Archive for the ‘Publications’ Category

 

Heather M. Cline

So You Want to Start a Celiac Support Group?

November 18th, 2010 by Heather M. Cline


celiac disease support group

Celiac Disease Support Groups Are Priceless

I was diagnosed in 1996 when “celiac” and “gluten free” were still foreign words.  I remember the first conversation I had with a fellow Celiac.  I sat on the floor in my bedroom, confused and overwhelmed, listening to the kind voice on the other end of the telephone talking me through gluten free condiment options.  She introduced me to our local support group and within a few years, I was standing as the president.

Support groups serve a great purpose of providing grass root support from others in a similar situation.  This is priceless for newly diagnosed Celiacs and those who love them.  There can be an initial overwhelming sense of confusion and helplessness.  The good news is that even though there is a learning curve, it gets much easier!  And local support groups can be a huge help in the process.

Whether you want to start a support group or improve an existing one, these tips can help get you motivated and succeed. (more…)


[Editor's Note: June 4, 2012 Gluten-Free, Dairy-Free Cooking Made Easy is currently out of stock. The book is being made into an e-book and will be coming out soon!]

Can news of a cookbook make someone smile? It can if the recipes it provides helps change a life…

“I am sitting here listening to my daughter in her speech class just thinking
how this gluten free diet is making such changes. Brings tears to my eyes.
I will purchase that new cookbook with a smile.” -Courtney

As more and more people come to realize the benefits of a gluten-free, dairy-free diet for autism and general health, the brand new cookbook, “Gluten-Free, Dairy-Free Cooking Made Easy,” is set to produce smiles like Courtney’s across the country and around the world.

Published by Gluten Free Works, this handy book is making it easy to understand and prepare wonderful gluten-free and dairy-free meals that meet individual nutritional needs. (more…)

Hey guys! I just found a great health email I think all those interested in the particulars of health and current research would be really interested in. 

Harvard Health Publications

In particular, there is a great, informative and interesting article on the rise of gluten sensitivities and Celiac disease. You might have to sign up for the email newsletter to see it, but I think it’s worth it. 

The article goes into detail on various elements concerning gluten digestive issues such as; understanding what happens within the body in regards to gluten absorption, common and uncommon symptoms, testing to diagnose Celiac, and the “Super Six”, explained further in the quote below:  (more…)

recognizing_celiac_disease_website_cover_132x162Libonati_John_Philadelphia_PA

Gluten Free Works Publishing is helping people with celiac disease kick off a healthier 2010 by offering a $10.00 discount on the highly recommended celiac disease manual, “Recognizing Celiac Disease,” now through January 8th.

Recognizing Celiac Disease” is the ready celiac reference that thousands of people are using to get well and stay healthy.

“Recognizing Celiac Disease” lists over 300 symptoms of celiac disease and the nutrient deficiencies that cause them both before and after diagnosis. This comprehensive reference will help you understand gluten sensitivity, celiac disease, nutrient deficiencies and how they are affecting you so you can correct them and heal.

Doctors, dietitians, marines, chefs, hairdressers and celiac support groups across the country are using this invaluable tool. You can find dozens of reader letters on the Recognizing Celiac Disease website. Some are touching, some are amazing, but all of them rave about this fantastic resource and the information it gave them that helped them get better and monitor their health.

The list of experts from the most prestigious medical institutions who recommend the work is truly impressive. You can see them here.

“This masterful, comprehensive and easy-to-use resource guide will go a long way in helping folks restore their health and regain their lives, a goal we share. Recognizing Celiac Disease has a permanent place on my desk and I definitely will recommend this well-researched reference manual to healthcare professionals and patients alike.”

-Alice Bast, Founder and Executive Director,
National Foundation for Celiac Awareness

Take advantage of this limited time offer and get your own copy now. You will be happy you did…

Click here for more information and to order Recognizing Celiac Disease.

————————-
“Author Information: John Libonati, Philadelphia, PA
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached at john.libonati@glutenfreeworks.com.”

Celiac Disease Physician Education Program Goes Nationwide

November 11th, 2009 by John Libonati

Libonati_John_Philadelphia_PA

The Celiac Sprue Association – USA (CSA) recently ran the article below in Lifeline, CSA’s quarterly newsletter. The CSA-PEP refers to the CSA Celiac Disease and Gluten Sensitivity Physician Education Program.

CSA-PEP Goes Nationwide: Buffalo Physician Praises PEP

Lifeline_CSA-PEP_3rd_Quarter_2009_250x319Thanks to CSA members, CSA-PEP is now available in many doctors’ offices across the United States.

Mary Alice Kelly, MD, Buffalo, wrote recently to CSA.

“I have had so many eye opening moments going through the Recognizing Celiac Disease manual. It is so comprehensive, and I give kudos to the monumental task of putting this into a readable text. Lots of patients flash through my mind as I review co-morbid conditions.

There is more than enough material in this CSA-PEP packet to make a physician aware.

I think once you diagnose one or two patients, you include celiac disease in your differential diagnosis. Our problem as physicians is limited office time with patients, so the more organized material I have to offer, the better for them. Comparing your packets to the first homemade packets from the offices of dietitians is a world of difference.”

Read the full article here.

About the CSA Celiac Disease & Gluten Sensitivity Physician Education Program (CSA-PEP):

The CSA-PEP was created to increase diagnosis and improve treatment while increasing celiac disease awareness in the medical community and the public. It will provide 60,800 doctors and 10,000 medical students with information and resources that will aid them in identifying, diagnosing and treating people with celiac disease and gluten sensitivity.

To find out more about the CSA-PEP and get involved, visit their website here.

recognizing_celiac_disease_website_cover_132x162 Recognizing Celiac Disease is the definitive guide to understanding, diagnosing and managing celiac disease. It is a reader-friendly, celiac disease reference manual written for both medical professionals and the general public.

For more information visit, www.recognizingceliacdisease.com.
——————-
Author Information: John Libonati, Philadelphia, PA
President-elect, Celiac Sprue Association (CSA).
Publisher, Glutenfreeworks.com.
Editor & Publisher, Recognizing Celiac Disease.
John can be reached at john.libonati@glutenfreeworks.com.

WebMD reviews celebrity gluten-free diet book

October 2nd, 2009 by Tiffany Janes

Janes_Tiffany_Atlanta_GA

It seems that almost everyone has on opinion about Elisabeth Hasselbeck’s book “The G Free Diet”. People tend to think one of two things about it. They think it’s great that a celebrity finally spoke out about having celiac disease since we desperately need the publicity. Or they feel that it’s extremely unfortunate that the book contains quite a bit of inaccurate information, thus setting us back on our quest instead of forward.
hasselbeck_book
In the back of the book the author lists some of her favorite things like Flax Crackers from Sami’s Bakery in Tampa, FL. However, the only things that the bakery owner will confirm are gluten-free are the cookies and brownies made in a sealed off room. The millet/flax items are not considered gluten-free. There is a disclaimer on the packaging of their “no gluten ingredients” products, due to how/where they are processed. Some stores are pulling the products from their shelves in response to the information in Hasselbeck’s book stirring up a controversy about the product line. (more…)

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John and Cleo Libonati, the publishers of Glutenfreeworks.com and the highly recommended celiac disease reference, Recognizing Celiac Disease, are proud to bring you “Understanding Celiac Disease,” the continuing education article in the June edition of Today’s Dietitian Magazine.

Understanding Celiac Disease provides an overview of celiac disease with a concentration on the pathophysiology, symptoms, nutritional deficiencies responsible for gastrointestinal problems, steps for optimal treatment, and dietary sources of nutrients. This important information will help dietitians learn about celiac disease and how to help people get well.

“Recognizing Celiac Disease” is the acclaimed guide to recognizing, diagnosing and managing celiac disease. Recommended by medical experts and national celiac disease support organizations, it is used by healthcare providers and patients in 15 countries. www.recognizingceliacdisease.com

Today’s Dietitian is the only magazine written specifically for dietitians and nutrition professionals. With a readership of 110,000 Today’s Dietitian magazine is the leading news source for dietitians and nutritionists, covering topics such as diabetes management, long-term care, new products and technologies, career strategies, nutrition research updates, supplements, culinary arts, food allergies, fitness, sports medicine, and much more.
www.todaysdietitian.com

recognizing_celiac_disease_cover_lg1
The University of Chicago Celiac Disease Center has chosen Recognizing Celiac Disease as the supplemental reading material for medical professionals who complete its Preceptorship Program.

Dr. Stefano Guandalini, medical director of the center, recommends the book for both patients and healthcare providers. “The book is useful for prospective patients to determine whether their complaints are consistent with celiac disease. It is also an excellent patient resource for self management, especially in identifying ongoing and future health problems related to celiac disease and bringing them to the attention of their physician for proper treatment. “Recognizing Celiac Disease” is a useful reference that will serve as a helpful tool for health care providers and anyone diagnosed with the disease.”

The University of Chicago Celiac Disease Center’s Preceptorship Program is an on-site intensive 2-day training course for medical professionals. Candidates study under the direction of the Center’s celiac disease experts. The course includes formal instruction, as well as hands-on training. This is the nation’s only such program. More information about the University of Chicago Celiac Disease Center and the Preceptorship Program can be found at www.celiacdisease.net.

“Recognizing Celiac Disease” is the definitive guide to understanding, diagnosing and managing celiac disease. It is a reader-friendly, celiac disease reference manual written for both medical professionals and the general public.

For more information visit, www.recognizingceliacdisease.com.

The Celiac Disease Center at Columbia University is sending a free copy of their newly revised Ultimate Guide to Gluten-Free Living to everyone on their contact list as of July 30, 2008.  To receive a copy, please email your complete contact information (name, address, phone, fax, email) to cb2280@columbia.edu.  The guide will be mailed after July 30, 2008.

The Celiac Disease Center at Columbia University was established within the Department of Medicine at Columbia University in 2001.  Its mission: to redefine the future of celiac disease and treatment on an ongoing basis, through continuing advances in research, patient care, and physician and public education.

Under the guidance of Peter Green, MD, one of a few recognized experts on celiac disease in the United States, the Center has become world-renowned for its services and programs and is one of the first medical school based centers in the United States dedicated to the treatment and study of celiac disease. The Center is diagnosing and treating more than 2600 patients annually from around the world.  Additional information is available online at www.celiacdiseasecenter.org.

Tell Cynthia Gluten Free Works sent you!  :)

-John

John Libonati, Editor
john.libonati@glutenfreeworks.com

News Story about Recognizing Celiac Disease Book

January 16th, 2008 by John Libonati

The news story below just came out today. See what Dr. Stefano Guandalini from the Celiac Disease Center at the University of Chicago, Alice Bast from the National Foundation for Celiac Awareness and Jacqueline Gomes, the corporate dietitian at Pathmark Supermarkets had to say about “Recognizing Celiac Disease.”

This book was written for people with celiac disease and their healthcare providers. It will definitely help you understand your ongoing symptoms and what you need to do to achieve wellness…  —————————————————Fort Washington Woman Writes Importent Medical Book
Ambler Gazette
Amanda Rittenhouse, Staff Writer
01/16/2008

Fort Washington author Cleo Libonati wrote “Recognizing Celiac Disease” after she was diagnosed with the disease at age 55 when she requested her gastroenterologist to test her. Libonati said she hopes the book will serve as a guide to those who remain undiagnosed.

According to the National Institute of Health celiac disease affects up to 3 million people in the United States.
“I wrote this so that patient can go to doctor and read book and say I have these symptoms. Being able to find out what mineral, vitamin or nutrient are they not absorbing and what is causing all of their symptoms is the real strength of this book,” Libonati said.

Libonati has worked as a nurse in intensive care, recovery rooms, in medical and surgical nursing, taught maternity nursing, conducted staff in-service on medical techniques and is a paralegal in medical research.

Libonati described celiac disease as an inherited immune disorder affected by glutens found in the grains of wheat, barley, rye and oats. When individuals eat food including gluten proteins their digestive systems fail to break down the glutens, she said. Symptoms of celiac disease vary depending on the individual but complications can emerge in the nervous, gastrointestinal, skeletal and reproductive systems. Some experience no symptoms at all.

To treat the disease people should avoid foods like breads, regular pasta, pizza, bagels, danishes, muffins, cookies, pies, and cereals, she said. Libonati said the only treatment for celiac disease is a gluten free diet.

Pediatric gastroenterologist and celiac disease specialist at University of Chicago Celiac Disease Center Dr. Stefano Guandalini said the book is a good patient resource. Guandalini recommends the book to anyone diagnosed with the disease and said the book is well written, accessible and includes a very comprehensive list of symptoms.

“I think its useful for a prospective patient to find out whether their complaints are consistent with celiac disease,” he said. “I also think junior physicians who are not familiar with celiac disease should have this on their shelves. It is a useful source of information.”

Libonati’s 302-page guide serves as a guide to patients and doctors and covers the symptoms and foods that patients can and cannot eat to stay healthy. Libonati wrote the book in a three-year period by accessing medical libraries and analyzing studies on how the disease responds to a gluten-free diet.

“The book is an in depth medical reference that integrates world wide research on celiac disease into one useful resource,” Libonati said.

National Foundation for Celiac Awareness executive director Alice Bast said the average person with celiac disease suffers between nine to 11 years undiagnosed. Bast said Libonati’s book provides readers with an understanding of nutritional deficiencies and said it helps readers understand how a change in diet can improve the health of a person with the disease.

“I think this book is wonderful. The book guides you towards what you can do to improve your overall health and immune system and is really for somebody who wants to take health into their own hands. I recommend it to the medical community and to patients who want to be informed on how to stay healthy and to improve their health,” Bast said.

Libonati said the book includes extensive lists of foods that a diagnosed celiac may or may not have and instructions on how to build a gluten-free diet.

“One of the major issues facing celiacs is not knowing what a food is made of,” Libonati said.

Registered dietitian for Pathmark Stores Inc. Jacqueline Gomes guides customers towards finding gluten-free foods. Overall Gomes said the book has provided her with comprehensive information about the condition and what types of deficiencies a person may or may not have.

“I like it because it gives information what you can have and how you can enjoy it rather than just saying what you can’t have”, Gomes said.

Gomes calls the book user friendly and said it is appropriate for both health professionals and general readers that are able to understand some medical terminology.

“For me it’s a quick and valid source of information that I can use to talk to any of my consumers about the best choices they have for their condition at the supermarket level. This is a very comprehensive source ,” Gomes said.

©Montgomery Newspapers 2008

Find out more about Recognizing Celiac Disease here.