Posts Tagged ‘Gluten free’

 

Marissa Carter

The Gluten Free Challenge May 22 & 23

May 13th, 2010 by Marissa Carter


The Gluten Free Challenge has been issued, and everyone in Kansas City should answer the call. This isn’t a challenge for people who are already members of the gluten free elite, though. The Gluten Free Challenge is for people who eat gluten to experience being gluten free for one weekend.

The Gluten Intolerance Group (GIG) and Pamela’s Products have teamed up to issue The Gluten Free Challenge in honor of Celiac Awareness Month. The idea? Everyone should walk a weekend in a Celiac’s shoes! (more…)


May is Celiac Disease Awareness month. One in 100 people have Celiac Disease and only 3 percent are diagnosed in the United States. Part of the reason for the low rate of diagnosis is the range of symptoms of the disease.

A new video on Youtube does an excellent job of showcasing the many symptoms of Celiac Disease.

For more information about Celiac Disease visit the following websites: (more…)

 title=The University of Chicago Celiac Disease Center celebrates its 10th Anniversary with its annual Spring Flours Benefit at the Swissôtel-Chicago at 7pm on May 14, 2010. More than 30 restaurants will showcase gourmet gluten-free tastings to what expects to be a sell-out crowd. The evening will also include a tribute to its founder, Stefano Guandalini, MD, as well as robust Live and Silent Auctions.

(more…)

John Libonati

15 Celiac Disease Facts Everyone Should Know

April 1st, 2010 by John Libonati

Celiac disease awareness is growing, but misinformation still abounds. Here are 15 celiac disease facts every doctor, patient and member of the public should know.

    1. 1 in 700 - The average prevalence of celiac disease in the United States 1950. (Mayo)2. 1 in 100 - The average worldwide prevalence of celiac disease across all races today. (NIH) The average prevalence of celiac disease in the United States today. (Mayo)

    3. $8,500 - The average annual estimated healthcare cost of each person with untreated celiac disease in the United States. (Cigna/Columbia Celiac Disease Center study) (more…)

This article focuses on the two main antibody blood tests for celiac disease. It will tell you what each test looks for and what the results mean.

The two blood tests recommended when testing for celiac disease are the AGA-IgA test for gliadin (wheat proteins) as well as the tTG-IgA test for tissue transglutaminase.

Recent research indicates the blood tests most doctors are using, tTG & EMA, are not as reliable as first thought. Young children, elderly, smokers, the very ill and the not very ill can be missed. EMA, or endomysial antibodies has fallen out of favor so they will not be discussed.

Preparation for Testing

Make sure when being tested that you are on a gluten-containing diet, because the antibodies the tests look for would disappear if you are were gluten-free. Once you go gluten-free, future testing is unreliable.

AGA – The Test for Gluten Sensitivity

The AGA-IgA has fallen out of favor for CELIAC DISEASE, but it tests whether an immune reaction against GLUTEN (gliadin) is present in the system – it detects a GLUTEN SENSITIVITY reaction. You can have gluten sensitivity without developing the lesion that is characteristic of celiac disease. That is, you can have gluten sensitivity without celiac disease.

tTG – The Test for Celiac Disease

tTG tests for tissue transglutaminase antibodies, or antibodies against your own tissues. The tTG blood test does NOT tell you if you have celiac disease per se. It tells you the likelihood that villous atrophy will be discovered if an endoscopy with biopsy is performed. The higher the number, the more likely you have enough damage that one of the samples would show villous atrophy.

One thing to consider is that you have over 20 feet of small intestine. Biopsy samples are tiny and only about 5 are taken. How much damage is required before a positive biopsy sample is found?

Also, you can also have the beginning stages of celiac disease and the test results will be "negative" now, but if you were tested at a later date they could rise, making you positive. That is, the levels of antibodies now may not indicate probable intestinal damage enough to be found on endoscopy with biopsy. But they can rise over time – one month, six months, a year.

In one study we reviewed while creating the medical manual, Recognizing Celiac Disease, of the children who tested positive in the study, 40% had tested negative 5 years previously.

No test is 100% accurate. Determining celiac disease is still a judgment call. Even if the tests come back negative, try a strict 100% gluten free diet to see if symptoms improve. If they do, ask your doctor to take multiple vitamin and mineral levels to determine whether deficiencies exist.

Page 30 in Recognizing Celiac Disease lists the vitamins and minerals the NIH recommends checking: vitamins A, D, E, K, B12, folic acid and minerals calcium, iron, phosphorous.

The symptom charts in the book list which deficiencies cause which symptoms so you can determine which nutrient levels to test and give your doctor reasons to test for them. (Doctors will not take nutrient levels unless there is a reason to take them.) Correct the nutrient deficiencies and you will correct the symptoms in many cases.

A diagnosis is just a diagnosis. Good health is the most important thing.

For more information on the tests click here.

For more information on Recognizing Celiac Disease click here.

-------------------- Author Information: John Libonati, Philadelphia, PA President-elect, Celiac Sprue Association (CSA). Publisher, Glutenfreeworks.com. Editor & Publisher, Recognizing Celiac Disease. John can be reached at john.libonati@glutenfreeworks.com.

Saving a life means more than just keeping a person from dying. It means helping them get well.

While practicing medicine as a registered nurse, Cleo Libonati regularly saved people's lives. Now her book "Recognizing Celiac Disease" is doing the same for people across the country and around the world.

Here is a letter telling how one family credits the book with saving their lives...

------------------------ Dear Cleo,

I have been "sick" most of my life (I turn 40 in July) with random things, too many to list here. I have been really sick the last 10 years, but started feeling as though I was "dying by the inch" in 2004. I finally broke down and went to my primary when premature ventricular contractions were occurring every 5-10 seconds that felt as though my heart was going to jump right out of my throat. I had many other random multiple sclerosis type symptoms, but the severity of the PVC's were what scared me the most, that is until 2006. I began to have many gastro symptoms that kept me in the bathroom several times a day with alternating elimination problems, I couldn't keep food down, and pain in the left side of my swollen, hard, tender abdomen every time I ate. I had an EGD and colonoscopy on 2/15/07. The three days before the test were the best I had felt in 4 years. Since I worked in Oncology and was used to seeing patients doing prep for them, I put myself on clear liquids 2 days before the Go-Lytely. So, I was gluten-free without knowing it for 3 days prior to testing. (more…)

Libonati_John_Philadelphia_PA

Philadelphians fill Wachovia Center to help raise awareness of celiac disease

A crowd of 1,200 gathered at the Wachovia Center on Wednesday, September 30th to celebrate the gluten-free lifestyle during the 6th annual Appetite for Awareness event. Hosted by the National Foundation for Celiac Awareness (NFCA) and title sponsor Thomas Jefferson University and Hospitals, the event honoring John Binswanger and his family raised over $300,000 to support the organization’s national awareness campaign and programming.

wachovia-center

Over thirty of Philadelphia’s best restaurants participated in the event, which featured an entirely gluten-free menu. The festivities were a special treat for guests with celiac disease, an autoimmune disorder treated only through a gluten-free diet, eliminating foods containing wheat, barley and rye. Current estimates suggest the disease affects about 3 million Americans, yet over 95% live without a diagnosis.

Comcast-Spectacor Chairman Ed Snider, who is a member of the NFCA Board of Directors, generously donated the Wachovia Center facility, which has been home to Appetite for Awareness event since 2008. (more…)

Randi Markowitz

Recipe: Gluten free rice noodle salad with chicken and herbs

September 21st, 2009 by Randi Markowitz

Randi_Markowitz, Houston, TXFood and Wine.

This is an easy-to-make, delicious entree that is gluten-free, inexpensive and fantastic. It's as good as any dish I have had in any Thai or Vietnamese restaurant in the Houston area. Do not fear the Asian fish sauce...it adds lots of flavor, and it is easy to find in the Oriental foods section of just about any grocery store.

Adapted from

rice_noodle_salad_randi_markowitz 1/2 pound dried rice noodles, about 1/4 inch wide (I used Caravelle brand, available at HEB)

3/4 cup fresh grapefruit juice

2 large garlic cloves, minced (more…)

John Libonati

Everyone on a Gluten Free Diet?

May 15th, 2008 by John Libonati

The below article by Nadine Grzeskowiak is a good explanation of why the gluten-free diet can work for anyone and everyone and pitfalls of the celiac tests.  Medical experts speak of the gluten-free diet as if it is something strange, yet most unprocessed foods you cook yourself are naturally gluten free.  All meats, seafood, fruits, vegetables, nuts, legumes, dairy (unless gluten was added to them), corn, rice and other grains,(besides wheat, barley, rye or oats), naturally do not contain harmful gluten.  Wheat, barley, rye and oats don't contain any nutrients you cannot get in other foods, so what is the big deal with not eating them?Nadine's article is excellent.  The only thing I would add is if you do eliminate the gluten grains of wheat, barley, rye and oats and feel better within two weeks, get yourself tested for celiac disease.  A positive diagnosis makes dealing with healthcare providers much easier.  That said, if it comes back negative but you feel better being gluten-free then eliminate gluten from your diet and be healthy.You can find Nadine's blog article at http://glutenfreern.com:80/everyone-on-a-gluten-free-diet/-John Libonati, Editor Glutenfreeworks.com john.libonati@glutenfreeworks.com

Discussion | | Nadine Grzeskowiak | May 13, 2008

I have thought for a long time about this very question.  Who would suggest such a thing?  I would.  The main reason I would dare to make such a statement is because we have been so negligent in recognizing and treating people with celiac disease.  Not a day goes by that I don’t hear about or speak to someone directly who has suffered needlessly for years.  The other main point I want to make is that NONE of the currently available testing is 100%.  The blood tests and endoscopic biopsies are great tools if they are positive.  If they are negative, I have heard of too many people tell me ‘I don’t have celiac disease, my blood test/biopsy was negative’.  This is a major cause for concern to me.  Both of these tests do not confirm you don’t have, or will never develop celiac disease.  First, neither test is 100% reliable.  Second, both tests are simply a snapshot of right now.  I have also seen test results that are clearly positive for celiac disease, but read as negative by a medical provider that does not understand what the results mean.  The genetic testing is great and it is my first choice when testing people.  The test is a cheek swab, I get results in one week and it is covered by most insurances.  I utilize Kimball Genetics in Denver, Colorado,  www.kimballgenetics.com.  I have run into this scenerio in the past week: a 12 year old on a gluten free diet for several months, a remarkable recovery from many symptoms while on the gluten free diet, and yet, she tests negative for DQ2 and DQ8.  Is she at risk for celiac disease if she eats gluten?  Are there other genes that could be looked at?  I am gathering more data on this because nothing is black and white with gluten intolerance, there are many grey areas.  Other than, of course, the need to be on a strict gluten free diet for the rest of your life if you have celiac disease.  Not much grey there. 

So, this leads me back to the original question: everyone on a gluten free diet?  In my perfect world, the answer would be a resounding YES!  If people would simply try the gluten free diet for a month, most, if not all of those people will feel better.  It remains simply a diet change.  Change your diet and feel better, doesn’t that sound appealing.  To some yes, and to others, not really. Not without the proof that they need to change their long held diet and lifestyle habits.  It also sounds quite un-American to say ‘I can’t eat wheat, barley, rye and oats’, by extension, bread, pies, cakes, beer and pizza.  My most recent convert to a gluten free diet, said to me, “You know I don’t even miss the bread anymore, it doesn’t even appeal to me, I feel so much better on the gluten free food”.  This is a woman who has had symptoms for most of her 76 years and I had a hard time convincing her to try the gluten free diet for a month.  She is convinced now.  I can tell many stories with the same happy ending.  I can also tell you that most men have a harder time changing anything, let alone their diet, than women.  Trust me, I am a nurse and I have no reason to lie to you.  Try it.  Go gluten free for a month and contact me with your results.  GO!

John Libonati

Jennies Macaroons Adds New Flavor To Gluten-Free Line

March 12th, 2008 by John Libonati

New all-natural chocolate macaroons debut at Natural Products Expo West–BOOTH 3177  They’re all natural and made with only three ingredients, offering great taste and superior health benefits

Brooklyn, NY (PRWEB) March 11, 2008 -- Jennies Macaroons has added chocolate to its line of all-natural macaroons, which are free of soy, wheat, sulfites, lactose, trans fats and gluten, nuts and yeast. As the first baking company to introduce gluten-free and dairy free products to the market in 1951—and the manufacturer of the #1 selling macaroon in the natural food market— Jennies Macaroons offer today’s health-conscious consumers what they’re looking for. “They’re all natural and made with only three ingredients, offering great taste and superior health benefits,” says Arnold Badner, president.

Jennies’ products include ingredients that are nutritional superstars. Coconut, now considered by health experts to be the healthiest form of saturated fat, is a main ingredient in both the macaroons and Jennies Omega-3 Energy Bars. The addition of flax seeds, sunflower seeds and pumpkin seeds give the bars a fiber boost as well as Omega-3 support. One bar contains 1,305mg of the FDA recommended 1,300 mg/day of ALA Omega-3, which promotes normal cholesterol and triglyceride levels and supports healthy circulation, lung and brain functions. “Unlike many energy bars on the market, Jennies-Omega 3 bars taste great and contain no artificial ingredients. And they provide a great source of healthy energy for an active and athletic lifestyle,” adds Badner.

Garnering significant attention from the health industry, Jennies’ products are promoted by Jordan Rubin, founder of the Garden of Life and Perfect Weight America, who chronicles in his book The Maker’s Diet how he used Jennies Macaroons as a treatment for Crohn’s Disease. Dr. Mary Enig, nutritional expert and biochemist, recommends Jennie’s Coconut Macaroons as the #1 source of coconut for her immune-compromised patients. According to Enig, coconut helps the body’s cellular function and has unique antimicrobial, anti-bacterial and anti-viral properties.

The new Chocolate Macaroons will appeal to specialty food and chocolate retailers, as well health food stores. Available in 8-ounce canisters, the coconut and almond are already sold in Whole Foods nationwide. Jennies Macaroons complete product line is available nationwide and includes Jennies Energy Bars, Traditional Jennies Macaroons, Zero Carbs Jennies Macaroons, and Omega 3 Energy Bars. All products are Kosher Parve, Maker’s Diet approved, and manufactured in a gluten-free and nut-free facility.

Jennies Macaroons (www.macaroonking.com), founded in 1919, has been the leading provider of all-natural macaroons since 1951, and expanded its line to include its popular Omega-3 Energy Bars in 2006. All products are Kosher Parve and Maker’s Diet approved, and manufactured by Red Mill Farms, Inc. in Brooklyn, NY. President Arnold Badner, 66, who has run more than 30 marathons and is an avid cyclist, relies on his Energy Bars to help him through his century bike rides in the Catskill Mountains.