Posts Tagged ‘Celiac disease’

 


Mixes From The Heartland is making mealtimes healthy, easy and normal for gluten-free families across the country. Now people can save when shopping by joining their new Gluten Free Buying Club.

Teri Whisenhunt, the owner of Mixes From The Heartland and a celiac herself, says her goal is to provide people high quality, affordable gluten-free foods. With the Gluten Free Buying Club, Mixes From The Heartland is doing just that – providing members with the largest selection of approved (under 5 parts per million of gluten) quality mixes and ingredients at affordable prices. And their shipping prices are among the best in the industry – just $10 for orders under $100 and free on orders over $100. (more…)


With less than a week to go, don’t miss the Chicago-area gluten-free event of the year. The event is going to take place this coming weekend, April 17-18 at the Wyndham Hotel in Lisle. Tickets to Saturday’s classes are already sold out, but there are still a few tickets left for Sunday’s classes.

Everyone is welcome to attend the vendor fair each day, tickets for the vendor fair are available at the door.

For more information, visit here and here.

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Author Information: Anne Steib, Chicago, IL
Anne Steib
Click here to email Anne.
http://www.examiner.com/x-13312-Chicago-GlutenFree-Food-Examiner http://twitter.com/gfchicago

(Editor’s Note: Click here to see Part One)

OUR BIOLOGICALLY INAPPROPRIATE DIET

In a previous article, I discussed the role that wheat plays as an industrial adhesive (e.g. paints, paper mache’, and book binding-glue) in order to illustrate the point that it may not be such a good thing for us to eat. The problem is implicit in the word gluten, which literally means “glue” in Latin and in words like pastry and pasta, which derives from wheatpaste, the original concoction of wheat flour and water which made such good plaster in ancient times. What gives gluten its adhesive and difficult-to-digest qualities are the high levels of disulfide bonds it contains. These same sulfur-to-sulfur bonds are found in hair and vulcanized rubber products, which we all know are difficult to decompose and are responsible for the sulfurous odor they give off when burned.

There will be 676 million metric tons of wheat produced this year alone, making it the primary cereal of temperate regions and third most prolific cereal grass on the planet. (more…)

15 Celiac Disease Facts Everyone Should Know

April 1st, 2010 by John Libonati

Celiac disease awareness is growing, but misinformation still abounds. Here are 15 celiac disease facts every doctor, patient and member of the public should know.

    1. 1 in 700 - The average prevalence of celiac disease in the United States 1950. (Mayo)2. 1 in 100 – The average worldwide prevalence of celiac disease across all races today. (NIH) The average prevalence of celiac disease in the United States today. (Mayo)

    3. $8,500 - The average annual estimated healthcare cost of each person with untreated celiac disease in the United States. (Cigna/Columbia Celiac Disease Center study) (more…)

Below is an important letter by Cleo Libonati, celiac disease author and speaker. She explains why you must be your own health advocate if you wish to be healthy and receive optimal care.

Dear Friend,

For the past three years, I have met with HMOs, pharmaceutical companies, politicians, doctors, dietitians, celiac support groups, and patients across the United States. One thing is abundantly clear. Doctors are not recognizing celiac disease and do not realize how little they know about the disorder.

In 2004, the National Institutes of Health called for education of physicians and other healthcare providers about celiac disease. To date, few efforts have been undertaken and none has succeeded.

The result is missed diagnoses, inadequate follow-up, unnecessary surgeries, improperly prescribed medications and needless pain. During my presentations, I meet many people who think they are receiving good treatment and cannot understand why no one has told them their persisting symptoms are due to simple nutrient deficiencies. (more…)

Libonati_John_Philadelphia_PA

Have you ever wondered how reliable the news you see on the television really is?

Now I know first hand that the media does not always get it right and can even leave out the most important news of all.

Let me tell you how …

ABCGLUTENFATFor the last five years, I have worked to educate people about celiac disease and gluten sensitivity. I developed a website called Glutenfreeworks.com, which has helped tens of thousands get well and stay healthy living the gluten-free lifestyle.

I also edited and published the groundbreaking work, Recognizing Celiac Disease. This medical reference, authored by Cleo Libonati, RN, BSN has set the standard for identifying symptoms and their causes.

People use Glutenfreeworks.com every day to find new gluten-free recipes, how to get diagnosed for celiac disease, which restaurants serve gluten free food in their area and where to find information on local support groups. Our symptom guide, first published in Recognizing Celiac Disease, contains over 300 signs, symptoms, associated disorders and complications. From nutritional information to in-depth reviews of gluten disorders and the gluten-free diet, Glutenfreeworks.com provides medically accurate information to help patients and health professionals alike.

Last week I was given the opportunity to talk to ABC News in Philadelphia about gluten sensitivity, the gluten-free diet and how people’s lives are being affected by gluten.

When I sat down with ABC for a 20 minute interview on gluten sensitivity we discussed the following: (more…)

Liz_Schau

As common at they are, gluten allergies and elimination diets are still, many times, viewed as fringe alternative health practices and often don’t receive the mainstream validation they deserve. When some estimates show that nearly 1 in 30 people suffer at the hands of gluten, one would think the intolerance to this protein would finally gain more acceptance in mainstream medicine and media. One man, doctor and author Mark Hyman, is working to do just that.

HymanHyman, an M.D. in the field of functional medicine, pioneers techniques that aide the chronically-ill in improving their health and quality of life by determining the underlying causes of illness and treating according to those causes, as opposed to much mainstream medicine that focuses on treatments that champion subsistence and reliance on a medication. Doctor Hyman is a blogger for The Huffington Post and in a recent article, cites gluten allergies and Celiac Disease (even latent Celiac) as the cause for many ailments and conditions never previously associated with the grain protein. (more…)

This article focuses on the two main antibody blood tests for celiac disease. It will tell you what each test looks for and what the results mean.

The two blood tests recommended when testing for celiac disease are the AGA-IgA test for gliadin (wheat proteins) as well as the tTG-IgA test for tissue transglutaminase.

Recent research indicates the blood tests most doctors are using, tTG & EMA, are not as reliable as first thought. Young children, elderly, smokers, the very ill and the not very ill can be missed. EMA, or endomysial antibodies has fallen out of favor so they will not be discussed.

Preparation for Testing

Make sure when being tested that you are on a gluten-containing diet, because the antibodies the tests look for would disappear if you are were gluten-free. Once you go gluten-free, future testing is unreliable.

AGA – The Test for Gluten Sensitivity

The AGA-IgA has fallen out of favor for CELIAC DISEASE, but it tests whether an immune reaction against GLUTEN (gliadin) is present in the system – it detects a GLUTEN SENSITIVITY reaction. You can have gluten sensitivity without developing the lesion that is characteristic of celiac disease. That is, you can have gluten sensitivity without celiac disease.

tTG – The Test for Celiac Disease

tTG tests for tissue transglutaminase antibodies, or antibodies against your own tissues. The tTG blood test does NOT tell you if you have celiac disease per se. It tells you the likelihood that villous atrophy will be discovered if an endoscopy with biopsy is performed. The higher the number, the more likely you have enough damage that one of the samples would show villous atrophy.

One thing to consider is that you have over 20 feet of small intestine. Biopsy samples are tiny and only about 5 are taken. How much damage is required before a positive biopsy sample is found?

Also, you can also have the beginning stages of celiac disease and the test results will be “negative” now, but if you were tested at a later date they could rise, making you positive. That is, the levels of antibodies now may not indicate probable intestinal damage enough to be found on endoscopy with biopsy. But they can rise over time – one month, six months, a year.

In one study we reviewed while creating the medical manual, Recognizing Celiac Disease, of the children who tested positive in the study, 40% had tested negative 5 years previously.

No test is 100% accurate. Determining celiac disease is still a judgment call. Even if the tests come back negative, try a strict 100% gluten free diet to see if symptoms improve. If they do, ask your doctor to take multiple vitamin and mineral levels to determine whether deficiencies exist.

Page 30 in Recognizing Celiac Disease lists the vitamins and minerals the NIH recommends checking: vitamins A, D, E, K, B12, folic acid and minerals calcium, iron, phosphorous.

The symptom charts in the book list which deficiencies cause which symptoms so you can determine which nutrient levels to test and give your doctor reasons to test for them. (Doctors will not take nutrient levels unless there is a reason to take them.) Correct the nutrient deficiencies and you will correct the symptoms in many cases.

A diagnosis is just a diagnosis. Good health is the most important thing.

For more information on the tests click here.

For more information on Recognizing Celiac Disease click here.

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Author Information: John Libonati, Philadelphia, PA
President-elect, Celiac Sprue Association (CSA).
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached at john.libonati@glutenfreeworks.com.

John Libonati

Celiac Disease Alert: Six Ways Gluten Can Kill You

November 4th, 2009 by John Libonati

“I only cheat once in awhile. You know, like twice a week…”

Photo: Suite101.com

If you have celiac disease, you damage your body EVERY TIME you ingest gluten. That may sound bad, but it gets worse.

You can DIE from celiac disease in a variety of ways. None of them are fun. Some take longer than others. Some may not kill you per say, but rather they may stop you from enjoying life, make you suffer from chronic pain or limit your potential.

Celiac disease is a deadly serious condition caused by eating what is essentially a poison to susceptible people – gluten proteins in wheat, barley, rye and oats.

Here are just 6 examples how celiac disease from gluten ingestion can kill you: (more…)

Saving a life means more than just keeping a person from dying. It means helping them get well.

While practicing medicine as a registered nurse, Cleo Libonati regularly saved people’s lives. Now her book “Recognizing Celiac Disease” is doing the same for people across the country and around the world.

Here is a letter telling how one family credits the book with saving their lives…

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Dear Cleo,

I have been “sick” most of my life (I turn 40 in July) with random things, too many to list here. I have been really sick the last 10 years, but started feeling as though I was “dying by the inch” in 2004. I finally broke down and went to my primary when premature ventricular contractions were occurring every 5-10 seconds that felt as though my heart was going to jump right out of my throat. I had many other random multiple sclerosis type symptoms, but the severity of the PVC’s were what scared me the most, that is until 2006. I began to have many gastro symptoms that kept me in the bathroom several times a day with alternating elimination problems, I couldn’t keep food down, and pain in the left side of my swollen, hard, tender abdomen every time I ate. I had an EGD and colonoscopy on 2/15/07. The three days before the test were the best I had felt in 4 years. Since I worked in Oncology and was used to seeing patients doing prep for them, I put myself on clear liquids 2 days before the Go-Lytely. So, I was gluten-free without knowing it for 3 days prior to testing. (more…)