Celiac Disease and Gluten Sensitivity Often Go Undiagnosed
Judging by their symptoms, people with celiac disease could have food poisoning, depression, or iron deficiency. As a result, doctors often have trouble diagnosing the serious immune disorder. To develop a better test for the disease, researchers have made a device that can detect nanograms of gluten antibodies, the hallmarks of celiac disease, in human (more…)
Adults that have been diagnosed with Celiac Disease are being sought to participate in a study to identify factors associated with the development of Celiac Disease. The goal of the study is to find the genes that may predispose individuals to develop this autoimmune disease. Adults eligible to participate in this study must have been diagnosed with Celiac Disease through a small intestinal biopsy. Spouses may also be eligible to participate.
Participants will be asked to provide a blood sample, complete a questionnaire, and provide medical records regarding their diagnosis. There is no cost to (more…)
Have you checked out Gluten Free Works yet? You really should. Founded by Cleo and John Libonati, it is dedicated to “helping people get well, look good and stay healthy living gluten free.” And right now, they’ve got some very sweet Valentine’s info posted.
OTTAWA, Feb. 2 /CNW/ - Prime Minister Stephen Harper is being asked to act on the concerns of millions of Canadians with food allergies and celiac disease and listen to the advice of prominent national medical, consumer and health organizations and pass proposed federal food labelling regulations now. The Prime Minister is also encouraged to heed the results of a new public opinion poll showing close to 70% of Canadians want regulations to affect all pre-packaged food and beverages and not grant a special exemption for the beer industry.
According to Angus Reid Public Opinion, 67% of Canadians approve of the proposed rules so they apply to all food and beverage companies, while only 21% believe the government should change the proposed rules to exempt the brewery industry from (more…)
It’s a fact. Everyone produces gas. Ordinarily, most people produce about 1 to 3 pints of gas in a day. Gas is normally painless, creating a feeling of fullness until it is passed.
But sometimes pain is experienced, and when it does it can be either dull or sharp, leaving us feeling bloated or tender in places. It can be localized in one spot, or felt throughout the abdomen.
About 50% of people with celiac disease complain of chronic discomfort from gas at the time of diagnosis.
What is Gas?
The accumulation of gas in the digestive tract is called flatus, and having (more…)
Doctors are missing over 95% of people with celiac disease – over 3 million in the United States. That’s more people than autism or Type 1 Diabetes, yet celiac disease receives a fraction of the funding of these diseases. Lives are being destroyed every day, when a simple change in diet could cure them. Let’s get the word out…
December 28th, 2010 by Nadine Grzeskowiak, RN, CEN
I have thought for a long time about this very question. Who would suggest such a thing?
I would. The main reason I would dare to make such a statement is because we have been so negligent in recognizing and treating people with celiac disease. Not a day goes by that I don’t hear about or speak to someone directly who has suffered needlessly for years. The other main point I want to make is that NONE of the currently available testing is 100%.
The blood tests and endoscopic biopsies are great tools if they are positive. If they are negative, I have heard of too many people tell me ‘I don’t have celiac disease, my blood test/biopsy was negative’. This is a major cause for concern to me. Both of these tests do not confirm you don’t have, or will never develop celiac disease. First, neither test is 100% reliable. Second, both tests are simply a snapshot (more…)
Editors’ note: This case report illustrates that a person can live a long time reporting apparent good health and be completely unaware that they have symptoms of celiac disease. In this case, hematomas, (which are swollen black and blue marks caused by a break in the wall of a blood vessel), that developed on his legs caused the patient to seek medical attention. The ability of his blood to clot was severely impaired and yet there was no other manifestation of hemorrhage. (more…)
This Holiday Season I am especially thankful for the health I now enjoy… it’s been a long journey these past 10 years or so…but I am so thankful for the knowledge I’ve gained about living a Gluten-Free lifestyle…the benefits that have come from it, and that after 10 years, I can finally say that I feel like “me” again. :) I’ve never really shared my entire experience, and normally don’t write posts that are too personal… but perhaps this can help someone out there who is wondering if they might have Gluten Intolerance or Celiac Disease… or someone who has been diagnosed and wonders if it is really a “big deal” if they HAVE to go gluten-free or not. I can tell you from personal experience that it WILL CHANGE YOUR LIFE!!! It changed mine… and here’s how:
It all started back in junior high and high school. I just felt “tired” all the time. I can’t even tell you how many times a day someone would come up to me and say, “What’s wrong? You look tired.” I even remember someone saying to me once, “You look dead.” (ouch!) It seemed like maybe I was just depressed or (more…)
by Janet Y. Rinehart, Houston, and Lynn Rainwater, San Antonio
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A definite diagnosis of Celiac Disease (screening blood tests plus endoscopic biopsies) and/or Dermatitis Herpetiformis (skin biopsy) means a lifetime commitment to a gluten-free diet.
Take full advantage of your local chapter membership. Our group leaders and contacts have experience with the gluten-free diet. We can help you acclimate to the changes in your lifestyle. We welcome your questions.
Join national celiac support groups, for example: (more…)
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