John Libonati

Can a celiac disease book save a life? A story how this one saved seven…

by John Libonati on October 22nd, 2009


Saving a life means more than just keeping a person from dying. It means helping them get well.

While practicing medicine as a registered nurse, Cleo Libonati regularly saved people's lives. Now her book "Recognizing Celiac Disease" is doing the same for people across the country and around the world.

Here is a letter telling how one family credits the book with saving their lives...

------------------------ Dear Cleo,

I have been "sick" most of my life (I turn 40 in July) with random things, too many to list here. I have been really sick the last 10 years, but started feeling as though I was "dying by the inch" in 2004. I finally broke down and went to my primary when premature ventricular contractions were occurring every 5-10 seconds that felt as though my heart was going to jump right out of my throat. I had many other random multiple sclerosis type symptoms, but the severity of the PVC's were what scared me the most, that is until 2006. I began to have many gastro symptoms that kept me in the bathroom several times a day with alternating elimination problems, I couldn't keep food down, and pain in the left side of my swollen, hard, tender abdomen every time I ate. I had an EGD and colonoscopy on 2/15/07. The three days before the test were the best I had felt in 4 years. Since I worked in Oncology and was used to seeing patients doing prep for them, I put myself on clear liquids 2 days before the Go-Lytely. So, I was gluten-free without knowing it for 3 days prior to testing.

When I woke up the morning of the test I realized whatever was bothering me had lifted..I hadn't thrown up, the mental fog had lifted, and my stomach pain was gone! My hubby made me go ahead and go to the test anyway, darn him! The doc said I didn't have celiac (I had no idea what he was talking about at the time), but that I had IBS, a hiatal hernia, GERD, and diverticulosis. He gave me a script for Zelnorm and said that should level out my alternating d/c problems in 3 months or so. As soon as I added food back in 2 days after the test the symptoms started all over again: pain, vomiting, reflux, alternating d/c, fog, dizziness, etc.....

The Zelnorm didn't do anything but send me the other direction where I basically had no control over my bowels. Not a good thing when you're working 12's at a hospital in direct patient care, especially in Oncology! :) A month later a co-worker told me it had been recalled! I called the doc and they said they stand by their diagnosis and to just follow the IBS diet. I tried eliminating all the things it recommended, to no avail.

At this point, I got down on my knees and begged God for an answer. I asked Him to send me an answer however He wanted and I would be listening. I happened to go shopping, which I hardly ever do because I hate it, and while waiting in a long line I saw a magazine cover that listed my symptoms almost to a "T"! I took it home and it talked about gluten sensitivity and celiac disease! So, this was what he was talking about! My husband read it and said it sounded just like me! I tried the diet and 3 days later I stopped throwing up and my stomach pain subsided! I called my doc and they said they still stood by the original diagnosis and I didn't need to be on a gluten-free diet! I told them I was just letting them know out of courtesy so they could put it in my file, my guess is they didn't bother with it. I've never spoken to the doc personally since the day of my testing, and never was told to have a follow up visit either. Some doc, huh?

Anyway, after going gluten-free and using the links in the article I was led to a local celiac support group. The only meeting I have ever been able to attend they mentioned your book! I promptly signed on and got a copy for myself! It's the best money I've ever spent! I have several other celiac books and it is by far my favorite! The brief explanation of celiac and the GI tract in the beginning are very thorough but easy to understand. I absolutely LOVE the charts and tables though, and the fact that you have recommended foods on the side to help with the deficits! The tables have given me answers to the random symptoms I've been plagued with over the years, most of which have subsided and eventually disappeared over the last year of my gluten-free journey! It wasn't all in my imagination, and I'm not a hypochondriac!

I think your book should be required reading for every student entering healthcare, in every field. I tell every nurse I know about your book, as I've noticed they are much more open to learning than most docs I know! As a result of your book, six of my immediate and extended family members have gone gluten free and are feeling better than they have in years! We are so grateful for your work! We feel as though your book has literally saved our lives!

Again, thank you SO much! -Tammy Wade, Bar W Candles --------------------------------------

recognizing_celiac_disease_website_cover_132x162"Recognizing Celiac Disease" will help you take charge of your health so you understand celiac disease, your symptoms and how to fix them. I have seen people use it to lose 110 pounds to reach their normal weight again, recover from jaundice, peripheral neuropathy, bipolar disorder, anxiety, migraines, bone pain, psoriasis and a host of other issues.

The key to saving your life is identifying your individual symptoms (both ongoing and new ones that may arise), understanding their relationship to celiac disease and correcting the nutrient deficiencies that are causing them. Once you are armed with the right knowledge, you can bring this information to your doctor or treat yourself by adjusting your diet to add the nutrients you need.

Get this book today. It can save your life.

-------------------- Author Information: John Libonati, Philadelphia, PA Publisher, Glutenfreeworks.com. Editor & Publisher, Recognizing Celiac Disease. John can be reached at john.libonati@glutenfreeworks.com.


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