Posts Tagged ‘Symptoms’

 

John Libonati

Celiac Disease Alert: Six Ways Gluten Can Kill You

November 4th, 2009 by John Libonati


“I only cheat once in awhile. You know, like twice a week…”

Photo: Suite101.com

If you have celiac disease, you damage your body EVERY TIME you ingest gluten. That may sound bad, but it gets worse.

You can DIE from celiac disease in a variety of ways. None of them are fun. Some take longer than others. Some may not kill you per say, but rather they may stop you from enjoying life, make you suffer from chronic pain or limit your potential.

Celiac disease is a deadly serious condition caused by eating what is essentially a poison to susceptible people – gluten proteins in wheat, barley, rye and oats.

Here are just 6 examples how celiac disease from gluten ingestion can kill you: (more…)


Cleo Libonati, RN, BSN

Treating Candida Albicans Intestinal Yeast Overgrowth in Celiac Disease

September 10th, 2009 by Cleo Libonati, RN, BSN

The frequency of intestinal overgrowth by candida albicans is increased in people with celiac disease. In fact, infection by this common organism, also called C. albicans or candida, appears to be a trigger in the onset of celiac disease.1 Candida is yeast, a budding type of fungus, capable of fermenting carbohydrates. Albicans identifies this particular yeast from many others.

Candida albicans usually maintains a tiny appearance in our intestinal tract unless conditions change to favor its growth. It can thrive and invade if the intestinal lining becomes inflamed or damaged, the composition of normal flora becomes disrupted, immune defenses become diminished or malnutrition reduces our health. Candida albicans infection is characterized by superficial, irregular white patches with a red base. Invasion of the bloodstream is possible and would be life-threatening. (more…)

A five year old Canadian boy, diagnosed with severe autism, was cured when the true cause of his mental disorder was found to be celiac disease and he was treated with a gluten-free diet and nutritional supplements.

Photo originally posted to Flickr as "Jack"

Photo originally posted to Flickr as “Jack”

His autism was cured because he was never really autistic in the first place. He had celiac disease, an immune response to wheat, barley, rye and oats that damages the intestines leading to malabsorption of nutrients.

Gluten-restricted diets have become increasingly popular among parents seeking treatment for children diagnosed with autism.(1)

What if certain children who are diagnosed with autism actually have celiac disease?

Neurological disorders stemming from celiac disease have been widely documented in medical literature. Some of these conditions include poor balance, tremors, migraines, chronic fatigue, schizophrenia, epilepsy, apathy, depression, insomnia, behavioral disorders, inability to concentrate and anxiety.(2)

Many of these issues are due to nutritional deficiencies resulting from the intestinal damage that celiac disease causes. If caused by celiac disease, they improve once gluten is removed from the diet and the intestine heals and functions properly.

Genuis and Bouchard, researchers at the University of Alberta, recently published the case of the 5-year-old boy who had been diagnosed with severe autism at a specialty clinic for autistic spectrum disorders. After an initial investigation suggested underlying celiac disease and varied nutrient deficiencies, a gluten-free diet was instituted.(1) His diet and supplements were adjusted to secure nutritional sufficiency.

The patient’s gastrointestinal symptoms rapidly resolved, and signs and symptoms suggestive of autism progressively abated.(1)

This case is an example of a common malabsorption syndrome (celiac disease) associated with central nervous system dysfunction and suggests that in some cases, nutritional deficiency may be a cause of developmental delay.

Genuis and Bouchard recommended that all children with neurodevelopmental problems (more…)

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Celiac Disease Symptoms: The Gluten Free Works Symptom Guide

Could my symptoms be related to celiac disease?

This is a common question people ask in the face of a bewildering array of possible celiac disease symptoms. The Celiac Disease Symptom Guide will help you identify possible symptoms and health problems that you can present to your doctor.

Here is the list of over 300 Signs, Symptoms, Associated Disorders and Complications directly or indirectly resulting from celiac disease.

Gluten Free Works, Inc. was the first organization in the world to publish this information in its comprehensive book, “Recognizing Celiac Disease.” This list is now being used by celiac disease centers, national celiac organizations and health organizations worldwide. (more…)

“An estimated 40 million adult Americans suffer from anxiety disorder.” (1) These 40 million people total 18.1 percent of the United States that are at least 18 or over. (2)

According to “Recognizing Celiac Disease” anxiety is common in people with celiac disease and may be the only manifestation. Celiac disease patients showed high levels of state anxiety in a significantly higher percentage compared to controls – 71.4% vs. 23.7%.(3)

Chronic maladaptive anxiety is characterized by vague uneasiness or unpleasant feeling of apprehension and dysfunction. It is marked by anticipation of danger and interference with normal functioning, ranging from mild qualms and easy startling to occasional panic, often with headaches and fatigue. Deficiency of amino acids and vitamins implicate reduction of synthesis of neurotransmitters in the central nervous system and could be linked to immunological disregulation in celiac disease patients. Anxiety itself causes depletion of vitamins and minerals. Deficient nutrients could be B vitamins, calcium, iron, magnesium, potassium, tryptophan.(3)

A medical study evaluating bloodflow in the brain showed evidence of significant blood flow alteration in the brains of people with celiac disease who had only anxiety or depression neurological symptoms and were not on a gluten-free diet. Single photon computed tomography (SPECT) scan showed at least one hypoperfused brain region in 73% of untreated celiac disease patients compared to 7% of patients on a gluten-free diet and none in controls.(3)

Therefore, bloodflow in the brain and nutritional deficiencies play a large part in anxiety. If nutritional deficiencies are the source of the problem, then medications will be less effective requiring increasingly strong doses because the body and brain do not have what they need to utilize them.

The good news is that studies showed state anxiety improves and can usually disappear in people with celiac disease after withdrawal of gluten from the diet and improvement of nutrient status.

Consider celiac disease if you or someone you know has anxiety.

Related medical studies are referenced in “Recognizing Celiac Disease.”

Celiac disease is a multi-system, hereditary, chronic, auto-immune disease estimated to affect 1% of the human population (3 million in the US) that is caused by the ingestion of wheat, barley, rye and oats. It is treated by removing these items from the diet. Signs, symptoms, associated disorders and complications can affect any part of the body and removal of the offending foods can result in complete recovery.

“Recognizing Celiac Disease” is a reader-friendly reference manual written for both medical professionals and the general public that specifically answers the call from the National Institutes of Health for “better education of physicians, dietitians, nurses and other healthcare providers.” It has been endorsed by top medical professionals and professors at Harvard, Columbia, Jefferson and Temple Medical Schools as well as the National Foundation for Celiac Awareness and the Celiac Sprue Association – USA. “Recognizing Celiac Disease” is being hailed as the complete guide to recognizing, diagnosing and managing celiac disease and a must-have for physicians, dietitians, nutritionists, nurses, patients and anyone with an interest in this complex disorder.

Click here for more information.

Sources:

(1) ADAA Brief Overview. ww.adaa.org/GettingHelp/Briefoverview.asp
(2) Wikipedia. http://en.wikipedia.org/wiki/Anxiety
(3) Libonati, Cleo. Recognizing Celiac Disease, Gluten Free Works Publishing, 2007. http://www.recognizingceliacdisease.com

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Author Information: John Libonati, Philadelphia, PA
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached by e-mail here.

John Libonati

Dental Enamel Defects and Celiac Disease

May 19th, 2009 by John Libonati

dental_defects_celiacdisease

Dentists can be the first identifiers of celiac disease. Up to 89% of people with celiac disease exhibit dental enamel defects. Dental enamel defects are characterized by alteration in the hard, white, dense, inorganic substance covering the crowns of the teeth. These defects may include demarcated opacities (white spots), undersized teeth, yellowing, grooves and/or pitting on one or more permanent teeth.(1)

A study of 128 patients on a gluten-free diet revealed that changes in the permanent teeth may be the only sign of an otherwise symptomless celiac disease.(1) It should also be noted that calcium and vitamin D deficiencies are common in celiac disease. Deficiencies of these nutrients lead to cavities.

“Dentists mostly say it’s from fluoride, that the mother took tetracycline, or that there was an illness early on,” said Peter H.R. Green, M.D., director of the Celiac Disease Center at Columbia University. “Celiac disease isn’t on the radar screen of dentists in this country. Dentists should be made aware of these manifestations to help them identify (more…)

If you or someone you know has a child with a mental illness, behavioral problem or unexplained neurological issue, you must watch these videos. They vividly illustrate how gluten and celiac disease can cause neurological illnesses and how removing gluten and casein from the diet can improve or cure the child.

Eamon Murphy started exhibiting mental aberrations and problems eating at three months of age. By the time he was three, his parents were frantically trying to understand what had caused his developmental delay in walking and talking, and now his trances, seizure-like episodes and regression. After a determined effort by his mother and a series of extraordinarily lucky events, he was finally diagnosed with celiac disease…and FULLY RECOVERED.

Watch these videos NOW and then forward this message to everyone you know with a child with a similar mental illness and their healthcare providers…because it is unacceptable that any child should be unnecessarily consigned to a life of suffering and diminished potential when a simple change in diet may cure them.

Eamon is totally normal now. If he had not been diagnosed, it is easy to see how he could have become incapacitated within a few years as his body and mind became sicker and sicker. Eventually, he may have been labeled autistic or schizophrenic. He may just have been called odd and slow.

Was it a miracle that Eamon recovered? No. It was a miracle that Eamon was diagnosed…

Here are some facts:

Autism affects 1 in 150 children. Medical experts recommend behavioral management and specialized speech, physical and occupational therapies (costing an estimated $70,000 per year per child), medications, community support and parental training.

Medical experts recommend AGAINST dietary intervention, yet the gluten-free/casein-free diet that helped Eamon has been demonstrated in thousands of cases to improve or resolve symptoms.

Celiac disease is still considered a rare gastrointestinal disorder that affects children by the majority of health professionals. In reality, celiac disease affects 1 in 100 people of any age, classifying it an epidemic by NIH standards. More people have celiac disease than Type 1 diabetes, breast cancer or autism. Diagnosis of celiac disease is estimated to take up to 11 years from first presentation of symptoms. Only 5% of people with celiac disease are estimated to be diagnosed.

Gastrointestinal problems occur in about 20% of people with celiac disease whereas neurological problems have been seen in as high as 51% at time of diagnosis.

The treatment for celiac disease is removing gluten from the diet and correcting nutrient deficiencies and any complications that have developed.

Unless you have symptoms that doctors expect to see – chronic diarrhea, failure to thrive, abdominal bloating and pain, and anemia – your likelihood of being diagnosed is extremely low.

For a complete list of symptoms related to celiac disease including dozens of neurological issues and problems in childhood, visit Gluten Free Works.

An excellent resource that outlines over 300 signs and symptoms and explains the relationship between celiac disease and the nutrient deficiencies that cause them is the book Recognizing Celiac Disease, by Cleo Libonati, RN, BSN. Recognizing Celiac Disease was endorsed by Dr. Peter Green, the director of the Celiac Disease Center at Columbia University who diagnosed Eamon Murphy.

cow

The following questions concern whether villous atrophy can be caused by milk and whether anemia can result from milk ingestion. The answer is yes: bovine beta casein enteropathy can cause both. See full explanation below.

Question:Does anyone know can a deficiency in lactase enzyme cause the villi to be blunted? My 3 year old son just had an endoscopy and it showed the villi are blunted.

My son has a lactase deficiency and has been gluten free for 18 months. We took him off lactose for the first 6 months after being diagnosed but then added it back and he seemed fine for 6 months.

So I am hoping maybe the fact that he was drinking a lot of milk caused the villi to be blunted and not ingesting any gluten?

Also, can that cause anemia?

My son is also slightly anemic. But we are very strict with his diet and I am pretty sure he is not getting any gluten ( i know its possible but I don’t think so… his diet hasn’t changed..)

Celiac antibody blood tests indicate he is not getting gluten?

So i am wondering if the lactose could be causing the villi to be blunted and the anemia???

Thanks,
S

Answer:
Dear S,

The most common cause of villous atrophy in people with celiac disease is unintentional gluten ingestion. This answer assumes no gluten is being ingested.

Cow dairy can cause an enteropathy similar to celiac disease. It is called Bovine Beta Casein Enteropathy. It acts like celiac disease, causing inflammation leading to villous blunting. The milk protein elicits the antibody reaction just like gluten does in celiac disease.

The resulting villous blunting would explain lactose intolerance, as the lactase enzymes needed to digest lactose are produced and release near the tips of the villi. If the villi are blunted, no lactase is being produced and milke digestion does not occur.

Bovine beta casein enteropathy is marked by diarrhea, failure to thrive, vomiting, atopic eczema and recurrent respiratory infections. It causes malabsorption of nutrients, just like celiac disease, so it can lead to nutrient deficiencies including anemia. 12% of those with bovine beta casein enteropathy are found to have celiac disease.

-John Libonati

Source: Recognizing Celiac Disease. p. 147
www.recognizingceliacdisease.com

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cataract1
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The post below is a response to a young woman with cataracts and celiac disease. Cataracts are directly related to nutrient deficiencies of Vitamin A, calcium and possibly vitamin B2 in celiac disease. (Editor’s note.)

Hello,

I am 20 years old, have celiac disease and cataracts. The optometrist told me it is because I have fair skin and light eyes and have had too much sun exposure. I grew up in Mobile, AL and spent everyday I could at the beach so this could be true. It is very interesting that you brought up this topic though. It never crossed my mind that these two could have anything to do with each other.

-L

Hi L,

Many eye problems are found in celiac disease. Cataracts are directly related to nutrient deficiencies. “Cataract formation, a feature of vitamin A deficiency and long standing hypocalcemia, is characterized by clouding of the lens of the eye. In celiac disease, it results from malabsorption of vitamin A and calcium. Vitamin B2 may be involved. GFD (gluten-free diet) is preventive and limits further changes.” (Recognizing Celiac Disease, p. 213) That said, we know that malnutrition can persist on a GFD due to unintentional gluten ingestion, poor diet, etc. Ask your physician to take levels of vitamin A, B2 and calcium to make sure you are absorbing adequate amounts.

-John

————————————–
Author Information: John Libonati, Philadelphia, PA
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached by e-mail here.

 

restless leg syndrome treatment

RLS from low iron in celiac disease responds to a gluten-free diet

Low iron levels have been associated with increased severity of restless leg syndrome. The following medical case report discusses four patients with low iron and restless leg syndrome who were tested positive for celiac disease and placed on a gluten free diet. All four had improvement on the gluten free diet.

“Celiac disease as a Possible Cause for Low Serum Ferritin in Patients with Restless Legs Syndrome.”

Manchanda S, Davies CR, Picchietti D.

University of Illinois at Urbana-Champaign, College of Medicine, 506 S. Mathews Avenue, Suite 190, Urbana, IL 61801, USA.

OBJECTIVE: To describe celiac disease as a possible cause for low serum ferritin in patients with restless legs syndrome (RLS). BACKGROUND: Low iron stores have been found to be a risk factor for RLS with serum ferritin levels less than 45-50ng/mL associated with increased severity of RLS. It has become routine clinical practice to test serum ferritin in the initial assessment of RLS. Celiac disease is a common genetic disorder that can cause iron deficiency.

METHODS: Consecutive case series of four patients with RLS and serum ferritin below 25ng/mL, who had positive screening tests for celiac disease. RESULTS: We report four patients who had serum ferritin <12ng/mL and positive screening tests for celiac disease. All had celiac disease confirmed by duodenal biopsy and response to a gluten-free diet. RLS symptoms improved in all four, with two able to discontinue RLS medication and two responding without medication.

CONCLUSIONS: In patients with RLS and low serum ferritin who do not have an obvious cause for iron deficiency, we suggest looking for celiac disease by simple, inexpensive serologic testing. Diagnosis and treatment of celiac disease is likely to improve the outcome for RLS, as well as identify individuals who are at risk for the significant long-term complications of celiac disease.

Source: Sleep Med. 2009 Jan 10. [Epub ahead of print]
url: http://www.ncbi.nlm.nih.gov/pubmed/19138881