Posts Tagged ‘Celiac disease’

 

Gluten-Free Labeling Update: Big News!

August 3rd, 2011 by Cheryl Harris, MPH, RD, LD


Cheryl Harris Gluten Free Works

Could it possibly be?  At long last, there's some movement on the behalf of the gluten-free labeling movement.

nutrition labelThis is REALLY big news for people who are gluten-free in the U.S.!  The FDA has re-opened a comment period for 60 days to solicit opinions from health professionals, scientists and the public on a potential ruling for defining gluten-free as less than 20 ppm.

Why 20ppm? According Michael Taylor at the FDA at stakeholder teleconference on Aug 2nd, it's the lowest amount that can be accurately quantified, and many leading experts believe it is a safe amount. Europe has used it for 20 + years.  Several prominent researchers, including Dr. Alesso Fasano and Dr.Stefano Guandalini, spoke in favor of the new proposed legislation. “This is a standard that has been in use in (more…)


Gina Meagher Celiac Disease DiabetesI met Gina through the Celiac Sprue Association, Denver Chapter 17.  She helped me get involved in volunteering at last years ‘Incredible Edible Gluten-Free Food Fair™!’  She has been part of CSA for several years and is a member of the Board.  She has a lively personality and is willing to share her thoughts with others.  I am so excited that she was willing to sit down with me and talk about her experiences of living with Type I diabetes and Celiac disease.  I hope you enjoy this as much as I did.  The overall message I took away, was that neither Diabetes nor Celiac disease define who Gina is, because she is so much more and has never let either one stop her from living the active life she was meant to have!

Interview

 

Jenn: Hi Gina! It’s great to be with you today and to have the opportunity to get to know you better.  So, tell me…how old were you when you were diagnosed with Type I diabetes?

Gina: I was 17 years old.

Jenn: And how old were you when you were diagnosed with Celiac disease? (more…)

Cleo Libonati, RN, BSN

Is Low Stomach Acid Making You Sick??

May 4th, 2011 by Cleo Libonati, RN, BSN

Low stomach acid is common in celiac disease and dermatitis herpetiformis.  It is also common in the general population, as well, affecting 50% of people age 60 years and about 80% by age 85 years.  Nevertheless, low stomach acid is not generally looked for as a cause of acute and chronic disorders that rob health with far-reaching effects.

Is Low Stomach Acid New?

No. Low stomach acid (hypochlorhydria), has been well investigated much of the past century in both the general population and those with gluten sensitivity. For example, a 1985 study investigating gastric acid secretion in 116 subjects with dermatitis herpetiformis found that 41% had low stomach acid and 26% were achlorhydric (no acid). Of those older than 50 years, 47% were achlorhydric. When compared to subjects with celiac disease, the frequency of achlorhydria was significantly higher in those with dermatitis herpetiformis than in those with coeliac disease. There was no correlation between achlorhydria and small intestinal villous atrophy (damage).

Why Is Low Stomach Acid Overlooked?

Failure to understand nutrition and malabsorption…an area of science that is barely taught in medical schools is a big factor. Also, (more…)

Gluten Free Works Jennifer Harris

Columbia University Celiac Disease Center

The Celiac Disease Center at Columbia University invites you to participate in a research study looking at individuals' knowledge of genetic testing of celiac disease and their potential concerns with such testing.  The goal of this study is to increase understanding of the factors associated with making an informed decision regarding such testing and to better provide the necessary information to make such a decision.

A brief survey has been developed to address some of these factors.  The survey only takes five minutes to complete, it is anonymous, and no identifying information is collected. 
 
If you or a family member has celiac disease or gluten sensitivity, (more…)

John Libonati Gluten Free Works

Mrs. Alaska Brandy Wendler Celiac Disease

Brandy Wendler, the new Mrs. Alaska, has celiac disease.

April 8, 2011, Anchorage, Alaska: Brandy Wendler, wife of JohnRoss Wendler, pilot officer of Elmendorf Air Force Base who is serving in Japan’s relief effort, was crowned Mrs. Alaska United States 2011 in front of a packed auditorium at the Wilda Marston Theatre in Anchorage on Saturday, April 2nd, 2011.  

Although the Mrs. Alaska pageant was Mrs. Wendler’s first time competing in a pageant, her passion for speaking about Celiac disease, a disease Mrs. Wendler was diagnosed with 3 years ago, stole the hearts of the judges and the entire audience. 

Mrs. Alaska United States is a prestigious and elite title, which requires each contestant to choose a (more…)

John Libonati Gluten Free Works

The following article was written by Erika Gebel and reprinted by permision from Chemical and Engineering News.

Celiac Disease Gluten Sensitivity Test

Celiac Disease and Gluten Sensitivity Often Go Undiagnosed

Judging by their symptoms, people with celiac disease could have food poisoning, depression, or iron deficiency. As a result, doctors often have trouble diagnosing the serious immune disorder. To develop a better test for the disease, researchers have made a device that can detect nanograms of gluten antibodies, the hallmarks of celiac disease, in human (more…)

Jennifer Harris

Researchers Seeking Adults with Celiac Disease

February 22nd, 2011 by Jennifer Harris

Adults that have been diagnosed with Celiac Disease are being sought to participate in a study to identify factors associated with the development of Celiac Disease.  The goal of the study is to find the genes that may predispose individuals to develop this autoimmune disease.  Adults eligible to participate in this study must have been diagnosed with Celiac Disease through a small intestinal biopsy. Spouses may also be eligible to participate.

Participants will be asked to provide a blood sample, complete a questionnaire, and provide medical records regarding their diagnosis. There is no cost to (more…)

Trish Deitemeyer

Have a Gluten-Free Valentine’s Day!

February 14th, 2011 by Trish Deitemeyer

Have you checked out Gluten Free Works yet?  You really should.  Founded by Cleo and John Libonati, it is  dedicated to "helping people get well, look good and stay healthy living gluten free."  And right now, they've got some very sweet Valentine's info posted.

There's a gluten-free brownie recipegluten-free strawberry heart rice crispie bar recipe and even a heart-shaped pizza recipe from Terri Gruss, MS, one of their regular contributors.  Jen Cafferty, founder of The Gluten Free Cooking Expo, shares a starter list of (more…)

OTTAWA, Feb. 2 /CNW/ - Prime Minister Stephen Harper is being asked to act on the concerns of millions of Canadians with food allergies and celiac disease and listen to the advice of prominent national medical, consumer and health organizations and pass proposed federal food labelling regulations now. The Prime Minister is also encouraged to heed the results of a new public opinion poll showing close to 70% of Canadians want regulations to affect all pre-packaged food and beverages and not grant a special exemption for the beer industry.

According to Angus Reid Public Opinion, 67% of Canadians approve of the proposed rules so they apply to all food and beverage companies, while only 21% believe the government should change the proposed rules to exempt the brewery industry from (more…)

Source: Buzzle.com

It’s a fact. Everyone produces gas. Ordinarily, most people produce about 1 to 3 pints of gas in a day. Gas is normally painless, creating a feeling of fullness until it is passed.

But sometimes pain is experienced, and when it does it can be either dull or sharp, leaving us feeling bloated or tender in places. It can be localized in one spot, or felt throughout the abdomen.

About 50% of people with celiac disease complain of chronic discomfort from gas at the time of diagnosis.

What is Gas?

The accumulation of gas in the digestive tract is called flatus, and having (more…)