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Celiac specialist discusses why it is still under diagnosed in the U.S.

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We are very lucky to have Dr. Cynthia Rudert, MD practicing in Atlanta. She is the only nationally recognized celiac specialist in the Southeast.

Recently I was fortunate enough to interview the very busy Dr. Rudert about celiac and her thoughtful answers were so informative that the interview will be posted in several parts. Unlike many doctors I’ve encountered, Dr. Rudert is always learning as much as she can about celiac so can help her many patients with the condition, as well as those with severe gluten-intolerance. I boldfaced some of the most crucial comments in Dr. Rudert’s reply below.

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Dr. Rudert, you have been treating people with celiac for many years now, but it seems that many doctors still think the condition is rare. Since we now know the condition affects almost 1 out of every 100 Americans, it is far from rare. What do you consider the main problem is, in getting the word out to the medical community about this greatly under diagnosed disease?

“Celiac Disease is the most common autoimmune illness of humankind. If one were to take all the patients with Crohn’s Disease and all the patients with Ulcerative Colitis and add in all those with Cystic Fibrosis and then triple the numbers that would be equal to the number of individuals with Celiac Disease. For my Math friends: 3X (Crohn’s +Ulcerative Colitis +Cystic Fibrosis ) = Celiac Disease. Approximately 98% of those with Celiac are not diagnosed or misdiagnosed.

Celiac Disease Physician Education Program Goes Nationwide

The Celiac Sprue Association – USA (CSA) recently ran the article below in Lifeline, CSA’s quarterly newsletter. The CSA-PEP refers to the CSA Celiac Disease and Gluten Sensitivity Physician Education Program. CSA-PEP Goes Nationwide: Buffalo… 

Celiac Disease Alert: Six Ways Gluten Can Kill You

“I only cheat once in awhile. You know, like twice a week…”

Photo: Suite101.com

If you have celiac disease, you damage your body EVERY TIME you ingest gluten. That may sound bad, but it gets worse.

You can DIE from celiac disease in a variety of ways. None of them are fun. Some take longer than others. Some may not kill you per se, but rather they may stop you from enjoying life, make you suffer from chronic pain or limit your potential.

Celiac disease is a deadly serious condition caused by eating what is essentially a poison to susceptible people – gluten proteins in wheat, barley, rye and oats.

Here are just 6 examples how celiac disease from gluten ingestion can kill you:

Can a celiac disease book save a life? A story how this one saved seven…

Saving a life means more than just keeping a person from dying. It means helping them get well.

While practicing medicine as a registered nurse, Cleo Libonati regularly saved people’s lives. Now her book “Recognizing Celiac Disease” is doing the same for people across the country and around the world.

Here is a letter telling how one family credits the book with saving their lives…

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Dear Cleo,

I have been “sick” most of my life (I turn 40 in July) with random things, too many to list here. I have been really sick the last 10 years, but started feeling as though I was “dying by the inch” in 2004. I finally broke down and went to my primary when premature ventricular contractions were occurring every 5-10 seconds that felt as though my heart was going to jump right out of my throat. I had many other random multiple sclerosis type symptoms, but the severity of the PVC’s were what scared me the most, that is until 2006. I began to have many gastro symptoms that kept me in the bathroom several times a day with alternating elimination problems, I couldn’t keep food down, and pain in the left side of my swollen, hard, tender abdomen every time I ate. I had an EGD and colonoscopy on 2/15/07. The three days before the test were the best I had felt in 4 years. Since I worked in Oncology and was used to seeing patients doing prep for them, I put myself on clear liquids 2 days before the Go-Lytely. So, I was gluten-free without knowing it for 3 days prior to testing.

So the Doc says no gluten, answers to FAQs

For individuals just diagnosed with celiac disease or other gluten intolerant auto immunity issues, the prospects of learning a whole new way of eating can be daunting at first, especially for those eating the standard American diet (S.A.D.). Following are answers to a list of frequently asked questions:

What grains contain gluten?
Wheat, barley, rye, and any flours derived from these grains. There is controversy over oat’s status.

What are hidden sources of gluten?
Soy sauce (the second ingredient is wheat), barbecue sauce, marinades, teriyaki sauce, Asian sauces, or anything that contains soy sauce in the list of ingredients. Modified food starch, malted drinks, malt vinegar, most cold cereals, grain based veggie burgers, meatballs, breaded foods, durum and semolina pasta (another name for wheat flour), some seasoning blends, and many prepackaged foods.

What foods are safe to eat?
Most whole foods are safe, especially fruits, veggies, legumes, oils, nuts and seeds, and lean meats, and for some people, dairy. Safe grains include rice, corn, millet, tapioca, sorghum, teff, buckwheat (not related to wheat), potato starch, bean flours, nut flours, and coconut flour. Some people may tolerate gluten free oats, but caution is advised as there is controversy over their gluten free status. Visit this link for more information.

Celiac Disease Health in Depth: Natural Remedies for Chronic Constipation

About 20% of people with untreated celiac disease have chronic constipation instead of the classic symptom of diarrhea. As the rate of diagnosis improves, constipation is becoming recognized as a common symptom of celiac disease.

Constipation is a common problem in the general population of the United States. According to the National Institutes of Health, about 4 million people have frequent constipation. It is one of the most common digestive complaints in the United States, resulting in about 2.5 million doctor visits and 92,000 hospitalizations annually, although most people treat themselves. This high rate of constipation results in annual laxative sales of over $735 million in this country.

This article will discuss the following topics:

1. How to recognize constipation.

2. Natural remedies that have been shown to help constipation.

3. How to induce a bowel movement.

WHAT IS CONSTIPATION?

Constipation involves problems with stool formation, consistency, and evacuation. It is characterized by one or more of these features:

· Hard, dry stool or soft, putty-like stool.

· Difficult defecation.

· Infrequent defecation, less than one bowel movement per day.

· A feeling of incomplete evacuation following bowel movement.

Constipation can give rise to many different ailments including indigestion, a white coated tongue, bad breath, gas, hemorrhoids, hernia, body odor, depression, fatigue, headache, insomnia, and varicose veins.

The three main causes of constipation are abnormal bowel motility, malabsorption and dysbiosis. Each one, or all three together can cause constipation.

1. Abnormal bowel motility is altered peristalsis, where food passes through the intestine too slowly, due to ineffective muscle action of the intestines. It may take the form of spastic colon or atonic colon.

· Spastic colon is characterized by a spasms, (irregular and excessive muscle contractions of the intestinal walls), so that the muscles resist stretching and thereby decrease the diameter of the inside of the intestine. This restricts the passage of food.

Hard, dry stools are produced as the colon absorbs too much water from the slowly advancing stool. Spasms can result from magnesium deficiency, chronic stress, lack of exercise, lack of water or lack of fiber in the diet.

Spastic constipation is associated with variable degrees of abdominal pain or distress, erratic frequency of bowel action, and variation in stool consistency.

Gluten-free and still sick? If so, read this story about celiac disease…

[UPDATE: Recognizing Celiac Disease has been converted and expanded into our Gluten Free Works Health Guide.]

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If you have been diagnosed with celiac disease, are following the gluten free diet yet are still sick, you may find this true story very helpful…

A few months ago, I was visiting the office of a celiac disease support organization. A woman in the office started asking me questions about her symptoms. She was diagnosed with celiac disease and following the gluten-free diet. She was suffering from peripheral neuropathy and a host of other health issues. We looked up her symptoms in our book “Recognizing Celiac Disease”and noticed trends that pointed to certain nutrient deficiencies. Symptom after symptom pointed to low folic acid, low thiamin, and low omega-3 fatty acids. When we looked up Thiamin Deficiency, she said she had almost every symptom listed.

At that point she said she couldn’t possibly have nutrient deficiencies. After her latest endoscopy with biopsy, her gastroenterologist told her that her villi in her small intestine had recovered and she was absorbing normally.

But, was she truly absorbing normally?

Free Celiac Disease screening October 10 at the University of Chicago

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With Celiac awareness on the rise, more and more people are getting tested and properly diagnosed. Many people have lived with troubling symptoms for years before getting a doctor to order the correct tests and give a formal diagnosis. Once people receive their diagnosis, they can cut gluten from their lives, allow their bodies to heal and feel better than they have in years.

Current studies predict that 1 out of 100 Americans have celiac, that is over 3 million Americans, and of those, 97% are undiagnosed. The longer an individual goes with undiagnosed celiac, the greater their risk to develop other serious illnesses.

On average, a child will visit 8 pediatricians before being correctly diagnosed with celiac disease.

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As a result The University of Chicago Celiac Disease Center offers a free blood screening every October. This year, it will be held October 10, 2009. Pre-registration is required, and opens September 1, 2009. Please call 773.702.7593 to register. The free blood screening will take place on the 4th floor of The University of Chicago Duchossois Center for Advanced Medicine.