Posts Tagged ‘Resources’

 

Marissa Carter

Gluten Free Soapbox: Say NO to “Meanies” in Forums

December 27th, 2010 by Marissa Carter


So many boxes, so little time… [taliesin/Morguefile

For this week’s gluten free soapbox we go back to the forums. Those online “support groups” that are supposed to be a place of sharing, healing and camaraderie. People log on to the gluten free forums to talk about their troubles and make friends who are struggling with the same issues they are. That is why I am so disturbed today.

Something I’ve noticed happening every so often (not constantly, but too much) is the sarcasm and derision thrown at (more…)


John Libonati

Gluten Free & Celiac Support Group Search

December 22nd, 2010 by John Libonati

Please choose a state to find a support group near you.

District of Columbia

Janet Rinehart

Step by Step Guide: Beginning the Gluten-Free Lifestyle

November 29th, 2010 by Janet Rinehart

FOR THE NEWLY-DIAGNOSED CELIAC AND DH’er STEP-BY-STEP:  BEGINNING THE GLUTEN-FREE LIFESTYLE©

by Janet Y. Rinehart, Houston,  and Lynn Rainwater, San Antonio

BEGIN

A definite diagnosis of Celiac Disease (screening blood tests plus endoscopic biopsies) and/or Dermatitis Herpetiformis (skin biopsy) means a lifetime commitment to a gluten-free diet.

  • Take full advantage of your local chapter membership.  Our group leaders and contacts have experience with the gluten-free diet.  We can help you acclimate to the changes in your lifestyle. We welcome your questions.
  • Join national celiac support groups, for example: (more…)
Heather M. Cline

So You Want to Start a Celiac Support Group?

November 18th, 2010 by Heather M. Cline

celiac disease support group

Celiac Disease Support Groups Are Priceless

I was diagnosed in 1996 when “celiac” and “gluten free” were still foreign words.  I remember the first conversation I had with a fellow Celiac.  I sat on the floor in my bedroom, confused and overwhelmed, listening to the kind voice on the other end of the telephone talking me through gluten free condiment options.  She introduced me to our local support group and within a few years, I was standing as the president.

Support groups serve a great purpose of providing grass root support from others in a similar situation.  This is priceless for newly diagnosed Celiacs and those who love them.  There can be an initial overwhelming sense of confusion and helplessness.  The good news is that even though there is a learning curve, it gets much easier!  And local support groups can be a huge help in the process.

Whether you want to start a support group or improve an existing one, these tips can help get you motivated and succeed. (more…)

Well I’m back from wedded bliss. I’ve gone to the grocery after having not done so for 2 mos. I’ve cooked two meals this week. Not even sure when that last happened.  I’m back to eating gluten free all over Austin. As my first post back, I want to talk about an invaluable gluten free resource: Twitter.

I avoided Twitter for years because I just didn’t get the purpose. In addition, I didn’t want one more internet site to keep up with. Facebook & email were quite enough for me. However, an Austin gluten free friend changed my mind. At lunch one day, she told me the gluten free (or vegan, dairy free, etc) community is extremely strong and vocal on Twitter. I joined and quickly discovered (more…)

Jessica Neeren

Gluten-Free iPhone and iPod Apps

August 3rd, 2010 by Jessica Neeren

The Summer 2010 issue of Delight Gluten-Free magazine featured an amazing article entitled Digital Delights. I am a huge lover of Apple computers and iPods, but still pro-Blackberry. It’s apps like these that make me think about switching. The following information was taken directly from the article.

Best For Newcomers: Gluten-Free Groceries by Triumph Dining, Cost: $17.99

(more…)

John Libonati

Greater Philadelphia Celiac Support Group

December 29th, 2009 by John Libonati

Independent celiac support group for people in the Philadelphia region. http://greaterphillyceliac.com/

Officers

Co-President
Karen Dalrymple RN, BS
583 Valley View Road
Langhorne, PA 19047
(215) 757-1233

Co-President
Alice Bast
Executive Director, National Foundation for Celiac Awareness
CeliacCentral.org

Meetings are held twice a year at Abington Memorial Hospital. AMH is located at 1200 Old York Road, Abington, PA 19001 in the Lenfest Auditorium. Doors open at 5:45 pm to enable you to visit all of the vendors and speak with other celiac buddies. The meeting starts at 7:30 pm.


All newly diagnosed celiacs who are interested in joining the Greater Philadelphia Celiac Sprue Support Group please contact Karen Dalrymple at (215) 757-1233.

(http://health.groups.yahoo.com/group/GFW105/), serving many Los Angeles cities/communities near Interstate 105, such as: Athens, Bellflower, Compton, Downey, Florence-Graham, Fox Hills, Harbor Gateway North, Hollydale, Huntington Park, Hyde Park, Inglewood, Lennox, Lynwood, Norwalk, Paramount, Rancho Dominguez, South L.A., Southgate, Studebaker, Walnut Park, Watts, Westchester, Westmont, and Willowbrook.

John Libonati

Central San Joaquin Valley Celiacs

December 29th, 2009 by John Libonati

(http://health.groups.yahoo.com/group/CentralSJValleyCeliacs/), serving the Fresno, Kings, Madera, and Tulare counties of California.

John Libonati

GIG Vancouver Washington Branch

December 22nd, 2009 by John Libonati

Vancouver Washington Branch Manager:
Kristi Curtis
Phone: 360-695-0862
Email
http://gigswwa.blogspot.com/p/board-members.html