten-free diet has exploded in popularity, celiac disease remains massively under-diagnosed.

Why? Two Reasons: 

1. The public has shifted its focus to the gluten-free diet and away from celiac disease due to the media. The media likes diets. Diets sell. Oddly named diseases that are difficult to describe in catchy sound bites don’t sell.

2. Doctors do not have the information they need to recognize, diagnose and treat this common disorder. The information exists but there is no authority that actively ensures

Step by Step Guide: Beginning the Gluten-Free Lifestyle

FOR THE NEWLY-DIAGNOSED CELIAC AND DH’er STEP-BY-STEP:  BEGINNING THE GLUTEN-FREE LIFESTYLE©

by Janet Y. Rinehart, Houston,  and Lynn Rainwater, San Antonio

BEGIN

A definite diagnosis of Celiac Disease (screening blood tests plus endoscopic biopsies) and/or Dermatitis Herpetiformis (skin biopsy) means a lifetime commitment to a gluten-free diet.

  • Take full advantage of your local chapter membership.  Our group leaders and contacts have experience with the gluten-free diet.  We can help you acclimate to the changes in your lifestyle. We welcome your questions.
  • Join national celiac support groups, for example:

Most People Do Not Realize How Sick They Really Are 

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We are told the gluten-free diet is the only treatment for celiac disease and gluten sensitivity. We follow the diet, but do not recover fully. Many times, because we feel better than before, we do not grasp that we can be so much healthier than we are.
 
There are a host of health issues that can and should be treated through diet, supplements and medications, reducing inflammation and correcting deficiencies. Hundreds in fact.
 
Many times, we are told our symptoms are just who we are. And we accept that, because we don’t know any better.
 
Even our doctors have no idea that their patients who suffer from fatigue, thinning hair, flaking fingernails, poor vision, constant irritability, forgetfulness, mottled skin and hundreds of problems that they believe are “normal” day-to-day conditions actually result from

Celiac Disease Fact: Diagnosis Can Take Years

This is a Celiac Disease Awareness Month public service announcement. Pass it on! Celiac disease diagnosis can take years. Not because tests don’t exist, but rather because doctors do not consider celiac disease when looking… 

ImmunogenX Acquires Celiac Disease Therapy from Alvine Pharmaceuticals

Immunogenx-logo-lowx41[1]A therapy for celiac disease is one step closer. ImmunogenX purchased the license for Alvine Pharmaceuticals’ medicine, ALV003, which degrades gluten before it can be digested and absorbed by the intestines. The following press release was distributed by ImmunogenX.

“Glutenase for in-vivo gluten degradation is a leading candidate for celiac disease ImmunogenX™, a biopharmaceutical company focused on the diagnosis and treatment of autoimmune and gastrointestinal diseases, today announced that it has completed the acquisition of the non-cash assets of Alvine Pharmaceuticals.

This includes Latiglutenase (formerly known as ALV003 and renamed IMGX003), an orally administered mixture of two recombinant gluten-specific proteases that degrades gluten proteins into small physiologically irrelevant fragments. The technology is backed by over 50 issued or pending patents, has been extensively studied in Phase I and Phase 2 clinical trials, and is the only CD treatment that has demonstrated histologic success as well as symptomatic improvements in

Innovate Biopharmaceuticals Completes License For Late-Stage Celiac Disease Asset From Alba Therapeutics

Alba_Logo[1]Alba Therapeutics has been working on a therapy for celiac disease the past 8 years. Alba’s therapy, Larazotide Acetate, is the first to reach phase 3 clinical trials, where it will be given to large groups of people.

When Alba first contacted us about helping to promote their phase 2 clinical trial, we investigated the therapy’s mechanism and were glad to see the drug is not absorbed into the body, but acts in the intestine to stop gluten from being absorbed. Better yet, it worked. We covered Larazote Acetate in our article, Medical Research Study to Test a Potential Celiac Disease Therapy Is Underway and Signing up Participants.

A real therapy for celiac disease is one step closer. Alba just sent us the following press release concerning their deal with Innovate Biopharmaceuticals to produce the therapy. 

Gluten Kills Awareness Tee Shirts and Hoodies

Gluten is killing people. Spread awareness and look great doing it with these awesome Gluten Kills tees & hoodies!

Gluten Kills Ladies Forest Tee
Gluten Kills Ladies Forest Tee! Other colors available.

Click here to get yours! 

Gluten sensitivity and celiac disease causes over 300 signs, symptoms associated disorders and complications. Millions of people around the world are affected, but the rate of diagnosis is low. Most people and doctors do not realize how many symptoms and illnesses gluten causes.