Archive for the ‘News’ Category

 

Celiac Disease Public Service Announcement

January 3rd, 2011 by John Libonati


Doctors are missing over 95% of people with celiac disease – over 3 million in the United States.  That’s more people than autism or Type 1 Diabetes, yet celiac disease receives a fraction of the funding of these diseases.  Lives are being destroyed every day, when a simple change in diet could cure them.  Let’s get the word out…

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Holy donations!  Congratulations to Dr. Alessio Fasano and the Center for Celiac Research at the University of Maryland Medical Center on receiving a $45 million private donation from the family of a grateful patient. 

The donation marks the largest single gift ever given to the university system and will be used to expand the University of Maryland Center for Celiac Research and study other autoimmune disorders such as multiple sclerosis and Type 1 diabetes. (more…)

 

On Sunday, October 10th, 2010, arena football kicker, Craig Pinto, will be kicking field goals for 12 straight hours, from 7:30am-7:30pm, with two goals in mind. First, he will be attempting to set a world record for most field goals kicked within that time frame, by having to make 500 field goals, from 40 yards out, but Craig’s main focus is to raise money and awareness for Celiac Disease.

KICKING 4 CELIAC was born out of the desire to show children and adults alike, that living with Celiac Disease will not (more…)

This just in from the National Foundation for Celiac Awareness…

Whether you’re a dietitian ready for new information or a celiac in need of
quality gluten-free tips, this Webinar will put you in the know!

“Veggies & Beyond: Why Celiacs Need a Nutritionally Dense Diet”

Thursday, October 7 at 1 p.m. Eastern/10 a.m. Pacific Time

Join NFCA as GREAT Dietitian Melissa Marek, RD, from Axxya Systems (more…)

 

Today is National Celiac Disease Awareness Day in the United States. From the National Foundation for Celiac Awareness website:

September 13 has been dubbed “National Celiac Disease Awareness Day” in honor of the doctor who identified a link between celiac disease and diet. Dr. Samuel Gee, a leader in celiac disease research, was born on Sept. 13, 1839.

Senate resolution calling for the commemoration gained unanimous approval on Aug. 3, 2010. In marking the awareness day, the Senate “recognizes that all people of the United States should become more informed and aware of celiac disease,” the resolution stated.

Below is the full text of the resoluation, found at OpenCongress.com. (more…)

According to the National Digestive Diseases Information Clearing House, a study published in the December 2008 issue of the Journal of Insurance Medicine reports that researchers from Columbia University and CIGNA HealthCare found that diagnosis of celiac disease substantially reduces subsequent health care costs. 

The research group, led by Peter Green, M.D., a renowned authority in celiac disease from Columbia University,  looked at medical records for 10.2 million CIGNA managed care members.   (more…)

Toxic Trio Identified as the Basis of Celiac Disease

July 23rd, 2010 by John Libonati

ScienceDaily (July 22, 2010) — Walter and Eliza Hall Institute scientists have identified the three protein fragments that make gluten — the main protein in wheat, rye and barley — toxic to people with coeliac disease.

Professor Bob Anderson from the Walter and Eliza Hall Institute in Melbourne, Australia, has identified the three protein fragments that make gluten -- the main protein in wheat, rye and barley -- toxic to people with celiac disease. (Credit: Czesia Markiewicz, Walter and Eliza Hall Institute)

Their discovery opens the way for a new generation of diagnostics, treatments, prevention strategies and food tests for the millions of people worldwide with coeliac disease.

When people with coeliac disease eat products containing gluten their body’s immune response is switched on and the lining of the small intestine is damaged, hampering their ability to absorb nutrients. The disease is currently treated by permanently removing gluten from the patient’s diet.

Dr Bob Anderson, head of the Walter and Eliza Hall Institute’s coeliac disease research laboratory, said it had been 60 years since gluten was discovered to be the environmental cause of coeliac disease.

“In the years since, the holy grail in coeliac disease research has been to identify the toxic peptide components of gluten; and that’s what we’ve done,” Dr Anderson said.

The research, done in collaboration with Dr Jason Tye-Din, Dr James Dromey, Dr Stuart Mannering, Dr Jessica Stewart and Dr Tim Beissbarth from the institute as well as Professor Jamie Rossjohn at Monash University and Professor Jim McCluskey at the University of Melbourne, is published in the journalScience Translational Medicine.

Dr. Bob Anderson & John Libonati at an NFCA-sponsored event April 30, 2009 in Philadelphia, USA where Dr. Anderson described his research and vaccine.

The study was started by Professor Anderson nine years ago and has involved researchers in Australia and the UK as well as more than 200 coeliac disease patients.

The patients, recruited through the Coeliac Society of Victoria and the Coeliac Clinic at John Radcliffe Hospital, UK, ate bread, rye muffins or boiled barley. Six days later, blood samples were taken to measure the strength of the patients’ immune responses to 2700 different gluten fragments. The responses identified 90 fragments as causing some level of immune reaction, but three gluten fragments (peptides) were revealed as being particularly toxic.

“These three components account for the majority of the immune response to gluten that is observed in people with coeliac disease,” Dr Anderson said. (more…)

A team of business school students from Boston College invites the gluten-free community to participate in an important market research survey. The goal is to learn more about consumers with specific dietary needs. The results of the survey will be used to assist in offering detailed recommendations about how to better support the community with unique, high-quality, gluten-free foods. This survey is intended for market research purposes only. Your opinion will be kept confidential. All results will be reported in the aggregate and not as individual entries. (more…)

Liz_Schau

It’s the beginning of a new year and writers, websites, and magazines are compiling their top trends lists, as predictions for the upcoming year. After all, it’s 2010 now, and seems the best time to reflect on all of last year’s most notable food fads in order to foresee what the upcoming year will bring us in food pop culture and consumerism.

Gluten_free_labelGluten-free eating has become more and more popular and mainstream over the last few years, as more people are being diagnosed with Celiac disease and gluten intolerance/allergies (either by medical professionals or via simple elimination diets). So it’s not surprising that among the many predictions for 2010′s favorite edibles, The Daily Beast has named gluten-free food as number three on their Ten Food Trends For 2010 list. As the website says, (more…)

Liz_Schau

As common at they are, gluten allergies and elimination diets are still, many times, viewed as fringe alternative health practices and often don’t receive the mainstream validation they deserve. When some estimates show that nearly 1 in 30 people suffer at the hands of gluten, one would think the intolerance to this protein would finally gain more acceptance in mainstream medicine and media. One man, doctor and author Mark Hyman, is working to do just that.

HymanHyman, an M.D. in the field of functional medicine, pioneers techniques that aide the chronically-ill in improving their health and quality of life by determining the underlying causes of illness and treating according to those causes, as opposed to much mainstream medicine that focuses on treatments that champion subsistence and reliance on a medication. Doctor Hyman is a blogger for The Huffington Post and in a recent article, cites gluten allergies and Celiac Disease (even latent Celiac) as the cause for many ailments and conditions never previously associated with the grain protein. (more…)