Celiac disease awareness is desperately needed – now more than ever.
While the gluten-free diet has exploded in popularity, celiac disease remains massively under-diagnosed.
Why? Two Reasons:
1. The public has shifted its focus to the gluten-free diet and away from celiac disease due to the media. The media likes diets. Diets sell. Oddly named diseases that are difficult to describe in catchy sound bites don’t sell.
2. Doctors do not have the information they need to recognize, diagnose and treat this common disorder. The information exists but there is no authority that actively ensures (more…)
Dr. Rodney Ford, pediatrician and author of The Gluten Syndrome, provides us with an excellent and easy-to-follow video that tells us how to know if we need a gluten test.
This short presentation explains which symptoms to look for and tells you the tests you need to to request to find out if gluten is making you sick.
Dr. Ford estimates up to one third of people with chronic diseases are being affected by gluten and sums up why people do not ask to be tested. “We are so used to being sick that we don’t know we’re sick.” People think they have always been this way, so they do not know to ask.
He then establishes a great litmus test to determine who should be tested – “People who are sick, tired or grumpy should be tested.”
Lately, it seems like more and more celebrities and professional athletes are openly talking about going gluten free. Whether it’s due to a diagnosis of celiac disease or a gluten sensitivity, or simply because they want to get healthy, many of them have noted a weight loss as part of the benefits they’ve been seeing. Then why is it, that so many doctors and specialists will dismiss a diagnosis of celiac disease in a patient simply because the patient is not underweight?
In a recent article by Sonia Kupfer, MD, the belief that people with un-diagnosed celiac disease are all underweight is revealed to (more…)
I sit here writing this post from my bed. It’s 9:39pm and I have been in bed since 4:30pm. My tonsils are so big it hurts to swallow and I feel like I have been in a boxing match where I lost, severely.
I used to get sick like this all the time before I was diagnosed with coeliac disease and I am starting this think that my immune system is a wreck again.
Why? Because I have been slack. Many of those out there with coeliac disease will think I am stupid. I am stupid.
You see at my current job we have staff cafe. (more…)
Have you been told that along with Celiac Disease or Gluten Intolerance, you also have Fibromyalgia? If you have, you’re not alone. What exactly is Fibromyalgia? Well, there are certainly a lot of theories out there about what it is, and how it should be treated. Up until recently, it was considered an “invisible disease” (much like Celiac), and doctors would often diagnose it if they couldn’t find anything else wrong with you. In other words, instead of telling you, “you’re a hypochondriac,” they would say, “You have Fibromyalgia,” and give you an anti-depressant like Cymbalta, to help ease your symptoms.
Thankfully, with more and more people (especially women), complaining of similar symptoms, Fibromyalgia has finally gotten recognition as a legitimate disease. Some of the typical symptoms are (more…)
I just received an email from the Celiac Disease Research Center at Columbia University regarding a study showing a possible association between a blood pressure medication and villous atrophy. The blood pressure medication is called olmesartan and it is also known as Benicar, Benicar HCT, Azor, and Olmetec.
According to this article, the three-year study was conducted by the Mayo Clinic in Rochester, Minnesota and it included 22 patients who had symptoms of celiac disease, but antibody blood tests did not support that diagnosis. During this study patients improved with discontinuation of the drug, while a gluten-free diet had had no impact on their (more…)
May is National Celiac Disease Awareness Month, so it seems appropriate to share some medical facts about this autoimmune disease that just might shock you.
These facts come from Dr. Tom O’Bryan who is is a nationally recognized speaker and workshop leader specializing in gluten sensitivity and celiac disease. Dr. O’Bryan’s specialty is in teaching the many manifestations of gluten sensitivity and celiac disease as they occur inside and outside of the (more…)
The body goes through changes when people adopt a gluten-free diet. Many find their health problems melt away. But what about when they accidentally ingest gluten? Gluten Free Works wanted to find out whether folks discover their symptoms change in intensity after they have been gluten-free for awhile, so we posed the following question on our Facebook page…
Do you notice when you accidentally eat gluten that your symptoms are WORSE now that you have been gluten-free for awhile? Or, are they not as bad??
Recently, I had the pleasure of interviewing Karen Cranford, the president of our very own Celiac Sprue Association (CSA) chapter in Denver. I’ve known Karen now for about 7 months. We met when I became involved in the chapter and she helped me become the secretary. However, I feel that during this interview, I got to REALLY meet Karen and get to know her, which was such a joy. She has been the president of CSA for over two years and has helped, along with her many board members, build such a strong organization that has helped bring Denver to the top of the list in Celiac Awareness. She has helped the chapter bring the ’Incredible Edible Gluten-Free Food Fair™’ to Denver as well as worked hard to get incredibly knowledgable speakers, such as Dr. Ford, Dr. Fasano, and Dr. Wangen, to Denver to educate us all on Celiac disease and gluten intolerance. We all get the joy of experiencing the hard work she puts in on a volunteer basis to make living gluten free easier on all of us, but now we get the special treat of actually getting to know Karen.
Jenn: How old were you when you were first diagnosed?
Karen: So it’s been 7 years, when I turned 50. I’ve always laughed and said “Turn fifty…get celiac disease!”
Jenn: How long were you having symptoms before receiving a diagnosis?
Karen: Well, it’s easy to look back and say maybe I was having symptoms for a long time. I started having migraines around 22, and now I wonder if that was a symptom. But, I was probably really sick for about (more…)
This is a quote that a lot of people are hearing these days. What happens after your doctor says these words? Here is a synopsis of my journey; if any of this sounds familiar, give it some serious thought…there may be a very simple answer.
I first heard these words while I was barely concious, in a bed at Methodist Hospital in Houston. I had become so weak and debilitated by my undiagnosed and untreated celiac disease that my life was in danger. The symptoms over twenty years included gastrointestinal problems, fibromyalgia, irritability, bone pain and more. The good news was that I finally found out what was wrong with me; the better news was finding out that the disease is completely manageable through dietary changes alone.–no medications, no surgeries, none of that stuff. Just don’t eat grains that contain the gluten protein, mainly wheat, barley and rye. That sounded really good to me.
Not so fast. While still in the hospital, I was really still very sick, and not really able to process the information. After a couple of days (in which I was already improving), it dawned on me that (more…)