Tag Archives: Testing

Lately, it seems like more and more celebrities and professional athletes are openly talking about going gluten free. Whether it’s due to a diagnosis of celiac disease or a gluten sensitivity, or simply because they want to get healthy, many of them have noted a weight loss as part of the benefits they’ve been seeing. Then why is it, that so many doctors and specialists will dismiss a diagnosis of celiac disease in a patient simply because the patient is not underweight?

In a recent article by Sonia Kupfer, MD, the belief that people with un-diagnosed celiac disease are all underweight is revealed to  Read More »

It is well documented that only a small minority of those with celiac disease are successfully diagnosed in a medical setting.

Gluten sensitivity, which we based on medical research and proposed in Recognizing Celiac Disease in 2007,  has only recently been accepted as a true medical condition. So we decided to hold an informal survey to see just how people are becoming gluten-free? How are they finding out that gluten sensitivity or celiac disease are the cause of their health problems and are doctors diagnosing them or are they figuring it out on their own?

We posted this question to our GlutenFreeWorks Facebook friends and here are their answers. Were YOU diagnosed by a doctor? Leave your comments below! Read More »

Dr. Rodney Ford, pediatrician and author of The Gluten Syndrome, provides us with an excellent and easy-to-follow video that tells us how to know if we need a gluten test.

This short presentation explains which symptoms to look for and tells you the tests you need to to request to find out if gluten is making you sick.

Dr. Ford estimates up to one third of people with chronic diseases are being affected by gluten and sums up why people do not ask to be tested. “We are so used to being sick that we don’t know we’re sick.” People think they have always been this way, so they do not know to ask.

He then establishes a great litmus test to determine who should be tested – “People who are sick, tired or grumpy should be tested.”

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Question: Has anyone just lived GF after only a bloodwork diagnosis? Do you fully trust just the bloodwork?

Quick Answer: Many people live GF after only a bloodwork diagnosis. It is best to get both the bloodwork and endoscopy with biopsy before you go gluten-free. None of the current tests for celiac disease are 100% accurate. If you are not eating gluten, your tests will be negative.  

Long Answer: It is best to get tested before going gluten free. This way, your doctor will take your diagnosis seriously. Also, you will be tested for various deficiencies as a baseline to determine future healing.

The blood tests are not pass/fail, but rather provide a level of antibodies that your immune system is producing. If the level is at a high enough point where a doctor would probably find intestinal damage on endoscopy with biopsy, then you are given a positive result. If the level is not high enough, then your result would be negative. Just because you are negative today, doesn’t mean you will not be positive in the future. This is exactly what happened to a physician assistant I met at a gastroenterology conference. She tested negative. Three months later her results were sky high.

Learn more about Celiac Disease and Gluten Sensitivity Testing and Diagnosis here.

Celiac disease awareness is growing, but misinformation still abounds. Here are 15 celiac disease facts every doctor, patient and member of the public should know.

1. 1 in 700 –

The average prevalence of celiac disease in the United States 1950. (Mayo)

2. 1 in 100 –

The average worldwide prevalence of celiac disease across all races today. (NIH) The average prevalence of celiac disease in the United States today. (Mayo)

3. $8,500 – The average annual estimated healthcare cost of each person with untreated celiac disease in the United States. (Cigna/Columbia Celiac Disease Center study) Read More »

Finding out you have Celiac Disease is a big transition. Often it’s a good one that leads to feeling great, yet initially it’s a lot of information to take in at once to understand what you need to do for your health. Much of it is because we’re been eating one way for 15, 30, 50 or more years and it can be overwhelming to to instantly unlearn everything we’ve done and change overnight. Wouldn’t life be easier if you could take a doctor or dietitian home as a portable reminder of the basics? And so the Celiac Disease Video Project was born.

See below for videos of Dr. John Snyder, Chief of the Department of Gastroenterology at CNMC in DC, Dr. Gary Kaplan, Medical Director of Kaplan Center for Integrative Medicine and Cheryl Harris, MPH, RD Registered Dietitian and Nutritionist discussing testing, diagnosis and follow-up, eating a gluten-free diet and a short segment on when it’s not Celiac. Though there are an increasing number of videos out there on people’s stories of diagnosis and ways to make a gluten-free pie, this is the first of its kind to do a run-down of the medical and diet basics by healthcare professionals. The Celiac Sprue Association has been kind enough to support the project. Read More »

Celiac disease causes malabsorption of nutrients. As the video states, get these nutrient levels tested when you are diagnosed with celiac disease: vitamins A, D, E, K, folic acid, B12, and minerals iron, calcium, and phosphorus.

If your doctor never tested you, ask him to test you now. If you don’t have a doctor, or if you do, we recommend Spectracell Laboratories. Spectracell tests the nutrient levels inside your cells, not just those that are in your blood. This gives you an accurate result. (We are not affiliated with Spectracell.)

In this video, Dr. Osborne discusses the benefits of the gluten-free diet as well as the Paleo diet in an interview with FOX News.

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There are many reasons people who wish to lead a healthier lifestyle chose to avoid gluten in their diets. Those with gluten allergies and intolerances, however, don’t have a choice. For them, consuming undetected gluten poses a real health risk. The trouble is that traces of gluten can be found in foods that don’t naturally contain it, due to cross-contamination, cooking methods, food additives, etc. This is especially true when it comes to restaurant and commercially processed food.

There are a number of nutrient deficiencies associated with Celiac and other autoimmune disorders. These occur not only BEFORE diagnosis, due to flattened villi and malabsorption, but AFTER diagnosis as well.  It’s up to us to choose healthy, naturally gluten-free foods (like fruits, veggies, lean protein and brown rice) in order to feel the best we can. Even then, we may still have deficiencies.

I was diagnosed about 5 years ago. Although I have experienced dramatic improvements in my health, sleep quality, and energy level, I have still been dealing with some “weird” symptoms that I wasn’t sure were going to go away. These include eye floaters (which I’ve noticed for about 2 years now), shakiness and rapid pulse especially during the first half of the day, and carbohydrate intolerance. (Eating high carb meals have been giving me headaches). So…. I was VERY excited when I heard that Gluten Free Works was going to be offering . I couldn’t wait to try it out.

When I got my results back, I was AMAZED at how many nutrient deficiencies I still had after being Gluten-Free for this many years. I came up deficient in:

VITAMIN A (this explained the eye floaters)
CHROMIUM (I had never heard of chromium before now, but this explained my problem with carbs. I have since read that a deficiency in Chromium leads to DIABETES… so I’m glad I figured this out now, rather than later ;)
SELENIUM (had never heard of that one either) Read More »