October 19th, 2011 by Kimberly Bouldin
For the 24th year in a row, Nationwide Children’s Hospital will be hosting the Celiac Conference. The conference is a great place to mingle, shop and learn more about Celiac Disease and the gluten-free diet. The conference will take place on Saturday, October 29, 2011 from 7:30 AM until 4:00 PM. There will be separate educational tracks for adults, teens & school-age children.
The Keynote Speakers Will Be:
The Agenda: (more…)
October 4th, 2011 by John Libonati
At 6’2″ and just 165 lbs, Florida State quarterback Clint Trickett was consuming 4,500 calories a day earlier this summer to try to put on weight.
It wasn’t working.
“I had some blood work done, I had a biopsy,” Trickett said during a recent meeting with Florida State beat writers. “And they said, ‘You have Celiac disease.’ And it started making sense.”
Trickett adopted a gluten-free diet and within a month started to see results.
“You just have to stay away from any kind of breaded food,” Trickett said. “Already I’ve seen two pounds a week gained. I’ve been putting on pounds ever since (more…)
September 13th, 2011 by John Libonati
Know the Symptoms of Nutrient Deficiencies so You Can Be Healthy!
The impact of nutritional deficiencies on health should be common knowledge among the medical professional community. All doctors, nurses and other medical professionals should be able to quickly and accurately identify and diagnose functional nutritional deficiencies in patients and correct those deficiencies. Unfortunately, this is not the case.
Medical teaching institutions do not focus on nutrition, so many medical professionals are not equipped to recognize the signs of nutritional deficiencies until the patient is extremely sick. In most cases, the patient is able to function, just not at his or her potential. He or she may have weight issues, skin, hair or (more…)
September 9th, 2011 by Cheryl Harris, MPH, RD, LD
The FDA is finally moving on regulating the claim “gluten-free” on packages, which is fantastic news! Lots of people have put in countless hours to make this happen. We’ve got 1 month left to comment—until October 3rd—and YOUR comment is vital to getting the law YOU want.
During the Aug 2nd teleconference, we heard that the comment period was re-opened and we might have a law by late 2012. Several prominent researchers, including Dr. Alesso Fasano and Dr.Stefano Guandalini, spoke in favor of the new proposed legislation. “This is a standard that has been in use in Europe for almost two decades, & the science supports the U.S. adopting it as well,” commented Dr. Fasano. I posted highlights of the teleconference, but upon reading the 90+ page safety assessment, I had a lot of questions! http://1.usa.gov/r4NDLA
The safety assessment suggests that for the most sensitive Celiac, (more…)
September 7th, 2011 by Jennifer Slack
I have had the opportunity to connect with Dr. Stephen Wangen, the founder of the IBS Treatment Center in Seattle, WA. Awhile back, at a CSA (Celiac Sprue Association) meeting I had the pleasure of helping Dr. Wangen with his book signing. He had flown in to Denver to speak on his books, Healthier Without Wheat and Irritable Bowel Syndrome Solution. There was a full audience of folks, just like you and I, who were able to ask personal questions and learn more about living with Celiac Disease, gluten intolerance, as well as exploring other areas such as food allergies.
Since that time, Dr. Wangen and I have had the chance to talk about what the IBS Treatment Center does to help people really understand their bodies and how food can be affecting them. He explores the possibilities of Celiac Disease, gluten intolerance and food allergies and helps people to develop a healthier lifestyle tailored to their specific needs. At the same time, Dr. Wangen has observed the emotional affects these conditions can have on people and understands that not feeling well emotionally has an affect on how people take care of their physical well being. What makes his practice so fantastic is the positive nature. Dr. Wangen helps people view the changes by looking at the benfits and the gains and focusing on what people can have, rather than on what they can’t. Here is what Dr. Wangen had to say when I asked him about his own experiences. (more…)
August 3rd, 2011 by Cheryl Harris, MPH, RD, LD
Could it possibly be? At long last, there’s some movement on the behalf of the gluten-free labeling movement.
This is REALLY big news for people who are gluten-free in the U.S.! The FDA has re-opened a comment period for 60 days to solicit opinions from health professionals, scientists and the public on a potential ruling for defining gluten-free as less than 20 ppm.
Why 20ppm? According Michael Taylor at the FDA at stakeholder teleconference on Aug 2nd, it’s the lowest amount that can be accurately quantified, and many leading experts believe it is a safe amount. Europe has used it for 20 + years. Several prominent researchers, including Dr. Alesso Fasano and Dr.Stefano Guandalini, spoke in favor of the new proposed legislation. “This is a standard that has been in use in (more…)
June 21st, 2011 by Jennifer Slack
I met Gina through the Celiac Sprue Association, Denver Chapter 17. She helped me get involved in volunteering at last years ‘Incredible Edible Gluten-Free Food Fair™!’ She has been part of CSA for several years and is a member of the Board. She has a lively personality and is willing to share her thoughts with others. I am so excited that she was willing to sit down with me and talk about her experiences of living with Type I diabetes and Celiac disease. I hope you enjoy this as much as I did. The overall message I took away, was that neither Diabetes nor Celiac disease define who Gina is, because she is so much more and has never let either one stop her from living the active life she was meant to have!
Jenn: Hi Gina! It’s great to be with you today and to have the opportunity to get to know you better. So, tell me…how old were you when you were diagnosed with Type I diabetes?
Gina: I was 17 years old.
Jenn: And how old were you when you were diagnosed with Celiac disease? (more…)
May 4th, 2011 by Cleo Libonati, RN, BSN
Low stomach acid is common in celiac disease and dermatitis herpetiformis. It is also common in the general population, as well, affecting 50% of people age 60 years and about 80% by age 85 years. Nevertheless, low stomach acid is not generally looked for as a cause of acute and chronic disorders that rob health with far-reaching effects.
Is Low Stomach Acid New?
No. Low stomach acid (hypochlorhydria), has been well investigated much of the past century in both the general population and those with gluten sensitivity. For example, a 1985 study investigating gastric acid secretion in 116 subjects with dermatitis herpetiformis found that 41% had low stomach acid and 26% were achlorhydric (no acid). Of those older than 50 years, 47% were achlorhydric. When compared to subjects with celiac disease, the frequency of achlorhydria was significantly higher in those with dermatitis herpetiformis than in those with coeliac disease. There was no correlation between achlorhydria and small intestinal villous atrophy (damage).
Why Is Low Stomach Acid Overlooked?
Failure to understand nutrition and malabsorption…an area of science that is barely taught in medical schools is a big factor. Also, (more…)
April 12th, 2011 by Jennifer Harris
The Celiac Disease Center at Columbia University invites you to participate in a research study looking at individuals’ knowledge of genetic testing of celiac disease and their potential concerns with such testing. The goal of this study is to increase understanding of the factors associated with making an informed decision regarding such testing and to better provide the necessary information to make such a decision.
April 11th, 2011 by John Libonati
Brandy Wendler, the new Mrs. Alaska, has celiac disease.
April 8, 2011, Anchorage, Alaska: Brandy Wendler, wife of JohnRoss Wendler, pilot officer of Elmendorf Air Force Base who is serving in Japan’s relief effort, was crowned Mrs. Alaska United States 2011 in front of a packed auditorium at the Wilda Marston Theatre in Anchorage on Saturday, April 2nd, 2011.
Although the Mrs. Alaska pageant was Mrs. Wendler’s first time competing in a pageant, her passion for speaking about Celiac disease, a disease Mrs. Wendler was diagnosed with 3 years ago, stole the hearts of the judges and the entire audience.
Mrs. Alaska United States is a prestigious and elite title, which requires each contestant to choose a (more…)
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