Posts Tagged ‘Diagnosis’

 

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Gaining Closure Through a Letter: The Beautiful Side of Healing

June 18th, 2013 by Candice Rose Clifford


This has been a post/letter which has been a work in progress for two years. For the past two years, I have had the new years resolution to send a letter to the 22 doctors who I had seen throughout the five years of misdiagnosis. After finally receiving a great report from my GI yesterday, it was time to put the finishing touches on this piece. It is something I felt I needed to do.

Not only to gain closure for myself, but as a way to spread awareness about gluten-sensitivity. The doctors need to know what the other side of the rainbow looks like, after what was a treacherous and long storm.  (more…)


Dr. Rodney Ford, pediatrician and author of The Gluten Syndrome, provides us with an excellent and easy-to-follow video that tells us how to know if we need a gluten test.

This short presentation explains which symptoms to look for and tells you the tests you need to to request to find out if gluten is making you sick.

Dr. Ford estimates up to one third of people with chronic diseases are being affected by gluten and sums up why people do not ask to be tested. “We are so used to being sick that we don’t know we’re sick.” People think they have always been this way, so they do not know to ask.

He then establishes a great litmus test to determine who should be tested – “People who are sick, tired or grumpy should be tested.”

 

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In this video, Marie Fang shares 5 awesome tips for dealing with a recent diagnosis of Celiac Disease or gluten intolerance. From keeping it simple to expanding your gluten-free circle, Fang describes what worked best for her when she was first diagnosed.

Share this video with a friend who has recently been diagnosed, or use it yourself. Fang reminds us all that a gluten-free diagnosis is not a death sentence – it can be a new lease on life!

In this video, Dr. Peter Osborne discusses the differences between gluten intolerance, a wheat allergy, Celiac Disease and gluten sensitivity.

Providing an in-depth look at the causes, testing and treatment for these conditions, Dr. Osborne gives a very detailed explanation of these diagnoses.

According to Deadline, actor Jennifer Esposito is leaving Blue Bloods because of her celiac disease. Jennifer’s doctor is requiring her to work a reduced schedule after she collapsed on the set and that doesn’t fit into CBS’s plans for her character.

This is CBS’s take on the situation, so Jennifer Esposito took to her Twitter account to set the record straight.

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Randi Markowitz

True Story: Doctor Says “Don’t Eat Wheat Ever Again”

January 19th, 2012 by Randi Markowitz

gluten free challah bread

Gluten Free Homemade Challah Bread

This is a quote that a lot of people are hearing these days. What happens after your doctor says these words? Here is a synopsis of my journey; if any of this sounds familiar, give it some serious thought…there may be a very simple answer.

I first heard these words while I was barely concious, in a bed at Methodist Hospital in Houston. I had become so weak and debilitated by my undiagnosed and untreated celiac disease that my life was in danger. The symptoms over twenty years included gastrointestinal problems, fibromyalgia, irritability, bone pain and more. The good news was that I finally found out what was wrong with me; the better news was finding out that the disease is completely manageable through dietary changes alone.–no medications, no surgeries, none of that stuff. Just don’t eat grains that contain the gluten protein, mainly wheat, barley and rye. That sounded really good to me.

Not so fast. While still in the hospital, I was really still very sick, and not really able to process the information. After a couple of days (in which I was already improving), it dawned on me that (more…)

John Libonati Gluten Free Works

On December 13, I posted a question on the Glutenfreeworks Facebook page to ask people who had adopted a gluten-free diet if they no longer needed medications they had been taking. The response was incredible. Dozens of people described how they no longer needed drugs, some of which they had been taking for years or decades.

Here is my post and their responses…

“I gave a presentation to a group and mentioned a friend who had been on Zantac for 20 years. I went on to say that once she went gluten-free the acid reflux disappeared. A woman in the audience stood up and said the same thing happened to her – she had been on it since she was 10 (I’m guessing she was in her mid to late 30s.).

My question for you is what medication (of any kind) were you on, before you went gluten-free, that you no longer need to take and how long did it take before you did not need it anymore?”

    •  

      Ashley Nikki Garcia Prilosec & zantec. ! 

      December 13 at 5:25pm · 
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      Lauren Smith I also took OTC for heartburn on a near daily basis. No more! 

      December 13 at 5:27pm · 
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      Surely Masquelier McMaster I’ve taken Neurontin for 10 years..GF since Sept. and realized in Nov. that I don’ t need it!  (more…)

John Libonati Gluten Free Works

We asked people on on the Glutenfreeworks Twitter account how they felt about whether finding out earlier about their gluten sensitivity or celiac disease would have affected their lives.

Here is what they said.

Do you think your life would have been different if you had known about gluten at an early age???

 

@Glutenfreeworks incredibly. My senior year of high school probably wouldn’t be going so poorly if I had…. (more…)

John Libonati Gluten Free Works

do doctors understand gluten sensitivity or celiac diseaseIt is well documented that only a small minority of those with celiac disease are successfully diagnosed in a medical setting.

Gluten sensitivity, which we based on medical research and proposed in Recognizing Celiac Disease in 2007,  has only recently been accepted as a true medical condition. So we decided to hold an informal survey to see just how people are becoming gluten-free? How are they finding out that gluten sensitivity or celiac disease are the cause of their health problems and are doctors diagnosing them or are they figuring it out on their own?

We posted this question to our GlutenFreeWorks Facebook friends and here are their answers. Were YOU diagnosed by a doctor? Leave your comments below! (more…)

Celiac Disease and Gluten Free Diet Educational Videos

November 18th, 2011 by Cheryl Harris, MPH, RD, LD

Cheryl Harris Gluten Free Works

Finding out you have Celiac Disease is a big transition. Often it’s a good one that leads to feeling great, yet initially it’s a lot of information to take in at once to understand what you need to do for your health. Much of it is because we’re been eating one way for 15, 30, 50 or more years and it can be overwhelming to to instantly unlearn everything we’ve done and change overnight. Wouldn’t life be easier if you could take a doctor or dietitian home as a portable reminder of the basics? And so the Celiac Disease Video Project was born.

See below for videos of Dr. John Snyder, Chief of the Department of Gastroenterology at CNMC in DC, Dr. Gary Kaplan, Medical Director of Kaplan Center for Integrative Medicine and Cheryl Harris, MPH, RD Registered Dietitian and Nutritionist discussing testing, diagnosis and follow-up, eating a gluten-free diet and a short segment on when it’s not Celiac. Though there are an increasing number of videos out there on people’s stories of diagnosis and ways to make a gluten-free pie, this is the first of its kind to do a run-down of the medical and diet basics by healthcare professionals. The Celiac Sprue Association has been kind enough to support the project. (more…)

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