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<\/a>“Recognizing Celiac Disease,” written by Cleo Libonati, RN, BSN, the medical editor of this website, provided the foundation for the Gluten Free Works Health Guide.<\/h3>\nRead how real people’s lives have been\u00a0affected when they finally found\u00a0the information they needed to get well and stay healthy<\/strong>…<\/strong><\/p>\nHaving been dx with CD for one year, I reached saturation – almost overload point a few months ago. Then I read the summary of “Recognizing Celiac Disease” and felt it might encompass everything I had referenced across numerous articles and books – and more. I love being able to look in the index and go to detailed information in my struggle to ensure my nutritional requirements and deficiencies are being met and addressed. If I won the lottery, my first step would be to send a copy of this book to every family practice and GI physician in Texas! Short of that, I plan to buy a copy at the GIG National Conference in TX in June for my local FP clinic! ~Reta McCallum, TX
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Cleo:\u00a0Your book is fantastic. \u00a0I was diagnosed with Celiac disease 2 years ago. \u00a0I purchased books and did quite a bit of on line research about Celiac disease after my diagnosis. \u00a0I was somewhat knowledgeable about Celiac Disease when I purchased your book. \u00a0I found your book to contain a wealth of informaton about Celiac that is not available in any other book. \u00a0It may sound strange, but your book helped me to understand my life a bit better. \u00a0I now understand what was going on inside my body when I exhibited various symptoms over the years, prior to diagnosis. Knowing what was going on and realizing that I was not weak or lazy or just plain nuts has made me feel better about who I am. \u00a0Thanks for that.\u00a0Thanks so much for your wonderful book. ~Deb C.Via Internet
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I am an RN that is married to a man with Celiac Disease. \u00a0We lead the\u00a0Gluten Intolerance Group of Grays Harbor. \u00a0The book has been used to\u00a0clear up the “is this related to celiac or is there something more”\u00a0questions. \u00a0A friend from work told me that her son in his 30’s had\u00a0“Parkinsons”, using information that I had read, and the book\u00a0“Recognizing Celiac Disease”, they chose to adopt a GF lifestyle. \u00a0Within two weeks he went from needing assistance to eat, to pouring\u00a0\u00a0from a tea pot without spilling. \u00a0The mom as a show of support went GF\u00a0and noted that the horrible itchy rash that she had suffered from\u00a0disappeared-only to appear again with any ingestion of gluten. \u00a0The\u00a0young man’s employer-an audiologist who specializes in auto-immune ear\u00a0disease, borrowed the book for a full month so he could go through it\u00a0page by page.
\n~Kris M.RN BSN CEN, \u00a0Clinical Documentation Specialist, Quinalt, WA
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I loved your book! \u00a0I thought it was very comprehensive and detailed. The resources all in one place are amazing!
\nThank you! ~Michelle M.Chicago, IL
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<\/div>\nI have used it to emphasize the many nutritional deficiencies that may occur with Celiac Disease, and the GI docs I work with are now routinely testing for Vitamin and mineral deficiencies. \u00a0We found our first zinc deficient pt recently!The explanation of the disease in the first section of the text has also been useful in helping members of our support group understand the disease.
\nSincerely,
\nPatricia C., PA-C, Virginia Beach, VA
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<\/div>\nRecognizing Celiac Disease \u00a0is a great resource guide that I use to help my customers identify their symptomology and what may be a related cause. It is easy to understand, informative, and very user friendly. \u00a0I would recommend to anyone, including those who use it on a professional level.
\nPaul KeltyMr. Ritt Bakery, Philadelphia, PA
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<\/div>\nHello Cleo,\u00a0What I loved most about your book is addressing the needs for micronutrients. Secondly, when I showed a dear friend with sarcoidosis the simple statement in your book that “sarcoidosis responds to a GF diet” she believed it and the research behind it and tried it ~ and subsequently \u00a0feels much better. Be assured \u00a0that you made a big difference in this woman’s life! Thirdly, your material on hyperparathyroidism is likewise helpful and I have showed it to several of our group members with this additional diagnosis and they have since added Vit D to their regimen (under their dr’s approval) with an increase in well-being.\u00a0Warmly,
\nCheryl \u00a0Hutchinson, RNChair, Gettysburg Gluten-Free Group, hutchjc@earthlink.net
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Thank you. My husband and I both have CD and your book is by far the best one we have found in print on CD. We love the format with the concise, current overview in the beginning and the detailed charts that make up most of the book. We refer to it on a regular basis as we research questions for ourselves, friends, family and others.
\nWe shared your book with the head of the pathology dept. at our local hospital, our CD support group members at our last meeting (and encouraged them all to purchase their own copies) and even with our dentist.
\nI wish there were a way to get your book to all of our local doctors since none of them are informed about CD and few people are diagnosed in our area. My doctor had never dx’d a case of CD before mine (I was on my deathbed 6 years ago), and our pediatrician has never dx’d a case!<\/p>\n
I have proposed that our support group purchase books for all of our local gastroenterologists, providing you are not planning to publish an updated version in the near future.<\/p>\n
If there is any way you recommend that our support group, or we personally, can promote your book please let us know.<\/p>\n
Thank you again!<\/p>\n
Suzanne LudlamFairfax, VT
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<\/div>\nHi Cleo –
\nI read through Recognizing Celiac to confirm what washappening with my daughter’s symptoms. When she washaving a variety of strange symptoms, joint pain, skinproblems, diarrhea, weight loss and yellowing teeth noone was putting it together and guessing celiac.\u00a0Now we are having relatives with some similar symptomsso I am showing them your book and encouraging them tobe tested for Celiac. \u00a0I passed the book on to ourlocal pediatricians because I had been told by them”She does not look like a Celiac”. \u00a0She was diagnosed2 years ago and is feeling great because she follows agluten-free diet all the time. \u00a0Thanks for educatingfolks and letting them read about all the possiblecomplications\/ symptoms of untreated Celiac.
\nMary M.Monterey, MA
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<\/div>\nI especially enjoy the table which lists the dietary sources of specific nutrients (both animal and plant specific). \u00a0I use it to help patients see where deficiencies may exist if the diet is not well-rounded. \u00a0Vegetarians find it extremely beneficial to their individual understanding… \u00a0I keep several pages tagged always for reference. ~Linda H., RD, LNBozeman, MT
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<\/div>\nThere are finally a lot of good Celiac Disease books out there. \u00a0Cleo Libonati’s Recognizing Celiac Disease is the best, by far the most thorough and researched–but unfortunately the hardest to obtain.
\n~Dale Adams, Dixon, CA
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<\/div>\nThe book helped me personally in evaluating whether I have celiac disease and broadening my understanding of the wide variations of possible symptoms. \u00a0It turns out I don’t have celiac, which was determined by genetic testing, but the book was a good first step in getting me moving forward towards that end result. \u00a0I am also a dietitian, so it is helpful professionally.
\n~Pat S., Fort Washington, PA
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<\/div>\nI have greatly benefited from your book! It is such a comprehensive invaluable resource. I am myself a celiac diagnosed in 2003, and I am also a Physician Assistant practicing in Gastroenterology. Your book has really improved my awareness of specific nutritional deficiencies that potentially come with the diagnosis. I feel I am doing a much better job of assessing my patients. Since I also have Crohns patients who can have the same issues with malabsorption if they have small bowel disease, it has been helpful to understand them as well. \u00a0I am very grateful to you for your efforts. I am positive that it was a very challenging task to assimilate all of that information!
\nBest regards,<\/p>\n
Michelle E., PA-CGI Specialists, 20375 W. 151st Street Suite 354, Olathe, KS 66061
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<\/div>\nI am a physician and use the book whenever I suspect or diagnose celiac disease, to remind me of the basics but also of the many potential subtleties and traps in the diagnosis and treatment of this disease. \u00a0It is very clear, comprehensive and helpful; until now, I had never seen so much information on the disease in one book, and that makes my life easier. Thank you !
\nPierre R., M.D., Montreal, Quebec, Canada
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<\/div>\nI thought the book was welll written and very complete. \u00a0As both a nurse and a person with gluten intolerance it gave me all the information I needed to discuss options with my doctors.
\nThank you,
\nBettsy B.Waverly, IA
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<\/div>\nThank you so much for publishing this wonderful book. \u00a0For me, because I have been involved with the disease for so long (37 years), it has been a godsend in relaying accurate and up to date information to the members of The Gluten Intolerance Group. \u00a0As one of the founders of GIG I learned under the tutaledge of Dr. Elaine Hartsook and have had the opportunity to know and work with many of the leaders in Celiac reasearch and medicine. \u00a0I do not have a medical background but have absorbed much over the years while attending conferences and symposiums all over the world. \u00a0That said, I found your book so very informative and specific in the areas that we celiacs and medical professionals need to be. \u00a0I have almost worn my copy out by lending it to physicians and dietitians and members of my Support Branch of GIG. \u00a0I just hope these people, professionals in particular, are ordering this book for their reference libraries.\u00a0I have spent hours and hours reading, and trying to remember, the Nutritional Deficiencies of Celiac and finding out, by the Signs and Symptoms Section, that I started manifesting symptoms when I was as young as two or three years old. \u00a0Unfortunately, I was not diagnosed until I was 24 years old and at death’s door. \u00a0\u00a0I only wish this book could be a part of every Gastroenterologist’s, Dermatologist’s and Dietitian’s Library. \u00a0\u00a0Once again, thank you for taking the time and effort to publish such a well organized and statistical book. \u00a0I have and will continue to recommend it to all of my associates. ~Susan E.Branch ManagerKitsap\/Olympic Peninsula, Gluten Intolerance Group, Sequim, WA
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<\/div>\nHello Cleo, First Thank you for organizing all the info that you have in this book, that has been the most valuable area for me as a Nutritionist. I was finally able to show my patients how their Gluten Sensitvity is causing some if not all of their other issues. We have a staff copy here in our clinic, and I have my own copy for my client use. \u00a0Thanks Again for this great and very informative book.
\n~Cheryl B., CCN, CCHBoulder, CO
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<\/div>\nI use your book as a reference when trying to figure out nutritional deficiencies caused by longstanding malabsorbtion. I have learned a lot from it and solved several problems. \u00a0\u00a0I look up information and then try supplements to see it they resolve the symptoms. It’s a useful book and it has helped me become healthier. My medical doctors are no help on nutrition; they don’t realize the implications of celiac disease on nutritional status.
\nPat H.Lafayette, CO
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<\/div>\nWe are using the book for education purposes for our Dietetic and Culinaryand Food Service students to make them aware from the industry side howthey need to be aware and to teach them how important it is to incorporategluten free items on their menus.
\nJo T.South East Community CollegeLincoln, NE
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<\/div>\nHello Cleo – I am hoping to meet you some day!!\u00a0I just did a book review of your book for our chapter last Sunday. \u00a0I tell everyone at our chapter – buy this book for your doctor for Christmas!!\u00a0I just picked a few signs, symptoms etc. to talk about it. \u00a0One was migraine. One new member said “I had a migraine for 2 months and no one said anything about celiac disease”. \u00a0(She was later diagnosed at gallbladder surgery….)\u00a0I have found the book an excellent resource for use in answering new members questions or questions from people who think they may have celiac disease.
\nPersonally, I was most fascinated by the information on the malabsorption of Omega 3 fatty acids. \u00a0I had not seen this information before.\u00a0For me personally, the most relevant information was about the impact that vitamin D malabsorption has. \u00a0It took my doctor awhile to figure out that I was very low in vitamin D. \u00a0Had I had this book sooner, I might have figured that out earlier and lessened the impact on my bone density. ~Judy B.Past President, Greater Kansas City Chapter #4, Celiac Sprue Association, ‘Celiacs Helping Celiacs’, www.csakansascity.org
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<\/div>\nTo Cleo,
\nI was so grateful to have met you and am enjoying all the information in your book. The quick reference format is helpful for us in the office to help justify testing for those patients that we suspect of having Celiac. On the test requisition form for Prometheus or Kimball we have to come up with appropriate diagnosis codes. We are working hard to educate our local physicians.
\n~Gretchen M. OTR\/LBoca Raton, FL
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<\/div>\nHi Cleo,
\nI particularly liked your book because it was so concise and well researched. \u00a0I have a background in technical writing, so I know how long and hard you have worked on your tome. \u00a0I have referred to it when others in our group have a question. \u00a0I know I have had to check word meanings occasionally – for me, that’s the mark of a great book – I can understand and visualize the sequences. \u00a0Your charts were extremely clear and specific.\u00a0I do think the part that tives me the most pleasure is carrying it into the doctor’s office and plopping it on his desk. \u00a0 \u00a0I haven’t had one who was even curious about it – including my gastro. \u00a0I did show parts of it to the endocrinologist and he appeared to look at the graphics – but only briefly. \u00a0I do find that I am able to converse at a higher level and describe my problems in detail with research to back up any looks of disbelief.\u00a0\u00a0I personally enjoy the challenge of a well written manuscript \u00a0in any form, but you have a real winner in this book. \u00a0I have read most of the other authoritative CD books, but the authors didn’t use the structured approach \u00a0found in your book.\u00a0I admit I’m very interested in trying to put together the Celiac puzzle so our offspring can enjoy a long, happy & healthy life. \u00a0I was diagnosed 30 years ago when my fourth (and final) daughter, Gretchen, was born. \u00a0My whole world collapsed until a doctor at Henry Ford Hospital recognized the “non-tropical sprue” and sent me to a gastro from Hong Kong. \u00a0This man saved my life. \u00a0I had extremely low Vitamin D – I was slowly losing the perabulatory movements. \u00a0He recognized rickets and started injections. \u00a0Sure, I have bad winters now, but at least I know it will end.<\/p>\n
If there is anything I can do to help, please let me know. \u00a0I finished your book in 1 night!!!!! \u00a0I had written to some bloggers and websites encouraging people to buy your book. \u00a0I’ll get busy and steal some time to do some more.<\/p>\n
Thank you for caring,
\n~Rose MaryBenton, KY
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<\/div>\nCleo:\u00a0The book provided more scientific insight into the unknown territories of folks diagnosed with Celiac.
\n~Clift B.Austin, TX
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<\/div>\nI have used the book to check symptoms to see if they are related to my CD or just “old age”. \u00a0It has also been most helpful when others call asking about similar problems. \u00a0In short. . I find the arrangement by symptom and systems most helpful! \u00a0Thank you for an unusually helpful publication.
\n~Mimi F.Kearney, NE
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<\/div>\nDear Cleo,\u00a0I have been “sick” most of my life (I turn 40 in July) with random things, too many to list here. \u00a0I have been really sick the last 10 years, but started feeling as though I was “dying by the inch” in 2004. \u00a0I finally broke down and went to my primary when PVC’s where occurring every 5-10 seconds that felt as though my heart was going to jump right out of my throat. I had many other random MS type symptoms, but the severity of the PVC’s were what scared me the most, that is until 2006. \u00a0I began to have many gastro symptoms that kept me in the bathroom several times a day with alternating elimination problems, I couldn’t keep food down, and pain in the left side of my swollen, hard, tender abdomen every time I ate. \u00a0I had \u00a0an EGD and colonoscopy on 2\/15\/07. \u00a0The three days before the test were the best I had felt in 4 years. \u00a0Since I worked in Oncology and was used to seeing patients doing prep for them, I put myself on clear liquids 2 days before the Go-Lytely (sp?). \u00a0So, I was gf without knowing it for 3 days prior to testing.\u00a0When I woke up the morning of the test I realized whatever was bothering me had lifted..I hadn’t thrown up, the mental fog had lifted, and my stomach pain was gone! \u00a0My hubby made me go ahead and go to the test anyway, darn him! \u00a0The doc said I didn’t have celiac (I had no idea what he was talking about at the time), but that I had IBS, a hiatal hernia, GERD, and diverticulosis. \u00a0He gave me a script for Zelnorm and said that should level out my alternating d\/c problems in 3 months or so. \u00a0As soon as I added food back in 2 days after the test the symptoms started all over again: pain, vomiting, reflux, alternating d\/c, fog, dizziness, etc…..\u00a0The Zelnorm didn’t do anything but send me the other direction where I basically had no control over my bowels. \u00a0Not a good thing when you’re working 12’s at a hospital in direct patient care, especially in Oncology! \ud83d\ude42 A month later a co-worker told me it had been recalled! I called the doc and they said they stand by their diagnosis and to just follow the IBS diet. \u00a0I tried eliminating all the things it recommended, to no avail.\u00a0\u00a0At this point, I got down on my knees and begged God for an answer. \u00a0I asked Him to send me an answer however He wanted and I would be listening. \u00a0I happened to go shopping, which I hardly ever do because I hate it, and while waiting in a long line I saw a magazine cover that listed my symptoms almost to a “T”! \u00a0I took it home and it talked about gluten sensitivity and celiac disease! So, this was what he was talking about! My husband read it and said it sounded just like me! I tried the diet and 3 days later I stopped throwing up and my stomach pain subsided! I called my doc and they said they still stood by the original diagnosis and I didn’t need to be on a gf diet! \u00a0I told them I was just letting them know out of courtesy so they could put it in my file, my guess is they didn’t bother with it. \u00a0I’ve never spoken to the doc personally since the day of my testing, and never was told to have a follow up visit either. \u00a0Some doc, huh?\u00a0Anyway, after going gf and using the links in the article I was led to a local celiac support group. \u00a0The only meeting I have ever been able to attend they mentioned your book! I promptly signed on and got a copy for myself! It’s the best money I’ve ever spent! I have several other celiac books and it is by far my favorite! The brief explanation of celiac and the GI tract in the beginning are very thorough but easy to understand. \u00a0I absolutely LOVE the charts and tables though, and the fact that you have recommended foods on the side to help with the deficits! The tables have given me answers to the random symptoms I’ve been plagued with over the years, most of which have subsided and eventually disappeared over the last year of my gf journey! \u00a0It wasn’t all in my imagination, and I’m not a hypochondriac!\u00a0I think your book should be required reading for every student entering healthcare, in every field. \u00a0I tell every nurse I know about your book, as I’ve noticed they are much more open to learning than most docs I know! As a result of your book, six of my immediate and extended family members have gone gluten free and are feeling better than they have in years! We are so grateful for your work! We feel as though your book has literally saved our lives!\u00a0Again, thank you SO much! I am wondering, since I have my own business, could I buy your book wholesale for resale? Please send me any details you have on how to become a distributor, I am definitely interested! ~Tammy Wade, Via Internet
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Thank you for your email, Cleo! \u00a0\u00a0I was diagnosed with Celiac Disease in October 2004. \u00a0Since the time of diagnosis I have been reading everything I can find regarding Celiac Disease and Autoimmune Diseases. \u00a0Your book has been the most informative and complete book that I have found. \u00a0I appreciate the format and the extensive information included in it. \u00a0\u00a0I have an extensive library and have loaned your book to others in similar heatth situations. \u00a0Your book has been utilized by many, and for all \u00a0that have read it comes a feeling of hope.\u00a0\u00a0Thank you for this book!<\/p>\n
With warm regards,<\/p>\n
~Paige H., RN \u00a0(and Celiac)Ada, MI
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<\/div>\nDoctors need Recognizing Celiac Disease \u00a0the most. \u00a0It is great for patients, too.<\/p>\n
The book will help doctors to:
\n1. Recognize signs of Celiac disease leading to potential diagnosis2. Be on the lookout for other conditions (deficiencies, etc ) especially if the history suggests the person has had the Celiac disease for an extended period of time prior to diagnosis.
\nMy doctor thought it silly that the ringing in my ear could be related to my Celiac disease. \u00a0After some research, I found that ear ringing is related to B12 deficiency which can be related to Celiac disease.<\/p>\n
I believe it was your book that prompted me to have the doctor test for levels of other nutrients in my blood at the same time he tests for iron.<\/p>\n
This is a book for all family doctor’s, GPs and internists.<\/p>\n
This book is also good for Celiacs, provided they do not have hypochondriac tendencies.<\/p>\n
~Kevin G.South Bend, IN
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<\/div>\nI am slowly learnng more about how it has affected me. \u00a0Once I converted over , any wheat has more impact.
\n~ John R.Fullerton, CA
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<\/div>\nI use the book as a reference. I see many people in my nutrition counseling practice that often have some very unusual conditions. I look up the conditions to see if there is a relation to celiac disease and most of the time there is. I will often show the patient the pertinent information to encourage them to get tested.
\n~Connie R.Windham, NH
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I highly recommend this book to not only someone diagnosed with Celiac’s disease but I also think every physician, hospital and medical provider should have and read this book. \u00a0This should be required reading for all medical students! I only wish this book had been available 10 years ago or before… This is by far the most comprehensive and helpful book on the topic. 5 STARS!!!
\n~Suzanne R.Sterling, VA
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<\/div>\nI have found the book to be a great resource in opening discussions with physicians about Celiac Disease. Most helpful is to discuss the non-GI manifestations of CD which are missed by many physicians. Most of my physician base deals with the “traditional” symptoms of CD which include diarrhea, iron deficiencies and absorption issues but this book has been helpful in finding and identifying those “silent” symptoms. Target OB\/GYNs, pediatricians, etc. with this wonderful book.
\n~Dennis GaroneTSS Prometheus Laboratories203-417-2558dgarone@prometheuslabs.com
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<\/div>\nI’ve just started reading this book and looking at the tables. I can tell already that it is my number one resource for Celiac Sprue, one I’ve been waiting for. The content is in depth and concise.
\n~Melissa Snow, RD, LDWellness With Nutrition, Portsmouth, NHmelissasnow@verizon.net
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Dear Cleo,\u00a0I was so pleased to receive your book Recognizing Celiac Disease.\u00a0The book is incredibly comprehensive and will indeed serve as an important guide for so many individuals. \u00a0Nashville has a wonderfully well-organized celiac support group, and I will share the news about your book with them and many others here.\u00a0Gratefully in Christ,
\n~Sr. Dominic Mary, O.P.Nashville, TN
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I have really been enjoying your book, Recognizing Celiac Disease, and just referred to it again yesterday, in response to a client’s diagnosis query.
\n~Nancy Muir, M.Ed., R.D.
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<\/div>\nI really enjoyed the book, especially the “Manifestations of Celiac Pages”. I wish I could buy the book for all the Dr’s in my hospital, but don’t worry, they will be hearing from me when I suspect celiac disease. Keep up the good work.
\n~Gloria J Duy RD LDN (Celiac)Clinical DietitianOSF Saint James-John W Albrecht Medical CenterPontiac, Il<\/p>\n","protected":false},"excerpt":{"rendered":"
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